I am sorry you are suffering so much and it isn't right (I believe) for doctors/specialists not to give you a thorough overhaul on your health.
You state in an earlier post that you have been diagnosed with Fibromyalgia and I would ask your GP for a Full Thyroid Function Test. You might be thought of as a 'difficult patient' but I don't wonder when you are left to suffer without a proper diagnosis. If medically trained personnel cannot diagnose with whatever is causing your problems, you've no one else to turn too.
A Full Thyroid Function Test - the doctor should ask for TSH, T4, T3, Free T3 and Free T4, and also vitamin B12, vitamin D, iron, ferritin and folate.
Swelling, before the blood tests were introduced, was a pivotal clinical symptom for doctors to diagnose patients on hypothyroidism.
If I was a betting woman I'd place a bet that you either have been misdiagnosed or not had a full thyroid blood test.
I would print-out part of the following link and ask your doctor is it possible that this is what you are suffering from:-
Today’s doctors are not taught to examine for thickened skin or other physical manifestations of the illness. Sophisticated thyroid blood tests are purported to be the sole means for making the diagnosis of hypothyroidism. These tests have replaced the patients’ medical histories, complaints, and physical findings upon which the diagnosis was largely based for over half a century before the advent of blood tests.
During the first half of the twentieth century, prior to complete reliance on blood tests to diagnose hypothyroidism, elevated cholesterol was considered one of the hallmarks of hypothyroidism. In 1934, Dr. Hurxthal found cholesterol levels were very closely related to basal metabolic rate. However, since then, research showed there were many hypothyroid people, both young and old, with normal or lower than normal cholesterol levels.
An extremely prevalent symptom of hypothyroidism is a lowering of body temperature. The low temperature is a direct reflection of decreased metabolism. In a 1915 medical journal article, the author, Dr. Eugene Hertoghe, stated, “Hypothermia is an almost invariable accompaniment of even the slighter forms of thyroid insufficiency. Such patients, the younger ones more particularly, complain of chilliness of the hands and feet; they never feel warn, even in bed.” Dr. Ord, the doctor who named the illness in 1877, stated, “The temperature of the body is generally below normal, 97 or 96 degrees Fahrenheit being a common record; and the patients are extremely sensitive to cold.” Hypothyroidism is not the only problem that may lower the patients’ temperature, but it is definitely the most common.
Also if you have a higher cholesterol. Have a low basal temp. These are also clinical symptoms.
This is just a suggestion and probability - doctors have lost many of the skills which were 'hands on' and now computer print-out has replaced this.
"I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions"