Out of interest........How many people with Hashimoto's on here have negative TPO and only positive TG?

[SlowDragon]

Just wondering how rare it really is?

Or only rarely tested for?

I assume most would people would only know if got tested for both TPO and TG via private tests.

[Hidden]

Holds up hand! Your assumption is correct.

[greygoose]

Well, my TPO weren't very high, but they weren't negative, either. My Tg, on the other hand, was sky-high. I live in France, and they test both, here, automatically.

[SlowDragon Administrator in reply to greygoose]

Yes, I have similar - high TPO but off the scale super high TG. Both now falling slowly since being gluten free and supplementing with selenium 😃

[greygoose in reply to SlowDragon]

Haven't had mine tested a second time, so don't know what they are know - that was 16 years ago!

[HarryE in reply to SlowDragon]

Mine came back in range just on NDT. I've not gone gluten free

[HarryE]

Me. No TPO, but TgAb almost 100 times above range. Obviously the NHS ignored this completely & I was refused any treatment at all. Been self medicating ever since.

[Siovaun]

Hi there.

What is considered to be high for TPO and TG? Thanks so much!

[SlowDragon Administrator in reply to Siovaun]

Depends on the lab - each one has different ranges.

Usually listed as > (means less than the figure after it)

Eg if TPO result was 356 > 120

That means the result of 356 is more than 120 - therefore positive for Hashimoto's

Make sure you get the actual figures from tests (including ranges - figures in brackets). You are entitled to copies of your own results. Some surgeries make nominal charge for printing out. Alternatively you can now ask for online access to your own medical records. Though not all surgeries can do this yet, or may not have blood test results available yet online,

NHS rarely checks TPO and almost never checks TG. NHS believes it is impossible to have negative TPO and raised TG. It's rare, but not impossible, there are a few members on here that have this.

It's obviously even more rarely diagnosed if they don't check TG!

[Siovaun]

HI there, thanks so much.

Here are my results, my doctor did say they are high, but I don't know how high is high.

THYROID ANTIBODIES ONLY

Anti - TG Antibody 43.74 IU/mL H < 4.11

Anti - TPO Antibody 95.66 IU/mL H < 5.61

If I look at the range, it says it must be < 4.11 and <5.61 for TG and TPO respectively???

[SlowDragon Administrator]

You have high antibodies - therefore you have Hashimoto's so you may find adopting 100% gluten free diet can help reduce symptoms, and lower antibodies too.

Assume you know that Levo generally should be taken on empty stomach and no food or drink for at least hour after. Many of us take on waking, some prefer bedtime, either as more convenient or perhaps more effective. No other medications at same time, especially iron or magnesium, these must be at least 4 hours away

Best advice is to read as much as you can. Vitamin and minerals levels are very important, but standard NHS thinking, doesn't at the moment seem to recognise this.

Low Vit D often also means low Vit B - see this link

drgominak.com/vitamin-d-hor...

Low Vitamin D common with autoimmune diseases - eg Hashimoto's

vitamindcouncil.org/tag/aut...

Gluten info

chriskresser.com/the-gluten...

If they have not been done ......Suggest you ask GP to check levels of vitamin d, b12, folate and ferratin. These all need to at good (not just average) levels for thyroid hormones (our own or replacement ones) to work in our cells

You will see, time and time again on here lots of information and advice about importance of good levels of B12, folate, ferritin and vitamin D, leaky gut and gluten connection to autoimmune Hashimoto's too.

[Siovaun]

Thanks so much. Really appreciate it.

So information 😀