3rd Auto-immune condition diagnosed.

[yorkshiregirl44]

Hi,

For such a long long time i have been posting my symptoms on here along with endless medical appointments looking for answers to why i am feeling the way i do.

I already have a diagnosis of crohns disease and Hashimotos. And now finally i have some answers for my unusal ongoing symptoms and have been diagnosed with Primary Progressive MS.

Im still having problems with my thryoid so i will still be visiting this site looking for support and hopefully offering support to others.

I wanted to say thanks to everyone who has supported me on here and also to inform you of my new doagnosis as it may help others who are having similar symptoms.

Thanks Christine

[Marz]

ncbi.nlm.nih.gov/pubmed/216...

Really saddened to read your post and hope you are coping. Am sure it must be very difficult for you. The above link came from the Grassroots Health website - as I have their Newsletters. Just thought it may be of use especially as you also have Crohns.

grassrootshealth.net

I read a few months ago that your anti-bodies are still high - or did I mis-read it ? Am wondering if reducing them would help ? It has taken 3 years to get mine down from around the 1000 mark which I can only attribute to healing the gut by going gluten free. Really did not think I had a problem - but hey ? Crohns behaving too

I really wish you many more good days than poorly ones. Oh - sorry how do they diagnose MS ?

Please take good care .....

M x

[yorkshiregirl44 in reply to Marz]

Thanks,

Iv not had my antobodies tested since first diagnosed with hypothroid. My tsh has been high at 100 with a high t3.

Ms was diagnosesd with mri of brain and spine which showed lesions.

[Marz in reply to yorkshiregirl44]

vitamindcouncil.org/tag/mul...

Sorry yorkshiregirl44 - more reading Am sure your B12 will be optimal ? B12 involved in protecting the myelin sheath ....

[Clutter]

Yorkshiregirl44,

I'm very sorry to hear that. I had to Google PPMS and interestingly it appears that Simvastatin may be a treatment option. mssociety.org.uk/what-is-ms...

[yorkshiregirl44 in reply to Clutter]

Hi Clutter,

Im waiting to see ms nurse at the moment to discuss treatment. I beleive with ppms there are no drugs to slow down progression but there could me treatment to help with symptoms.

Thanks

[Coastwalker in reply to yorkshiregirl44]

So sorry to hear Yorkshire Girl.

I agree with Marz about checking your vitamin B12 is optimal, reason being many have been diagnosed MS then later found to be instead B12 deficient.

Keeping your D3 levels optimal is also now known to helps Crohns too. many with Crohns have been found to be low/deficient in their vitamin D blood levels.

Keep as positive as you can Yorkshire Girl.

[Pepekins]

Only a thought and may not be the same for you at all, however about 8 years ago I was diagnosed with ulcerative colitis and after being given lots of different drugs and being 'joined' to the loo for a long time decided to take matters into my own hands. I totally cut out sugar (even cooked carrots were off the menu) cut out dairy except goats produce, (larger molecules apparently) and also bread. I did lose too much weight but along with a few herbs the colitis just went. I am told the same diet also helps people with MS. Don't know if crohns is similar to colitis. However do message me if you wish to know about this diet which is well documented and it worked for me. Very best wishes. p.s. My thyroid gland was removed about 15 years ago and if I had known about this site I would have had so much more info to deal with the aftermath. xx

[Rrl12345 in reply to Pepekins]

sorry to hear everything everyone is going through, thank god for these websites x I have endometriosis and just been diagnosed with proctitis as constant rectal bleeding and lots of other symptoms, feel so lost, I don't want to be on steroids or medication long term and I try and do everything as naturally as I can but diets for endo and uc are conflicting, ie fibre/lentils etc,,,, any advice, help could give would be great, ive mentioned my thyroid so many times to doctors re tiredness, weight gain etc but they just ignore me! thanks everyone