Will have to wait and see.: I have hashimoto's on... - Thyroid UK

Thyroid UK

140,947 members166,079 posts

Will have to wait and see.

beaton profile image
9 Replies

I have hashimoto's on T3 only.

I have been through all the endos in Cornwall, the last insisted I add T4 to my prescription, I managed to fight her off for a year then got called into gp. to "discuss" the matter. Having tried once to oblige and known the consequences, I was reluctant to gps "just give it a go." but did agree to try again. My blood pressure went sky high and I almost fell in the shower due to vertigo. Gp. is baffled by my symptoms and has referred my To Devon for a second opinion.

I had an appointment for Feb 7 and had bloods done ready for the new endo. only to have the appointment changed to the end of March.

Today I had reflexology as I do one a month. Adrenals are suffering, heart pounding and hot when she touched that area on my left foot.

I have made an appointment with my gp for later in the week (about an other matter.) Should I mention adrenal problem, remembering my "condition" baffles him or wait until I see the endo.

Why is this happening? do I need to add the dreaded T4?

Bloods at 26/1/17

T4. 0.3

TSH 0.028

They didn't test T3 ??

Thanks for listening.

Written by
beaton profile image
beaton
To view profiles and participate in discussions please or .
Read more about...
9 Replies
greygoose profile image
greygoose

Well, I wouldn't add T4 to my T3! But it goes to show how little they know about anything if they just tested TSH and FT4 when the patient is on T3 only. They're both totally irrelevant.

beaton profile image
beaton in reply togreygoose

Thanks GG.x

greygoose profile image
greygoose in reply tobeaton

You're welcome. :)

Marz profile image
Marz

Of course your FT4 will be low if you are T3 only 😊- also the TSH.

How are your levels of B12 and VitD ?

beaton profile image
beaton in reply toMarz

Hi Marz, It's a joke isn't it?

B12 was tested over a year ago, marked ok, no figures. D never tested. I do supplement. Perhaps new endo. will test.

Marz profile image
Marz in reply tobeaton

Do ask for those B12 results - it is so important to know where you were. Did you mean you supplement B12 and D3 ? If supplementing B12 then further testing is of little meaning as the results will be skewed :-) How much are you taking ??

beaton profile image
beaton in reply toMarz

Can't remember B12 as have just run out, take D3 as well. Always stop sups a few days before bloods

Marz profile image
Marz in reply tobeaton

A few days for B12 will still skew results - sorry ! Many many months are required to clear the blood for a meaningful test. So I would keep on treating and taking B12 as stopping would only highlight problems. Blood tests are only a guide as B12 is needed in the cells and only 20% of the test result is available for transportation to the cells :-)

B12 works with folate in the body - so Folate levels need to be halfway in range. So a Good B complex should sort that one and keep all the B's in balance.

beaton profile image
beaton in reply toMarz

Thank you Marz.

Not what you're looking for?

You may also like...

Do we need T4?

I have been under endocrinologist at my local hospital (Cornwall) for about five years. I have...
beaton profile image

My latest Endo letter and need research to dispute TSH only

Hi, I've been around reading but not posting much.Have been continuing with T4/T3 combination but...
tzracer profile image

Taking t3 and t4

Hi I have been hypothyroid for 5 years tsh started at 60 and now down to 0.03 everything else re...
JJB21 profile image

Only feel that I got to start the T3 journey but not complete it

So I have had the genetic test that shows I am heterozygous and after being on T4 for many years...
SharonH profile image

T4 causing problems

Hi everyone, I wrote a few weeks ago about my endo. requesting I added T4 to my T3 only meds. I...
beaton profile image

Moderation team

See all
SlowDragon profile image
SlowDragonAdministrator
PurpleNails profile image
PurpleNailsAdministrator
RedApple profile image
RedAppleAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.