I, like many on here, are fuming over the way the NHS are trying to eradicate t3 from prescription medicine. It is being portrayed as an expensive and low value medicine, that there are cheaper alternatives for . We know that is not true. What other alternatives do the NHS offer - only t4, which, those of us lucky enough to have survived long enough to go through the years of trying to make t4 work, fighting to be heard and fighting to be taken seriously, can verify is not an alternative for us. Been there, done that, it didn't work!
The problem being is that Dr will generally avoid referring patients, to specialists so they can be issued t3, for as long as they can. And even when we can stand there and show that this medicine is so much more effective than t4, Dr's choose to ignore it's impact. Choosing instead to say it has little benefit? On what evidence?
I have for approx 5years, been on t3 only. The difference is incredible. Yet my GP has shown no interest in knowing this. DR's seem to want to close their eyes to the benefits of t3? It makes no sense.
And all you people out there, who are having to self treat, who have not even been able to get a confirmed diagnosis, despite your obvious symptoms, never mind be offered any form of treatment, good or bad, along with all those people who are yet to realise they even have a thyroid problem, you are the invisible statistics that cannot be counted.
I wonder how much the timing of this announcement was orchestrated to coincide with the invoking of rule 50? Making this a minor issue in light of other things. Hence it gets lost under all the Brexit media, especially when it is branded with 'low value' items that are now more widely available over the counter, promoting an insignificant image of the drug, to the general public, who are not going understand.
They are not going to realise that Liothyronine is issued for a 'potentially fatal' condition. A condition serious enough to be one of only a few, that people are given a free prescription certificate for.
I have signed all the petitions I can find and filled in the CMA form, and emailed.
So, I thought I'd see who else could I contact to see what responses I would get back, and maybe, just maybe spark some interest somewhere - I know....I'm a dreamer...no harm in trying, as let's face it if we all stay quiet then no one is going o listen!
So, I emailed a Dr, who is also a journalist. I got a very quick response, saying he no longer reports on this issue due to the amount of abusive response he gets from both ends of the thyroid spectrum.
Highlighting, I think, the real problem - it is a battle. I took this spectrum to mean Dr v Patient!
And it also highlights the problem that the media do not want to know! If anyone knows of anyone who might be more sympathetic to our needs?
I also sent a message to my local MP. I await a response here.
Following the response from the Dr, I wondered who else may be worth trying...(I'm generally not that politically minded, but feel so strongly about this) I thought of Watchdog. So I have sent a message. I'm not sure I will get a response, as one of the questions was 'Did you watch the programme this week?' I was not going to lie, I don't even know if it was on! My hubby tends to watch it, I do sometimes but depends what else I am doing - women's work etc...
I wonder if enough of us took the time, and I know it is hard when you are feeling so low and wiped out, to contact anyone we can think of, if maybe, someone, somewhere might just hear something?
I'm worried that this issue has been reported on and now forgotten to be implemented in the background. And if so, what will be the next group that the NHS will push out the door. I appreciate that many of you must be feeling like this already, an it is hard to muster the energy to stand up and be counted when fatigue and brain fog are such a issue, however, there are 50000+ people on this forum, perhaps if we all made a small amount of effort to be heard, If we all shout just a little...again, maybe someone will hear and take some notice?