Does anyone know of a sympathic nhs /private
endocrinologist in Belfast/Dublin/Ireland ?
I'm on the verge of self medicating with T3 but feel I should have medical support.
Many thanks
Sympathetic endo Belfast : Does anyone know of a... - Thyroid UK
Sympathetic endo Belfast
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Suin
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Hi I'm belfadt also waiting on new blood results before I take the same route but not sure if I should see a specialist first if u ring ulsyet clinic they have some very good endros consultation starts at aprox 200 I rang on Friday can get app next week hop this helps 😁
Suin in reply to
I attend RVH and last week endo registrar felt my results were ok, she agreed to do other bloods, so I'm waiting on results.
I've ordered T3 after reading on here, but I seriously feel like my heads gonna go, with all my symptoms! Esp fatigue sheer exhaustion, never mind the energy it takes to get my brain to function.
I was with prof hadden in rvh now under prof mc cance. I had RAI 20 years ago.
in reply to Suin
I know it's awful people wouldn't beleive hiw bad this is . I've heard of mccance . My doc has never refered me even tho I'm hashi an this has been going on 5 years Realy sick of it just like you all the same symtoms . Would you send me the details of the address to buy t3. . How much did it cost if you don't mind . You will plenty of help from all the others on taking it 😁
Suin in reply to
I mentioned the T3 to the registrar and she point blank said No, we don't prescribe it, and that my symptoms cudb a range of things!
Tho every single 1 is hypo! Clutter sent me the link for T4. It's £16.98 for
in reply to Suin
Ok thanks that's what I'm afraid of incase ive something else going on but thank you again il see what my bloods r tmw but I've been advised that I don't seem to b converting very well . It's not that expensive . My hubby gets low dose naltrexone it cost 19 pounds a month but it helps an that's the most important oh I Realy hope it helps you . I was so floored today I lay on top of the bed with my shoes still on an I couldn't wake 😁. Keep me posted 👍
Suin in reply to
It's no way to be, the years are just passing by.
What happens when is tell the doctor I'm taking t3? Or do u not let on? Nightmare stuff!!
in reply to Suin
I rang my doc on Tuesday an said I want all bloods done including t3 cortisol an he agreed because I just said I can't stick this any longer that I'm going private because I want t3 . Can u perscribe it he replied no I'm sorry I'm just going by my training an ur tsh is bang on . I would just tell your doc because they will need to test t3 an they can if you stick to your guns . Ridiculous carry on 😁
in reply to Suin
Dyin di you have hashimoto . Just wanted to ask if you suffer from pain I am in agony . Also my toungue is scalloped very sore dry eyes an itchy ears but away inside . Next it will be my mind lol
Suin in reply to
No, I'd Graves' disease 20 years ago and then they gave me radioactive iodine treatment, good luck with ur results, I think you'd mentioned them test your costisol, they shud do it early in the morning
in reply to Suin
He supposed to be very good willing to perscribe nhs scripts which is good as its al expensive . Supplements etc il keep u posted . 😁
in reply to Suin
Apparently he writes to your doc an tells everything that needs to be done . He will be thinking why am I getting all these tyroidies ha ha 😁
Suin in reply to
Maybe we should book a bus🚌
in reply to Suin
Ha ha ha you've made me laugh 😁👍
in reply to Suin
Yea my doc is doing my referral I spoke to him on the phone he said he would do it no bother 😁
Suin in reply to
Great, did u ask your own doc first or contact Ulster clinic first?
in reply to Suin
I rang my doc an just said I can't stick this I'm going private I will need a referral then I rang clinic I went today to my surgery got print outs of all bloods from February plus my scan results 😁 I'm sure they say here's this header coming 😁
in reply to Suin
Well hope you got t3 I was happy with Dr au hope you got sorted so strange the both of us being at the same time . I got my script not long home a long day looking for a chemist that had it 😁. Onwards and upwards 💃💃💃
Suin in reply to
🎉🎊🎉🎊👯💃🏻💃🏻all that and more Donna!
Keep in touch, he said even2 weeks will make a difference 😜
in reply to Suin
Oh I'm delighted great stuff defo keep in touch have a fab weekend 😊
Cassandra in reply to
Justbee - happy you got your script - I am just back from my GP - she said I didn't need a referral to Dr Au as my results are 'perfect'. I said I was insisting so I could rule thyroid problems out - I said my husband was kicking up big time - she reluctantly wrote out the letter but I see she has put on it that in her opinion (and that of the other GPs in the practice) that this is not a thyroid problem and she is more or less doing it to keep the peace. I don't know if he will be influenced by her comments or not. I have a fear of T3 but if it doesn't help I suppose I can just stop it.
in reply to Cassandra
Great he won't take her comments under his notice . Good for you 😁👍
Cassandra in reply to
I don't know if he sends a letter to GP or not but she told me to inform him that they would like to be informed of outcome and recommended treatment (if any) that he recommends to me. Roughly what age would you put him at? The reason I ask is because I feel that at 65 years of age my GP is writing me off as a lost case.
in reply to Cassandra
He is very good no time Realy for gp . Hard to say cause he chinese I reckon mabe 40
Great news, imagine having to fight for a private referral 😡
Justbee is right Dr au won't be clouded by gp. I asked him what if my go won't give me the script? He said tell them to ring me! He will pay more attention to your symptoms than paper results. All my results had been in normal range too
Suin
Do you mind me asking how much you were charged for consultation. My private medical will only cover £150 - I can't afford a large bill so am just checking first
Gosh ask away, that's one of the many great things about this forum.
It was £160, for that first appoint,and I'm guess I'll need 3 at least as he mentioned doing bloods at the next one.
