Report your experiences to Yellowcard

[Lavender-Blue]

Hi all

I have just reported my Levo experiences to Yellowcard : yellowcard.mhra.gov.uk/

Hopefully if there are enough reports something may change in terms of Medications offered.

[Hidden]

hi Lavender-Blue

I have looked at link for yellow card (levothyroxin)

I can't read it.its very small and lot of lines.

ive only got mobile so it may look different on pc.

I will try to find another source

thanks

[Lavender-Blue in reply to Hidden]

Hi

I hope you are able to find it.

Karen

[heathermr]

I have submitted over 4 "yellow card" complaints about the quality of British T3 over the last 12 months and I am complete disgusted that beyond an email asking for permission to forward my details to the manufacturer, I have heard absolutely nothing from them. In fury I sent a rant Email to the manufacturer and after a brief exchange of basic info and some samples, I have heard absolutely NOTHING. I know that others have done the same thing for the problematic T3 but again NOTHING happens, its a complete waste of time.

Heather

[Lavender-Blue in reply to heathermr]

Oh dear Heather, how frustrating. It's not good when most of the time hypo paieints feel unwell.

I am suffering big time. My arms are painful and swollen, on disclofenac but it doesn't help much.

Endo says I am serverly undertreated, my bloods are supposedly "normal" though.

It's such a waiting game from one appt to the other.

Karen

[nightingale-56]

Many Yellow Cards were sent in with the change of Branded Levothyroxine to Generic ones from 2010 and are still being sent it seems. No change has happened yet and MHRA bought out a Report on this. Sorry can't give link, but it is somewhere on this site.

[Lavender-Blue in reply to nightingale-56]

That is really interesting Heather because from 2002 when I was diagnosed hypo I have been ok on the meds.

Around 2011 I began having problems, mainly pain. Now have swollen arms and they are so painful.

This may explain my experiences. I didn't know this.

Thank you.

Karen.