Hello

Hi everyone just Wondering if anyone can help me, I have all the symptoms of an under active thyroid yet my results have come back clear the reason I am still worried is that my mom had just been diagnosed with hypothyroidism and two of her sisters (my aunties) have it too I've read it can be genetic but how do I get a diagnosis of my results are always coming back ok? Or am I ok and my problems are related to something else I'm fed up of feeling so poorly and worrying as to why

Thank you in advance

11 Replies

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  • without your actual blood test results we cant tell but often they only test TSH which simply will not detect all 3 forms of hypothyroid it only detects primary hypothyroid not central or tertiary which are by no means rare

  • Thank you for you're reply so could my test results be wrong as in not showing hypothyroidism sorry I'm new to this and not quite understand of all the terms etc

  • its how the results are interpreted by doctors and exactly what test they did thats likely 2 be wrong

    your legally entitled to have your results and without them we cant tell whats going on

    but in primary hypothyroid TSH rises because the thyroid is sick

    but in central or tertiary hypothyroid it cannot rise because its the pituarity or hypothalmus thats sick not the thyroid

    hence because all too often they only test TSH people dont get diagnosed

  • The test results "ok" means they are "in range". The ranges are known to be wrong, but nobody cares

    The test results "ok" do NOT mean absence of symptoms

  • Suggest you ask GP to check levels of vitamin d, b12, folate and ferratin. These all need to at good (not just average) levels for thyroid hormones (our own or replacement ones) to work in our cells.

    Also do you know if you have had your thyroid antibodies checked? There are two sorts TPO Ab and TG Ab. (Thyroid peroxidase and thyroglobulin) Both need checking, if either, or both are high this means autoimmune thyroid - called Hashimoto's, the most common UK cause of being hypo.

    In early stage Hashimoto's our bloods can be "in range", but you can still feel really rubbish

    If you can not get GP to do these tests, then like many of us, you can get them done privately

    thyroiduk.org.uk/tuk/testin...

    Blue Horizon - Thyroid plus eleven tests all these.

    When you get results suggest you make a new post on here and members can offer advice on any vitamin supplements needed

  • Hi there

    Unfortunately the docs are not always right; I was trotting up to my GPS for 6.5 years with crippling symptoms but kept being told that my tests were normal for thyroid. I moved GPS and was diagnosed hypothyroid, treated and after a year and half all my symptoms were gone

    My previous GPS still maintain I wasn't hypothyroid when I was with them so it obviously came on in a few weeks between the surgeries....

    So, suggest you ask for the actual test results and post them in a separate post so the forum can let you know whether it's likely that you may have a thyroid issue

    As with you hypothyroidism runs in my mother's family; when finally diagnosed at 47 I was the only female over 30 who hadn't been diagnosed with hypo between the ages of 30 to 40. Unsurprisingly it looked like I should have been diagnosed but wasn't....

  • When there is more than one close family member with thyroid issues there is a possibility of a genetic thyroid condition. I have been researching this: Impaired Sensitivity to Thyroid Hormone (more often known as Thyroid Hormone Resistance). With it the thyroid blood test results can be low, normal or high. It causes symptoms similar to hypothyroid and requires very high T3 levels in the body to overcome the resistance.

    If interested I can point you to more information.

  • Hi Sandy

    I take NDT because of having the dio2 gene snp (heterozygous) which I'm assuming is probably part of the thyroid issues running in the family problem. Anyhow the NDT has sorted out the majority of my symptoms so thank you although suspect a separate post with your links on may be of interest to the wider forum so suggest you do post a new thread.

    Thank you for the offer, much appreciated

  • The dio2 gene is involved in converting T4 to T3. If your family members have good Free T4 but low Free T3 then this would point to dio2 being the problem.

    NDT does contain a percentage of T3 but is mostly T4 so some people find T3 works better.

  • I'm very happy on ndt. Thank you for the info

  • Thank you for you're reply and it's sounds as thought my case is very much like yours I will ask my gp for my result and hopefully get some answers I'm in the age range I think as I'm 41 nearly 42 and as with you my mother has been told time and time again that her thyroid results were fine but now "all of a sudden" she has hypothyroid even though she's had the symptoms maybe 7 years plus and now I feel the same way she does but have been told I'm fine also 😟

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