Angeodema

[morena]

Does anyone on here suffer with angeodema? apparently you have an increased risk if you are a thyroid sufferer. Ive had it mildly for a couple of years but it is getting worse, and wondered about other's experiences.

[shaws Administrator]

I've looked at your Profile but there's no info so assume you are hypothyroid.

As hypothyroidism also causes swelling in the tissues I wonder if your angeodema is connected.

ncbi.nlm.nih.gov/pubmed/231...

Would using NDT help your condition (just a guess).

healthunlocked.com/thyroidu....

[morena in reply to shaws]

hi Shaw; thanks for your reply. Yes I am hypothyroid and apparently hypothyroid people are more at risk from this condition. Do you suggest NDT becuase there is something in it that is antiinflammatory or are you just suggesting alternative medication? At the moment I feel very well on levo and I feel Ive had so much else to deal with Im staying with it so as not to upset the applecart sso to speak. (altho there is a part of me that would prefer a more natural drug) It did occur to me that it was the meds but I actually had my first attack before i was diagnosed and so on meds.

[shaws Administrator in reply to morena]

I am glad you are feeling fine on levo. I did suggest NDT as it has T3 in it and it is the Active hormone. If you're converting T4 to sufficient T3 then you are probably o.k.

Are you sure you are at an optimum on levo though? Sometimes some of us need a low or suppressed TSH to feel 'really' well but GPs wont prescribe slightly more as they like the TSH to be 'in range'.

[morena in reply to shaws]

Hello Shaw

thanks - i do feel well.....and i feel able to switch my levo as i see fit; my GP supports this too. She recognises that the most important thing is the way I feel. The times i dont feel well are with the episodes of angeodema which mean I have to take anti histamines (and on one occasion steroids)

[shaws Administrator in reply to morena]

Your doctor sounds excellent in that she allows you to treat yourself as you feel. We need more doctors like her.

I wish you well and hope the angeodema doesn't cause too much of a problem and that it will lessen in the future.

[Qwerty12345]

A year before I was diagnosed with Graves' disease (overactive thyroid) I developed hives and mild angiodoema (lips only). I had daily hives and angiodoema maybe once weekly for around 3 months. Daily antihistamines for a few weeks settled it all. It was put down to an immune system issue and allergies ruled out. A year later I was diagnosed with graves and started on carbimazole. Four weeks in and I became underactive and I also developed hives (but no angiodoema). Doctors thought I may be allergic to carbimazole and my medicine was changed to ptu. The hives stopped but my thyroid levels also started trending towards normal. I believe that the hives could have had more to do with fluctuating hormone levels rather than the carbimazole itself. I will never know but it seems a coincidence to me that a year before my diagnosis I experienced such extensive hives and angiodoema for the first time in my life. All quite interesting.

[morena in reply to Qwerty12345]

Thanks Querty. Its quite severe at the moment and I am looking at my diet in a big way,,,this could also help my thyroid I think. I developed it at about the same time as my thyroid was diagnosed. Apparently it can come and go and I know mine is influenced by stress.....and ironically I dont sleep well and cant seem to shift that but it is my main stress factor......but it did disappear for a while before coming back. Really hope yours has gone for good. Its so debilatating.

[Jowood77]

I have the same problems usually the swelling Is around my left eye around the check bone, I also get hives

[LindsLondon]

I also suffered from hives when younger and angiodema more recently that landed me in A&E several times. My hives disappeared when I eliminated gluten and dairy from my diet and quit birth control (hormone) as advised by a dermatologist. The angiodema is gone now that I am paleo and being treated for hypothyroidism (on Armour). Sleep is one of the most important parts of dealing with an autoimmune disease. If you are not sleeping, something in your body is not in balance. I recommend reading Sarah Ballantine's book "The Paleo Approach". It will help you understand the hormonal issues that may be impacting you sleep and general wellbeing.

Best wishes,

Lindsey

[morena]

thank you Lindsey. It helps to hear someone who has gone through it. I hve cut out dairy and wheat and am heading towards a more alkaline diet. I am hoping this may impact my sleep also. Ill have a look at the paleo approach.

[Bumley]

I once suffered with Angioedema some 25 years ago. At the time I was not diagnosed Hypothyroid (Hashimoto's, which came much later 5 years ago). I was diagnosed with another Autoimmune disease Reiter's Syndrome (now known as Reactive arthritis). To reduce the inflammation I was given quite large doses of Aspirin and Ibuprofen. I became allergic to aspirin and first started with Hives and then angioedema which was probably just as bad as the pain from the Reiter's Syndrome! Problem was you could not do or take anything to alleviate it. Eventually had anaphylactic shock from the aspirin. Have not even touched aspirin ever since and I become the centre of attention when I go into hospital. Would not wish Angioedema on my worst enemy!

[guysgrams]

I started having some episodes of the swollen lips (also tiny bumps like hives but not itchy) and my eyes swelled up. Never really understood what it was. First big episode was in June when I was coming home from a family reunion, although now that I look back I have had smaller reactions over the past two years. Reaction didn't happen instantaneously but over night that time I believe. Have had a couple of other minor episodes but cannot clearly figure out what set it off to begin with other than maybe mosquito bites. My thyroid medication was off as over the course of the last two years was starting to have all hypo symptoms again after nearly 20 years of feeling pretty good. I have had my dose changed and started trying to get my body back to GOOD. Taking supplements and removed lactose from my diet and am working on gluten. Last test results showed some improvement in my numbers so am thinking if I just get everything aligned again I will be good. Always have the antihistamine around though! I can't believe all the different problems one has to encounter when having thyroid disease.

[Trooke]

I have had angioedema for years and been hospitalised three time. It was initially caused by ramipril but when this was stopped the angioedema remained. I take anti histamines and have have halved my dose of lercanidipine. I take medication for extremely high blood pressure but the doctors are running out of options for effective medication. I also have hypothyroidism and take levothyroxin. I also have diabetes 2