28 years ago I was given radio active iodine to knock out my overactive thyroid. Within 6 weeks I hit rock bottom, with two boys under 3 I couldn't cope. I was prescribed gradually increasing levothyroxine and eventually (approx 2 years later) at 150mcg daily started to feel a little like the person I used to be. For the most part I hae been functioning reasonably well on a regualr 150mcg daily. Until my GP said my TSH blood test showed that I was on too much. I was reduced to 125mcg and oer aq period of approx 18 months I became slower and heavier and struggled with muscle spasms and pain until I snapped a ligament in my knee (because of the muscle spasms).
I told my GP I was underactie and she disagreed and went on to give me bone scans, nerve tests and diabetes checks . Six months later they told me I was too low and put me back up to 150mcg.
8 years later I hae been told I am on too much leothyrxine again and she wants to reduce it. I told her I wasn't always feeling generally well and felt that I am not at my optimum health. She offered me an appointment with on endocrinologist which is on the 19th December.
What I would like is some advice on what specific questions I should ask the consultant and if there are any checks that I can do at home before hand to take as evidence with me. I haven't seen an endocrinologist since I was discharged about 27 years ago.