Endo appointment

Hi everyone. I haven't posted for a while as I have been trying to get on with life as best I can while awaiting my appointment with the Endo. The appointment is on Tuesday so I was just wondering if anyone could tell me if there is anything in particular I should say or ask. I am trying not to get my hopes up but am getting to the point where I really need something doing now - I am walking round like a zombie!! My TFTs are all 'normal', with the latest tests from August showing TSH as 3.81 (0.2 - 4.5) and T4 as 10.9 (9.0 - 24.0). The lab refused to do an antibody test but from a private test the result showed a level of 123 with above 23 being positive. I am also diagnosed Coeliac. I would be grateful for any advice. Thank-you

3 Replies

  • Chickenmitch, Positive antibodies (Hashimoto's) mean thyroid function is likely to deteriorate and replacement now will prevent symptoms worsening. Your gluten-free diet may help reduce Hashi flares and antibodies but your thyroid gland won't recover from damage already sustained.

    TSH is already high in range and FT4 low in range. Ask your endo whether you can be trialled Levothyroxine to see whether symptoms improve.

    I hope it goes well on Tuesday.




    I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

  • With results like that its no wonder you do not feel well

    Sure hope any deceht endo agrees and treats you or you will need to join a growing army if self treaters

  • Thanks reallyfedup. Sometimes I wonder if I am just being a hypochondriac and need to pull myself together! I feel I am constantly moaning that I feel ill (although, in reality, I try not to complain too much) and I know there are other people MUCH worse off than me. Other days I just want to cry and sleep (not necessarily in that order) and just want someone to recognise that all is not well and help me feel more 'normal' again.

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