Hashimotos

[Mouldyoledoll]

Can you have bad palps, SEVERE anxiety, tremors, heavy muscle ache and confusion when NOT in hyper stage?

[Clutter]

Cazstuk1, I think you can. You can certainly feel hyper and hypo with Hashimoto's without FT3 being elevated.

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I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

[puncturedbicycle]

Yes, worst anxiety I've ever had was when I was hypo, and after treatment when I was reducing levo in preparation to try t3. Absolutely crippling, trembling anxiety for no reason. My unscientific theory is that it is something to do with t3 dropping. Also have palps when hypo but can be quite well-medicated (tests saying I'm on too high a dose) and no palps, no high pulse.

[faith63 in reply to puncturedbicycle]

and they say it is not worthy of disability coverage!

[puncturedbicycle in reply to puncturedbicycle]

I went to bed thinking about this last night. When 'hyper' (ie t3 over range) I have either had no symptoms or some mild symptoms like loose bowels, feeling warm (never especially sweaty or uncomfortable though) and sadly, feeling energetic in a way I don't when my levels are normal.

The most prominent symptom of my meds being too high was an inability to contain any angry/negative emotions. No physical aggression or anything serious, just finding it hard to hold my tongue if I had some negative thoughts, so I said some things that might have been a bit hurtful which I would have softened had I not been feeling so hair-trigger. Otherwise I felt really well. No palps, no anxiety.

[Hidden in reply to puncturedbicycle]

Thank you for that post. I had an abnormal test result recently. I had diarrhoea, trembling, anxiety etc but the worst thing for me personally is the aggression and very dark thoughts and emotions. This has been a huge problem over the years, mainly to myself as I stop going out and socialising. I never become physically aggressive now (I did when I went undiagnosed from age 19 ish to in my 30's nothing too horrendous but very distressing) but the guilt I suffer for negative and argumentative behaviour is awful. I seem to feel like this when hypo or hyper. Few people mention angry feelings and I tend to think I am just some sort of evil person. I am sorry you experience similar reactions but I now have hope it is not all my fault so thank you.

I lowered my dose for a day or two a while ago and today I feel calm and much happier, a totally different person.

No Dr ever asks me how I feel they just hand over the test results and will not discuss it.............I don't bother to try and explain how it affects me anymore.....except on here amongst fellow sufferers of course.

[puncturedbicycle in reply to Hidden]

Oh bless you, the worst thing is when your hypo and hyper symptoms are the same. I have that problem, the difference is so subtle I often wonder where I am with my meds. It can make you feel bonkers.

There is a v well-known link between elevated t3 and aggression. I read a study which found that a high percentage of violent prisoners had elevated t3 levels. (I googled it just now and couldn't find it but maybe you'll have better luck.) Which isn't to say we will all be violent if our levels are high! But there is a correlation. So it isn't just you and you aren't a bad person.

When I'm hypo I feel quite numb, not dissimilar to how I felt when I suffered prolonged episodes of depression in my youth. I find it hard to feel loving feelings for example. I feel like a snake, v cold and unmoved. When I feel a blossoming of warmth toward my partner (who is a wonderful, warm, loving person who doesn't deserve to live with a snake!) I know my thyroid situation must be going okay.

I felt much better when I adjusted my expectations of my gp. I kind of imagine my gp is a robot. Otherwise their reluctance to take you and your feelings - you as a whole person - into consideration can be desperately hurtful and it made me want to avoid them altogether. Can you try to imagine them as a robot? Or a technician? I come here for warm, empathic support and helpful information.

The good news is that you've adjusted your meds and feel better. So you must have some kind of sense of when your dose isn't right, and what you can do about it, which is great. xx

[Hidden in reply to puncturedbicycle]

Cheers for that, you describe how I feel too often, exactly like your brilliant snake analogy. My partner of 30+ years is also a wonderful bloke and so supportive. You are right; I do have a sense of when things are wrong and can adjust my dose for a while, I know I am lucky compared to many poor souls on here. Just found out my t3 has been raised recently and obviously explains my negative, aggressive attitude....especially if I have a drink. I drink very little to avoid making things worse.

