Take an even strain!: Lots of people on this site... - Thyroid UK

Thyroid UK

137,135 members160,809 posts

Take an even strain!

diogenes profile image
diogenesRemembering
4 Replies

Lots of people on this site are told that subnormal TSH is bad for you on thyroid therapy. My wife has had a totally destroyed thyroid for 46 years. She's on T4 only (125,150 alternately) and has never had a detectable TSH in all that time. No osteoporosis, v occasional AF. Last blood test this month gave TSH 0.06, FT4 16.7. TSH subnormal, FT4 in the middle of the range. At 76 she is doing well for her age. Just a note to say that lifelong suppressed TSH needn't be a problem, short term or long.

Written by
diogenes profile image
diogenes
Remembering
To view profiles and participate in discussions please or .
Read more about...
4 Replies
nightingale-56 profile image
nightingale-56

So good to hear this Diogenes. Gives us all hope. Hope your wife continues to do well.

Marz profile image
Marz

Good to hear ! I too have a suppressed TSH which panicked a Doc I saw recently. I tried to explain I am T3 only - but he was not to be moved. He sent me for a bone scan and much to his surprise it was over 90% ! Any heart beat issues have resolved since being on T3 only.....

We have to go by how we feel......

shaws profile image
shawsAdministrator

Thanks for your post and am glad you're wife is doing well.

It is the medical profession that restrict patients from taking a dose of thyroid hormones which make them feel well again. Dr Toft ex of the BTA does say that some need to have a suppressed TSH to feel well but the modern younger Endos now insist that the TSH has to be 'in range' and thus keeping patients unwell.

One even went on to say at a Conference of worldwide Endos that if a patient has complaints about levothyroxine but the TSH is in range that the patient is suffering from a 'Somatization Disorder'.

(p.s. Diogenes - you already know about the above).

galathea profile image
galathea

ncbi.nlm.nih.gov/pubmed/825... Heres the link to a paper which confirms that low tsh levels caused by taking thyroid meds do not lead to osteoporosis.

Xx

You may also like...

Is taking NDT in the evening a bad idea?

Is it dangerous to suddenly stop taking 50mcg of levothyroxin after taking it for 9 years?

twitching. So she then took 50 mcg on alternative days. On the day she did not take Levo she did...

Switching Taking Levo From Morning To Evening

Eye strain

be related to thyroid problems I have had surgery to remove the right side of my thyroid and I am...

Straining at a camel and producing a gnat

in subclinical hyperthyroidism i.e. TSH's < 0.1 unit with normal FT4. No FT3 mentioned or done. I...