Diagnosed Hyper (Graves) 7-8 weeks ago T4 51 TSH <0.01
Initially on 40mg Carbimazole, quickly dropped down to 20mg after severe hives.
My T4 levels came down into range within 4 weeks... I went to see my GP who told me to stay on 20 mg for another 3 weeks (even though my T4 was 20!).
I thought this was ridiculous as my T4 had dropped so quickly on 20mg of Carbimazole, and if my levels were in range (albeit slightly high) another 3 weeks at 20 mg would wipe my T4 out.
So I am afraid I took matters into my own hands and decided to take only 10mg.
Because of this, I decided to have a private blood test just 2 weeks on, (to keep an eye on things), and my T4 came back yesterday as 14...
I have given my GP a copy of this, he has told me to stay on 20mg. Really?
Am I missing something here?
Why are they so intent on wiping my T4 out??
I have tried ringing the Endo, but as I have not yet had a first appt, they said it is for my GP to manage!
As it is, I am only taking 5mg now as I do not want to go Hypo, but I will retest again in 2 weeks...
Has anyone had this experience, where GP wants to wipe out T4 or doesn't seem to know what they are doing?? Do I need my T4 levels to drop to zero for TSH to kick in?
I am really frustrated as I have had no real management, I haven't been able to get an earlier Endo appt (14 weeks after diagnosis) and I know if I had left it to my GP I would be hypo in a big way.
I've been monitoring and decreasing my medication on my own.
Interestingly, when I rang Endo secretary, she told me off for decreasing medication even though I was in range as 'its the Endocrinologists that are the specialists and not you'... Grrrrrrrr....