Still so tired!

I had my thyroid removed last September and was placed on Levothyroxine, doses have been amended but i've never felt back to normal. I also take Vit D as was advised my immune system wasn't good. My thyroid levels were always normal but I developed a large goiter for the 2nd time and the thyroid gland couldn't be saved. I've gone from doing regular exercise to struggling to walk the local shop. My mood is not good and although I've changed my job and reduced working hours (wasn't coping with a stressful job) i still feel so tired - some days I could just lie on the office floor and sleep. My scar hasn't healed as well as I expected (they performed the 2nd op using the same scar line from my partial thyroidectomy) it's red and quite lumpy. I go for more bloods on monday as they've increased my dose to 100mg and want to check my progress. I just want to feel better...

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6 Replies

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  • Welcome to our forum and I'[m sorry you have had your gland removed.

    Can you get a print-out of your latest blood test results, with the ranges and post for comments. If you don't have them today, put them on a new post.

    Ideally doctor should test TSH, T4, T3, Free T4 and Free T3, B12, Vit D, iron, ferritin and folate.

    Tests should be the very earliest possible, fasting (you can drink water) and allow 24 hour gap approx between last dose and the test and take afterwards. You get the best result by this method.

    Also take levo on an empty stomach with one full glass of water.

  • Thanks thats really helpful, I'll make sure I don't take my medication before I get bloods taken on Monday and I'll ask what they are testing and get a breakdown of results. Will keep you posted

  • Sounds familiar except for using same line for 2nd operation. I have THREE parallel scar lines. No way should they have used the same line as the goitre would have attached itself to it when it regrew. It is likely that your body needs more than the single hormone levothyroxine. Many people without thyroid function feel better of a combination T3/T4, others, like myself do best on NDT. But you are unlikely to get either treatment on the NHS and would have to source your own.

    Ask your doc as forcefully as you can what options of treatment he can offer and exactly what you are supposed to do about getting either of these treatment if he refuses to give them to you. On no account simply sit there and timidly accept any stupid suggestions. That's precisely what the doctors want you to do as they are either ignorant about thyroid issues or do understand the problems involved but are prevented from doing anything about it.

  • Thanks thats useful

  • Hi Romy55, I had my surgery last November and like you I had a second op to remove the other half of my thyroid. My surgeon did the incision on the same line and luckily it has healed without any problems. I did use a scar patch (can't remember what they are called now, see my profile page). Sorry to hear yours hasn't. I wonder what will happen if you use a patch on it now. I'm also struggling with my mood and hormonal issues, weight gain and tiredness. My endo and GP put me on 125mg Levothyroxine but I'm taking 150mg despite their disapproval. I want to be in the higher level of the normal range of T4 and T3. You seem to be on a smaller dose. We are all different I guess. Fingers crossed we find a way to feel better. I put a 6 months update on my profile earlier. Take care

  • That is so helpful, thanks for taking the time to respond. I'm going to chase my doc re patch he was going to advise but hasn't. Also once i get blood results I'll feel better informed

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