I posted a couple of weeks back about my first week on Erfa being a bit rocky. Prescribed 30mg to take twice a day by Endo.
Took last Levothyroxine 75mcg 30th September and started Erfa 1st October. First 3 days uneventful, then awful morning symptoms, headache, high BP (already on med for BP) and after a bit of searching, decided it seemed like the dose was a bit high.
Reduced the dose day 4 by half, so half grain split into two doses, early am and mid pm. Symptoms reduced straightaway, so then have gradually built up the dose in 1/4 tablet increments until today when I've finally started taking 30mg twice a day.
Last week I had a couple of very good days, in fact I think Wednesday it seemed almost weird to feel so good! Almost normal how I felt years ago. Then rough day Thursday with headache and neck ache, Friday not so bad and weekend 'OK'
This morning however, I woke very early around 05.30 feeling quite odd, heart beats felt very heavy, though not particularly fast. Felt rather jittery. And the most symptom I had was the thing I believe is known as 'air hunger'. I felt I had to keep my mouth open to take gulps of air, otherwise felt like I wasn't breathing properly. In a quandary as to what this was about. Got up to go to the toilet and then took Erfa 30mg which I'd put out on my bedside cabinet ready. Felt as though perhaps my BP may be high but decided not to check it as that would make me more anxious if it was rather high.
Back in bed, still feeling weird, In the end I did take a 2mg Diazepam and then all symptoms started to subside and felt better when upright. Got up at about 06.30, dressed and off to work. Mondays are really busy in my job and the morning passed OK, but noticed some palpitations late morning, sort of missed beats, so at 1pm a bit earlier than previously, I took 2nd Erfa tablet 30mg and felt better fairly soon.
When I got home from work, I didn't feel too bad initially but then started to feel a weird shivery feeling. My husband suggested perhaps I have a bug coming of some sort, but it seems to have gone now, but rather weird.
So I'm wondering whether my dose is too low or too high and would it be an idea to take a small amount late evening or before bed as it seems a long gap between early afternoon dose and next morning dose?
I had a Blue Horizon blood test done not long ago which showed vits and mins OK. Had a visit to A & E late August where they checked my iron levels and said they were really good. The BH test showed TP antibodies and a recent ultrasound scan showed 'thyroid is very small indicative of chronic thyroiditis'
Endo had prescribed 2 x 30mg to be taken for around 6 weeks, then have a blood test. So I'm just starting week 4 but only just got to this full dose.
Any thoughts or guidance?