So I’ve got a TSH of 64.9 and I’ve had a TSH of around that or higher for about 8 months now, ever since I stopped taking T4 as I was just sick and tired of being overtreated and it making me a madman. I’m now on T3 just upped to 40 mg the thing is I actually feel OK, I admit I’ve had a hell of a three month period that started in Nov with Flu, I don’t mean cold I mean proper in bed for three weeks flu, this then developed into pneumonia and pleurisy (how we laughed) At one point I thought I was actually going to die, but was so ill I didn’t really care and in the middle of all this my beloved cat was diagnosed with chronic arthritis and I thought that she was going to have to be put to sleep, I cried so hard in the vets I made the vet and the nurse cry, the cat bounced back with the drugs but she’s 15 and they don’t go on forever but she’s a sweetheart and a trooper so on we go a day at a time.
So anyway the thing is how come I feel OK with such a high TSH? My GP just shrugs and says things like, “the last person I saw with a TSH that high was psychotic,” or, “I wonder how you aren’t 30 stone and unable to get off the sofa?” and the Endocrinologist says, “I’m really surprised that you’re not really ill,” This is an Endo whose title on the letter she sent me was, “Honorary Endocrinologist” WTF???? I asked a friend of mine who’s a retired GP what that was and he didn’t know so asked a specialist friend who said, basically they are using her as an Endocrinologist, but not paying her as one. I was like well what the hell is she, I mean is it like the degrees that they give footballers who now have honorary law degrees but have the IQ of an empty crisp packet? She did say that she had never prescribed T3 for anyone before, which I thought rather odd. When I expressed my concern that the CCG may stop Drs prescribing T3 she said, “can you get it on the net?” Really is this what the NHS has come to, specialists and Doctors asking you if you can get your own drugs on the net? Of course I haven’t told them I’ve already got a stash of Greek T3 just to be on the safe side. I did ask for a copy of my blood test but she couldn’t get the printer to work! she also had a student with her who actually seemed to be in charge!! It was all a bit alarming. Forgive me I am coming to the point, so she said, “Well your T3 is fine but your TSH seems to be going up so we should double the dose from 20 to 40,” adding, “is that micrograms or milligrams I can never remember.” So my question is if my T3 is fine why would we need to up the T3? I mean I understand that they want to get my TSH down and I’m not on a high dose but won’t they end up over treating me with T3? Any thoughts or explanations would be much appreciated.