Hi
Im Mandy and recently been diagnosed with a thyroid that hasnt worked for a long time.
The doctor has me on 100....im also taking
1,200 mgs of gabapentin 3 times a day
200 mgs of amatriptayline each night for bad cord compression.
I take my thyroxine every morning 1 hour before food without fail.
Today,however i forgot...and ive been feeling weak,dizzy and tired. As soon as i got home i took it....i felt really weird.
Is this normal and can your body react that quick if you miss taking it.
I am pretty sensitive to missing T4 or taking a bit more.
It is a goodish sign if you miss it that quickly because your system is certainly not over loaded with T4, which can cause problems. I wonder whether you would do even better on 125 T4 ?
Worth getting your blood results from the gp to see where your FT4 lies and the TSH.
Thankyou for replying.
I was thinking wether to go back and see my Gp.
He said he didnt think i needed to have another test till June.
As soon as we returned home i took my tablet... but ive not felt right all day.
How long have you been taking the T4 ? It can take quite a while to get fully balanced on any of the thyroid hormones. The thyroid will affect all the other hormones, so if you do miss a dose it can upset other areas, especially if you are new to using it all.
I would try taking the T4 at bedtime and see how that works out. I find it works much better, plus i never forget to take it. It also mimics more naturally what our bodies do when making hormones. We make the thyroid hormone when we go to sleep. So providing it at bedtime is actually what the body tries to do for itself, but with hypoT patients we obviously make much less.
Ok so you are new to it. Do you have recent blood results saying where your levels are on 100 T4 ?
Are you loosing hair since the T4 ?
Weight and hair loss are symptoms of an under active thyroid. You can still have these problems even on T4. Lots of people can find it hard to use the T4. It is not really the fault of the drug, just issues with individuals. e.g., if you have a lot of oestrogen this can stop the thyroid hormones being used. If you have low iron this also stops the hormone from being used. There are quite a few reasons why the thyroid hormones are not being used by the body.
It is much more complicated than the docs have us believe and so the best way to get better is to read about the subject and sort of become your own doc. It really is the best way and it is not that complex.
My last blood work he said was good
My hair was falling out before the medication.... Im usually not thin,but not bulky as i put it
I cannot tolerate heat either now.
I was having unconscious fits before the tablets... Ive not had one since, however,today i felt weird...like i did before going into a uncious episode.
Mandy - do you mind me asking about your unconscious fits? When did they happen? How long did they last and what, if anything did your Dr say they might be caused by?
They just started happening....i was sat watching tv....the next thing i know is my fiance frantically trying to bring me round,my eyes were wide open,just staring.
This happened 5 times, my doctors don't know what it was,but....i was diagnosed with Hypothyroidic after the last unconscious episode.
Since being on the levothyrixine, twice its tryed to occur but my partner has seen it coming and talks me out if it.
Hello Mandy,
Welcome to our forum and sorry to hear that you are feeling unwell.
Levothyroxine takes up to 6 weeks to initially saturate the body which will only tolerate small increases at any one time. Your doctor should retest your thyroid hormone levels after 6 weeks and adjust the dose according to results.
Leave 24 hours between last dose of Levothyroxine and blood draw and have the blood drawn early in the morning whilst fasting (water only) as this is when TSH is highest.
If you ever forget your pill just take as soon as possible. Levothyroxine has a long half life which means it takes a long time to be (wholly) felt in the body and equally a long time to leave it. The important thing to remember is to take your pill on an empty stomach with a glass of water, 1 hour before food, 2 hours before supplements and 4 hours before calcium, iron or vit D supplements.
Depending on how long your hypothyroidism has remained undiagnosed, your symptoms may continue for a while, but you should start to see an improvement once you are wholly medicated. The goal of Levothyroxine is to restore the patient to euthyroid status and for most people that means TSH just above or below 1.0. Symptoms can lag behind good biochemistry by 6-8 weeks.
People with thyroid issues often have vitamin deficiencies and it is recommended that you ask your doctor to test Vit B12, vit D, folate and ferritin as optimum levels are required to ensure thyroid meds are absorbed.
If you post any future blood test results complete with ranges (numbers in brackets) members will comment.
I hope you feel better soon.
Flower
Hypothyroidism
thyroiduk.org.uk/tuk/about_...
This following link explains the importance of vitamins and where they may be obtained. This forum is supported by the charity ThyroidUK. You do not have to join the charity to benefit from this forum but by doing so you will be supporting the charity and also entitled to various discounts when buying supplements, as detailed in the link below.
thyroiduk.org.uk/tuk/treatm...
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Disclaimer: I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.
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Thankyou very much.
It seems it hasnt been working for quite a long time.
My Gp doesnt show or give me the ranges of the results.
I think im gonna have to go back and see him.
As of tonight,im going to take it at night....before bed.
Mandy,
You are legally entitled to your thyroid hormone blood test results an the ranges. Ask your surgery to print you off a copy. Some surgery require permission from the doctor before giving them to you. Some charge a nominal fee for paper & ink.
You can take your Levothyroxine when you like as long as it is away from foods & sups as detailed above.
I take mine when I wake in the morning because I have an empty stomach and am more likely to remember. Some members have found it suits them better to take before bed.
Flower
Accessing your medical records
thyroiduk.org.uk/tuk/NHS_In...
You have a right to see your medical records under the Data Protection Act 1998. Guidance on The Data Protection Act 1998 can be found at:
ico.org.uk/for-the-public/p...
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Disclaimer: I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.
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Hi Mandy,
I note that you are taking amitriptyline. I was on this drug prior to my hypothyroid diagnosis for "depression" because I went a bit scatty on citalopram (hardly surprising since I wasn't technically depressed) it also helped my insomnia and go to sleep. Both symptoms that we now know was my knackered thyroid 
Anyhoo, the amitriptyline is notorious for causing weight gain (as well as being hypo). I was the size of a bus back in 2013 and it is a very long and patient road to sort out the weight and excess podge but I'm getting there!
Just thought I would warn you even though I do understand that ami is great for chronic pain conditions.
Bloodyhell...i didn't know that..
Its not helping the pain,so they are reducing me and removing it.
Im on enough gabapentin to knock out a bull....but it dont help.....
why is your cord compressed?
Hi Flo.
Sorry to hear of the cruelty you suffered no man has the right to hit a woman ( only a bully/ coward) hope you feeling well now ,have nice weekend
Peggy💐
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