Sounds painful and uncomfortable. Are you. Able to take antihistamine and would / does it help. What about looking for clothing in those new fabrics you get that block sunlight - look in outdoor shops. Get yourself a wide brimmed hat too.
At least if you had something that blocks the sun for when you have to be outside you could wear regular clothes the rest of the time. It's tough but you might have to try and stay out of the sun as much as you can. Have you googled your condition to see what other people who have it have to say?
Despite all these precautions she was in so much pain with the swelling she was in tears unusual for her the only thing I had to give her was ibuprofen but what surprised us was if it was taken every 4 hours it stopped her swelling as much not sure if it was a coincidence as she rarely takes it at home because she sees no point as it rarely helps with her pain I not saying it stopped all swelling but there was a a improvement from beginning of week
Might be worth a try as she said if you had flu you would happly take this for a week
My husband has a severe sun allergy; chronic actinic dermatitis. We have uv filters on all our windows at home and he's pretty much housebound.
From experience, we've discovered that he's worse when most vitamin D deficient and less sensitive when he remembers his supplements!
The best option is to cover up. The darker the material the more UV it blocks and always wear a wider brimmed or legionnaire style hat. Alternatively you can purchase an umbrella with high spf for a reasonable price (note that silvered material on the inside is not advisable as it will concentrate the reflection of the sun's rays directly onto the user).
Don't let it ruin your holiday, If your skin can tolerate sun block, you can protect yourself. Also don't forget to pack plenty of antihistamines.
My son has suffered with this since childhood. A doctor recommended that he begin to take antihistamines two weeks before the holiday and continue for a week after returning home. Use high factor, but non greasy sun lotions, cover up where possible and to have tepid baths and showers twice a day whilst on holiday.
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