Results help

[sheila60]

sorry but i had to make another post to get these pics on here to show you, please someone explain them to me,

[bluebug]

What medication are you on?

Also I find it odd that your GP is unable to test you for ferritin, folate, vitamin B12 and vitamin D. I suppose she did this to save money as full blood counts rarely show anything on their own.

[sheila60 in reply to bluebug]

i am taking 10mg of carb. and up to 120mg proprananol plus i got 2 mg diazapan to calm me but she only gave me 12 of those and no more as she says they are addictive

[puncturedbicycle in reply to sheila60]

Ah, so you're already on BBs and have been diagnosed w Graves?

[sheila60 in reply to puncturedbicycle]

not been diagnosed with graves but hyper if there is a difference ?

[Jefner in reply to sheila60]

I am on Prop and Diazepam too for my anxiety. Have you had your cortisol levels tested. The anxiety I have is due to high levels.

[sheila60 in reply to Jefner]

cortisol? i wish i knew what all these things are. where do i get tested for that ? sorry but i keep apologising to people on here as i dont know much about this subject of thyroids ( apart from feeling yuk )

[Jefner in reply to sheila60]

not saying you have but I have Hashi's and went hyper and the symptoms were frightening and still are most days with the anxiety, nausea blah blah. Have had those symptoms now since last September. Had a saliva cortisol test done and all my levels were high which I believe are the main cause of my severe anxiety symptoms. Have even been suicidal (as many members will know). As you are a ThyroidUk member you can get it slightly cheaper with Genova Diagnostics

thyroiduk.org.uk/tuk/testin...

It's worth checking. You have to spit into 4 tubes at certain times of the day

[sheila60 in reply to Jefner]

wow will try that as my anxiety is terrible as i said in earlier posts i feel like my body is ready to snap, thats why i take the diazapam but i dont have many left so dont know what i will do after that

[Jefner in reply to sheila60]

I have been on my Diazepam about 3 months now. To be honest I have felt so ill I don't care if I get hooked cus I can get off them. I just need them with the Prop to stay alive. Your Doc can give you them. Mine warned me but freely gives me them because he knows I have been suicidal and they help me to cope

[sheila60 in reply to Jefner]

so pleased to hear that because i am going back to ask for more, i have been off work for 2 weeks and my staff are running the place for me, i need to get back as the summer season is upon us. I love the people on this site i would have been lost without you all

[Jefner in reply to sheila60]

ditto that honey

[puncturedbicycle]

Thanks for clarifying. I don't know much about hyperthyroidism but it seems you're quite close to the top of the range here, so if you're not borderline hyper you must be close. Did they test antibodies?

Might be an idea to ask if they will prescribe a beta blocker for your anxiety. I don't know if it will be of any direct help for your high thyroid levels, perhaps someone who knows more will say.

[bluebug]

I just checked the side effects of Proprananol, which is a beta blocker, and apparently they include the unwell and panicky feelings it mentions at the bottom of the results.

Links:

patient.info/medicine/propr...

evidence.nhs.uk/formulary/b...

I've discovered that other people who I've met in real life have side effects to drugs and their GPs and specialists don't believe they are actually having one as listed on the information leaflet even when the side effect is a physical sign. If you do think it is the Proprananol and are put on a different drug please complete a yellow card as doctors don't tend to do it due to being too busy - yellowcard.mhra.gov.uk/

[sheila60 in reply to bluebug]

i was put on these over 29 yrs ago for panic attacks and been on low dosage ever since, i now take 3 40mg a day if i stop them i get terrible shakes.

[puncturedbicycle in reply to bluebug]

Propanolol is sometimes used to reduce symptoms of hyperthyroidism.

[Jefner]

you can't just stop Propanalol. You have to wean off it slowly, especially the length of time you have been on it

[sheila60 in reply to Jefner]

i know, i tried stopping it myself but i was a shaking nervous wreck, so i would rather just keep on taking it,

[Jefner in reply to sheila60]

has to be done very very slowly and over the space of months honey. My Dr left me on Ativan many years ago for 13 yrs. Took me a year to get off it and I did it all by myself

[sheila60 in reply to Jefner]

one day when this hyper thing settles down ( hopefully )i will try and well done to you

[puncturedbicycle in reply to sheila60]

Just to clarify, ativan is a benzo and propanolol is a beta blocker, so they have very different effects on the body and the reasons for slow weaning are different. Benzo withdrawal can cause psychosis and seizures and if you suddenly stop propanolol you can have cardiac problems.

[sheila60 in reply to puncturedbicycle]

well in no time soon am i going to stop them as i dont think i could cope without them at the minute.Just sat and had a good cry for no reason at all , think all this anxiety is getting to me

[puncturedbicycle]

Does anyone know if propanolol actually changes the nature (test results etc) of hyperthyroidism, eg might it be suppressing and/or masking sheila60's 'true' results, thus keeping her from getting optimum treatment for her hyperthyroidism? Or does it just help w symptoms?

It's odd to me, these results would have my gp reducing my meds (for uat). Because results are in range sheila60 won't have more aggressive treatment even though she's so symptomatic and has been symptomatic for many years?

[Jefner in reply to puncturedbicycle]

I read that it's supposed to interfere with conversion

[puncturedbicycle in reply to Jefner]

Yes, but I'm not sure if that is in organic autoimmune cases or in cases of taking synthetic hormones if that makes sense. My impression is that if you take too much t3 you can take BBs to counteract it, so that must be something to do with absorption and not conversion. I just don't know that much about the precise action of the BBs on the way the body uses thyroid hormones.

[sheila60 in reply to puncturedbicycle]

you have got me thinking on that one as every blood test i have had i have been on proprananol

[puncturedbicycle in reply to sheila60]

Yes, well I wouldn't like to suggest I know that it would alter your results it's a question for someone who knows more about it than I do.

[Trixie33]

My understanding is that it reduces the hyper symptoms but not the blood results. Read that somewhere recently but can't find it now. A quick google suggests it is still open to debate - no significant change to TSH or FT3 but a slight change to FT4 in the most 'medical' looking document I can find.

[elderflower2016]

Your thyroid levels are actually fine at the moment. They don't show that you're currently hyperthyroid. So the 10 mg of Carbimazole you're taking is fine.

Hopefully your symptoms will subside once your thyroid levels have been stable for a while.

[sheila60 in reply to elderflower2016]

I hope so as its driving me mad all this anxiety, i have been sleeping most of the morning and really tense when i wake.