HYPOTHYROID

[lesNewpoo222]

HALLO .I WAS WONDERING IF ANYONE ELS IS SUFFERING LIKE HELL .WITH BLOATING AND SWOLLEN VERY PAINFULL LUMPS I HAVE THEM IN MY ARMS LEGS BACK WITCH I THINK COULD BE EDEMA MY LEGS SWELL UP LIKE HELL WHEN I STAND AND THE PAIN UNBERABLE SPECIALLY MUSSEL AROUND THE KNEE GOING UP THE LEG AND BAD SWELLIN IN SHOULDER AND UPPER ARM .THE DOCTOR SAID ITS MUSSEL I TOLD HIM ITS NOT AS IT DOESNT MOVE .WHEN I MOVE MY ARM .ALL THE MUSSELS AROUND MOVE .BUT THE DOCTOR HAD NO AUNCER AS USUAL.ADDED PHOTO OF LUMPS IN MY KNEES BUT I HAVE THESE ALL OVER MY BODY VERY PAINFULL

[rick45]

Hi,

I have something similar but mine was diagnosed and blocked Arteries ( smoking ),

are your legs bare ( no hairs ), shiny leg skin, calf muscles swell and hurt like f*** after walking a short distance, if they do you need a DOPPLER scan on your Arteries in your legs to check for blocked veins/Arteries, do not leave it as it will only get worse.

Good luck.

[shaws Administrator]

I am sorry you are suffering so much and it isn't right (I believe) for doctors/specialists not to give you a thorough overhaul on your health.

You state in an earlier post that you have been diagnosed with Fibromyalgia and I would ask your GP for a Full Thyroid Function Test. You might be thought of as a 'difficult patient' but I don't wonder when you are left to suffer without a proper diagnosis. If medically trained personnel cannot diagnose with whatever is causing your problems, you've no one else to turn too.

A Full Thyroid Function Test - the doctor should ask for TSH, T4, T3, Free T3 and Free T4, and also vitamin B12, vitamin D, iron, ferritin and folate.

Swelling, before the blood tests were introduced, was a pivotal clinical symptom for doctors to diagnose patients on hypothyroidism.

If I was a betting woman I'd place a bet that you either have been misdiagnosed or not had a full thyroid blood test.

I would print-out part of the following link and ask your doctor is it possible that this is what you are suffering from:-

Excerpt:

Today’s doctors are not taught to examine for thickened skin or other physical manifestations of the illness. Sophisticated thyroid blood tests are purported to be the sole means for making the diagnosis of hypothyroidism. These tests have replaced the patients’ medical histories, complaints, and physical findings upon which the diagnosis was largely based for over half a century before the advent of blood tests.

During the first half of the twentieth century, prior to complete reliance on blood tests to diagnose hypothyroidism, elevated cholesterol was considered one of the hallmarks of hypothyroidism. In 1934, Dr. Hurxthal found cholesterol levels were very closely related to basal metabolic rate. However, since then, research showed there were many hypothyroid people, both young and old, with normal or lower than normal cholesterol levels.

An extremely prevalent symptom of hypothyroidism is a lowering of body temperature. The low temperature is a direct reflection of decreased metabolism. In a 1915 medical journal article, the author, Dr. Eugene Hertoghe, stated, “Hypothermia is an almost invariable accompaniment of even the slighter forms of thyroid insufficiency. Such patients, the younger ones more particularly, complain of chilliness of the hands and feet; they never feel warn, even in bed.” Dr. Ord, the doctor who named the illness in 1877, stated, “The temperature of the body is generally below normal, 97 or 96 degrees Fahrenheit being a common record; and the patients are extremely sensitive to cold.” Hypothyroidism is not the only problem that may lower the patients’ temperature, but it is definitely the most common.

tuberose.com/HypothyroidSym...

nejm.org/doi/full/10.1056/N...

Also if you have a higher cholesterol. Have a low basal temp. These are also clinical symptoms.

healthunlocked.com/thyroidu...

This is just a suggestion and probability - doctors have lost many of the skills which were 'hands on' and now computer print-out has replaced this.

"I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions"

[shaws Administrator in reply to shaws]

This is also a link re Thyroid Hormone Resistance which means some of us have difficulties with thyroid hormones getting into our Receptor Cells. It is self-explanatory.

web.archive.org/web/2010103...