With regard to many Doctors. I know they are really busy and just try to get in and out as fast as possible.

Thank you, your post made me feel it is not just me and therefore.......a lot better. You are obviously a lovely person.xx

[faith63]

yes..read this!

hypothyroidmom.com/300-hypo...

and google mary shoman too.

[Needhelp1]

Yes you can I have been hypo for 6 yrs ,or maybe 26 lol ....it does all of the above and then some .......I have almost died because the meds would not digest properly get gallbladder checked and go on the white 50 mcg sythroid if u take 75 say take one and a half ect ect .....there dye free it helps a lot I went to Ucla for help Just so you no I am not a doctor or giving dr advice personal experience only ........try to stay away from alot of salt broccoli soy products it can get better in time I wish someone could of helped me I wish to help anyone I can it is a horrible disease not to be taken lightly God bless🙏🏻

[Mouldyoledoll]

I'm not on any medication

[Jaybrooke in reply to Mouldyoledoll]

After a flu type virus lasted for weeks I suddenly felt I had been hit by a truck , lost my appetite completely suffered thudding heart , palpitations inner tremors, anxiety , pins and needles, numbness, foggy brain, lack of concentration pain fatigue , all started on the same day 1995 !! I was on no medication for years ( normal blood tests equals no help ) all symptoms continued until eventually I found a doctor who agreed a trial of thyroxine , within a few weeks most of my symptoms disappeared or eased but the thudding heart , palpitations , inner tremors continued relentless no matter what dose of thyroxine I was taking . I was denied T3 denied NDT (armour) it is only last year that I started self medicating after guidence from this forum ( was given an I pad , wow the info I could get , oldie lol) I opted for thyrogold ( dr John Lowe) amazing !! No palpitations no tremors almost back to normal after nearly twenty years I still get flare ups every so often because of the hashi when I feel unwell for a few days pain and discomfort in throat neck jaw and ear but I can cope with that .

[puncturedbicycle in reply to Mouldyoledoll]

Ahh caz1stuk, hypo on no meds you can deffo feel terrible anxiety. I had depression and anxiety for years before treatment and I believe my tsh was raised (going by what I remember I was told I was 'in the middle' of the range) but not enough for treatment. Any chance you'll be treated? Has someone told you that anxiety only comes from being hyper?

[Mouldyoledoll in reply to puncturedbicycle]

Not long been diagnosed hashis in December, not being treated as in July my TSH was over range, as was FT4 and 3, but its dropping now, and Las test was

TSH 2.40 (0.35-5.50)

FT4 11.8 (10.0-19.8)

FT3 4.7 (3.5-6.5)

The have gradually dropped since July, and Endo said I'm now normal. But I feel hyper if anything, which doesn't make sense since my FT4 is low, and my FT3 isn't really that high is it? So I don't know what I am atm, I'm so so anxious, forgetful, leg and arm pain, losing hair, really bad tremors, no appetite, constipated. I'm supplimenting B12, bit D and selenium, and B complex, but no thyroid meds, tho I've ordered myself some, and waiting for them to come, as Endo wont treat, as she said I'm swinging

[puncturedbicycle in reply to Mouldyoledoll]

You're so symptomatic it seems cruel to leave you untreated but I see where the endo is coming from if you're wobbling from hyper to hypo. Have they done your antibodies? Have you been diagnosed with both Hashi's and Graves'?

[Mouldyoledoll in reply to puncturedbicycle]

My TPOab were raised, but no graves as my TRab were negative, they didn't do TGab.

I don't know what exactly I'm symtomatic with tho, as by bloods I'm neither hyper or hyper, yet I feel more hyper 😩

[Mouldyoledoll in reply to Mouldyoledoll]

The professor who I see on my first visit mentioned having an iodine scan, but the Endo who took over has mentioned nothing about this at all! She said NHS will not treat until my TSH is over 5.5 and stays there, and even then, only if my FT4 falls below range 😩 I'm still waiting for test results for other stuff she tested, had no results,

[Eddie83]

Yes! Hashimoto's and/or T4 intolerance can cause this.