Hi I am a newby and I was diagnosed in April 2015 with Graves Disease and my GP (she is fabulous by the way) started me on 5mg of Carbimazole to see if that helped while I waited for my first hospital appointment. I have been taking the same dose ever since. According to my hospital visit on Friday all my T counts are at acceptable levels so they are proposing in October to stop the drug completely and blood test me every 2 months to see if I flip back. If I flip then it will be back on the Carbimazole and a choice of radio active iodine or surgery. So when I said if my T levels are good can I stop taking it now I was told no, wait until October...my question why was responded to with ...have you ever had a scan done of my thyroid, when I said no the hospital said they would make an appointment for this to be done to check for nodules. Then they would make a decision!
So I am 55 years old, I quit smoking around the time I started the drug and my weight gain has been horrific ~70lbs I think, yes I am 5ft 10ins but I feel like a whale. My joints hurt and my clear skin I have been proud of all my life is erupting and the spots that form on my boobs well they are just disgusting and they are scarring.
Do I add I have never had an illness except glandular fever as a child and the odd cold. No surgery, no broken or fractured bones and 2 nights in hospital to deliver a son!! So why oh why now does my body fail me?????