[PushinLimits in reply to shaws]

Hi I am from the USA stumbled across this site seen a lot of posts unanswered and NO I AM NOT A DR just the US is bigger with a lot of heath problems and Well everyone's body is different ...our body's are like car motors or an old house ...remover or add something new can cause problems ... as my and many other elder generation always tell us if it's not broke don't fix it!!!! Anyways what I am tryin to say is could be anything or any reason why ...could be meds not set right or settin off somethin else ... js I have trust issues with Dr's NOT all care ...just as long as they get paid or they can referral you to another Dr for your othere problems or better yet line there pockets with pushing pills on your new problems OR they really don't know and don't want to look like idiots now do they ?!?!? Sorry I try not to sugar coat MY FEELINS ... Like the human body and DNA minds think differently too Any ways thyroid is a huge part of how your body runs ... I keep bein told it's like hormone but funny thing is I pushed myself off my meds over 2 months and if it really has to do with hormones why am I not a mess ...I feel like myself again kinda this is my best of what happens ...I can think my heads not in a fog and I can sleep not normal but at least I am sleepin, pain and blood in urine, heart beat slows, acid reflux, bloatin, smells change, sneeze more, ringin in ears, fat cells bloatin, muscle cramps, slimy music in eyes, bones ache think I got it all ....NOW KEEP IN MIND WE DON'T EAT SAME THINGS NOR LIVE THE SAME SO NOT ALL WILL HAVE SAME EFFECTS SO DON'T FREAK OUT !!!

Hope this helps :/

[shaws Administrator in reply to PushinLimits]

Welcome to our forum and thanks you for your contribution

Some posts remain unanswered when they are just up on the forum due to the fact that it is run by volunteers - none of us are medically qualified - just have had experiences which might help others. It is members helping members.

In the UK we are most fortunate to have a National Health Service which we are very grateful for. As regards treatment and diagnosis for Hypothyroidism, it is a very different matter. Our official guidelines might suit many people who do well on levothyroixine but the members on this forum do not but the doctors rarely allow us to take alternatives like Armour etc. So many are forced to purchase their own and are doing well.

Also, our doctors have been told not to prescribe levothyroxine until the TSH reaches 10 - that's another bone of contention as many have clinical symptoms well before that number - some people never reach 10 but are chronically unwell. They also believe as long as the bloods are 'in range' that's fine and stop meds. Whereas most of us recover when our TSH is 1 or lower or suppressed.

A lot feel better when they stop levothyroxine then improve when they switch to another thyroid hormone replacement but if you've been wrongly diagnosed and taking thyroid hormones that could be the reason you feel bad.

If you are hypothyroid and don't take replacement thyroid hormones (not necessarily levothyroxine) you might feel better initially as it gradually diminishes in our body (one dose of levo takes about six weeks) but eventually we become very unwell and it would put a strain on our hearts and brain in particular as both need optimum hormones for us to function. It is a very slow process to become hypothyroid and may take years for our hormones to gradually diminish and develop severe clinical symptoms.

If we are hypothyroid, it is a very serious condition if it remains untreated/unmedicated - some people if could become comatose.

[forrests123]

There could be many explanations for your problems. Has your doctor referred you on to a dermatologist or rheumatologist? These lumps are not muscle by the looks of them, they are nodules which can be related to certain types of arthritis but should definitely be investigated further.

[SharonW]

I also gave these lumps all over my body and am convinced they are linked with my under active thyroid. Although medicated on Levo for 6 yrs I still get new ones and others have gotten bigger.

The docs I have spoken to say they are fat lumps, I have also had them scanned.

Overall they ache and cause me to wake in the night as it is impossible to not be laying on one or some. They tell me to take pain killers as removing them will leave scars and they will be replaced by new ones.

I have recently been made aware of Dercums disease which rings true with me but is thought of as rare and my Dr had never heard of it.

Seeing different posts on here with others having these lumps, makes me think it is not as rare as the eotld thinks but is under diagnosed, it is another auto immune disease which affects the metabolism of fat.

Google it and I am sure you may agree it ticks all the boxes.

[SharonW]

By the way, sorry for the spelling mistakes, predictive text gets on my nerves

[PushinLimits in reply to SharonW]

Lol ... watch my spellin :/

[PushinLimits]

Sharon ....So your lynode been tested? Are they neck ...arm pit and inner thigh area ?

[PushinLimits]

Also .... How much salt do you use on a daily try to cut it down drink a little bit more water see what happens .. a lot if times are lil fat sacks like to just throw there own party's .... WATER IS YOUR BEST FRIEND

[SharonW]

Hi, not really sure what lynode is? Probably should, sorry. Of its my lumps they are all over. Forearms, thighs, ribs, stomach, back, biceps area and hips.

Yr right though, I definately need to drink more water. Some days I take a bottle to work but bring it home full as I forget to drink when busy.

I don't add salt to any food or when cooking so only have what would be in my food already,

I'll work on the water as would probably help me feel better overall anyway.