I was diagnosed with a multi nodular goitre in June 2003 by scan. At the time I was followed up 6 months later and told I had 'an open' appointment but that my goitre was multi nodular and contained cysts. Nothing more was made of it at my GP's or when I had my son in 2007. The Consultant did say that I was 'unlikely to get away without a thyroidectomy because of my age' (mid 30's then). Over time my goitre has got slowly bigger and is clearly visible, but causes me no problems. Also no one made anything of my multi nodular goitre while pregnant etc.
However I am now distraught to learn that up to 17% of multi nodular goitres contain malignancies and this was never ever said to me. If it had have been I would have gone for checks. I am now not sleeping, very tearful and depressed worrying that after all this time my goitre may be cancerous. I am confused as on the British Thyroid website it says cancer in multi nodular goitres is 'rare' yet up to 17% of cases does not seem an insignificant risk. Yet at the time my goitre was never biopsied. I am now wondering if this was negligent care as medical papers refer to FNA as the gold standard of nodule assessment.
Has anybody else on the Forum been left unfollowed up following diagnosis of multi nodular goitre and is the reported cancer risk real? I am terrified of going for a check up now in case they will find something untreatable and it's too late.
I also suffer with extreme health anxiety and would find it very difficult to go through with a thyroidectomy in case I was in that small % that it went wrong on as I have a husband and young son to consider.
I hope there are people out on the forum who can help me as I am extremely frightened.