Help needed: I have Blood Results/Doctor's appointment tomorrow/Have had hypo for 10 years and no one will treat me.

[pearljamontoast]

I have had my bloods a few months ago and the endo I saw still wouldn't treat me even though my T4 is abnormal. She also didn't listen to me as I have a lot of symptoms that are textbook hypo.

My blood results -

Serum free t4 - 10.8

Serum free triiodothyronine level - 5.2

Serum TSH level - 4.01

I haven't had my antibodies tested for a while but they're normally around the 60 mark.

I felt so upset and disheartened that she wouldn't treat me and honestly I can't believe that I'm having the fight this hard when I feel so awful sometimes.

I'm listing all the 'problems' I have, I am aware that some of them might not be hypo related.

I have a goitre, which is my biggest symptom

Put on weight suddenly at around the same time that I got the goitre

Not going under a size 16 even with rigorous training in Martial Arts

Psoriasis on my scalp that won't go away with treatment

Tingling in my feet and fingers (and yes I take multivitamins)

Hoarse voice

The top of my neck feels sore sometimes

Depression and Anxiety - sometimes even when I'm happy I'll cry for no reason

Tendinitis in my knee

IBS

Get insomnia sometimes and when I'm tired I crash suddenly

Thrush

Enlarged tonsils and a sore throat

Low blood pressure

Mother has hypo

I think that's everything. A friend's mother is a doctor and has a research interest in the thyroid and I told her about my bloods and she wrote a big email saying that if she were my doctor, she would give me thyroid medication and explained why.

I'm having to go to a new doctor I've never been to before but apparently he's really good and listens to his patients. I was going to tell him all of my symptoms and give him the email from my friend's mother but I'm really worried that because of that awful endo, he may have to do what she says.

How should I act during the appointment? What should I do if he doesn't give me medication? What's the next thing I can do?

Thank you. I'm desperate. Just so you know, I live in Brighton, if you know of anyone here or nearby who could help me!

[Hidden]

Hello pearl,

I am sorry to hear of your bad endo experience. A lot of endos won't treat until TSH is over 5.0, even with a lot of symptoms and Hashimotos.

All your symptoms could be down to low thyroid levels. I too had many of these and a hoarse voice before being medicated on Levothyroxine, after which it went away.

Have you had your goitre scanned? Usually an ultrasound scan is performed and then a FNA if further investigation is required.

I was going to say don't tell the new GP about your endo visit but with a goitre, you will probably just be referred back to the endo anyway.

I live in Brighton also and wasn't listened to and eventually sort the help of a private endo in Kent. If you would like his name I can PM you. Otherwise you can email

[e-mail] for a list containing sympathetic doctors/endos that members have had positive experience with.

Flower

[pearljamontoast in reply to Hidden]

Thank you so much Flower - yes please give me the details of the endo in Kent over PM. Thank you again

[Hidden]

Don't worry. Even if he turns out to be unhelpful, you can always self-treat.

[pearljamontoast in reply to Hidden]

Hi there, is self medicating safe/legal? And where do you get it from?

[shaws Administrator in reply to pearljamontoast]

It is legal to import thyroid hormones for your own use. Quite a few members do. If you require any information you have to put a new post and ask for any information to be sent to your by private message.

We cannot post this information on the open forum.