I'd asked him can he transfer me to his NHS clinic and he said he would once he'd got me sorted 🌸
My appointment is tomorrow morning - have to travel from Derry so it will be an early start - my insurance will cover most of the first appointment and I am sure he will tell me if he thinks it will not benefit me - at least I will have tried. Do you mind me asking what age you are - just asking because my GP keeps saying things like well what do you expect at your age - I said to her I am 65 - not 85. Difficult at times to keep temper in check after some of the things they say but I am conscious of having to go back.
I'm 49 and for 20 years I've felt like 90!
At 30yrs old I was jealous of my neighbour in her 80's! Don't doubt yourself!! All your symptoms are real! Yes these doctors would have a different outlook if they were dragging themselves about like us. You'll get on great tomorrow. I was so relieved that Dr au believed me that I cried😭the poor man 😰
Hi Suin I realise this is a very old post but I wonder if you still see Dr.Au and if you do would you recommend seeing him?
I am considering making an appointment with him. I am finding it difficult to get a review appointment with my Endocrinologist at the UIC and wondered about trying to see Dr. Au. I take Levothyroxine and Liothyronine T3. Feeling unwell at the minute.
Many thanks
JH
Ellemac in reply to
What's the name of the Dr you saw at the Ulster Clinic does he prescribe T3 is he Endo
in reply to Ellemac
Dr au yea he does seems very good
Ellemac in reply to
Thank you got an appointment for tmro morning. Does he prescribe T3
in reply to Ellemac
Yes he dies an then you take it to your doctor to get it out on an nhs script . Good luck for tmw 🌸
Ellemac in reply to
Thank you 😊
in reply to Ellemac
No trouble 🌸. Got my bill today it is 160 pounds just to let you know
Suin in reply to
Yes me too😂it better work👆🏻
Cassandra in reply to
Went to see Dr Au yesterday - has put me on 10 dosage of T3 daily (taken in halves) along with thyroxine. He didn't ask me to cut dosage of thyroxine although I was expecting it to cut to 75. Said I may have a problem with my GP but if so get him to contact him. Said not many chemists may have T3 so have to get enquiring. How are you getting on so far. Do you know if on second visit your bloods are done there and then to let him know how you are reacting to meds. Please keep in touch and let me know how you are getting on
in reply to Cassandra
Great I'm glad for you I had to stop mine Realy bad seats heart racing etc started again after two days I'm taking 5 mg morn an 5 mg at night but I'm going to ring him tmw as I'm not sure about lowering it
Cassandra in reply to
How long had you been on it before your heart started racing? He told me to make sure I take 5mg in morning along with thyroxine and the other 5mg no later than 1pm. I must confess I am a bit anxious. How long did it take your palpitations to settle down. In one of your posts you said he put you on 20 and then in the other you said 5mg morning and 5mg night. Did you lower the dose yourself
in reply to Cassandra
Yea I lowered myself it was so bad it took about 3 days to calm down . Everybody is different I think 20 was to high for me to sart of with but my recent bloods were high tsh so mabe that's why he give me that dose . I have emailed him so hopefully he will get back today 😁
in reply to Cassandra
It started to race etc 2nd day I'm just taking it slower . I'm only 5 ft an 9 stone so not that big don't know if that makes a difference
in reply to Cassandra
Dr au got in touch ive to up my tyroxine he is very nice just said I will see you as planned so don't worry if you have any Querys you can get in touch with him
Cassandra in reply to
I definitely don't have much understanding of how this works - I would have expected him to reduce your meds if your heart was racing - took my first half of T3 this morning - bit apprehensive but will see how it goes - I thought he had put me on 10 T3 daily but it is 20 T3 divided into 2 doses - GP wrote the prescription no problem but I feel he is waiting for me to have problems with palpitations etc. Do you email Dr Au if you have a problem? I must get his email address in case but he didn't forsee any problems. I don't know if height and weight are taken into consideration but you are only tiny so I would have thought it makes a difference. We can only adjust to see how we get on. Thanks for all your help.
in reply to Cassandra
No bother just see how you go yes I emailed an he got back ASAP . Money talks 😁
Cassandra in reply to
Third day on T3 and so far no palpitations - if all stays on this level for the rest of the week I am going to try going back up to 100 thyroxine again - hopefully things are going well for you - how are you feeling after increasing thyroxine
in reply to Cassandra
Oh that's good start then for you . I am bit better head clearer but lot of muscle pain still going cold then warm but def better than last week . 😊
in reply to Cassandra
He put me on 20 didn't lower tyroxine either yea he said he will do bloods nxt app
Cassandra in reply to
Hi just bee
I came to Portugal on Monday for a week. Both Monday night and last night I woke after 2 hours sleep with horrendous joint pains - hips and legs. I am hoping it's not a reaction to the T3 as I thought this was the answer to my problems. I don't have any palps or racing heart symptoms. I feel so Dow I could sit and cry buckets. Sorry for the moans. How are you managing?
Could it be all the walking and travel? Just a thought? Maybe post a question on this site, lots of administrators have first class advice, I feel for you
in reply to Cassandra
Flip I don't know you have to wait til u get home an ask doc . I don't think it's working for me . I see doc this sat I'm starting to think I've me or adrenal issues but il have to wait also cursed decease 😓
Cassandra in reply to
I hope he is able to get things sorted for you on Saturday. I don't understand a lot about adrenals etc and how these problems are diagnosed. I wonder does he look at the blood results on Saturday during your appointment. It can be so disappointing when things don't work out but don't give up hope as I'm sure not all his cases are straightforward and one size doesn't fit all
I'm not sure how much better we should be, he'd said I'd know a difference in 2 weeks, I'm not bouncing about yet x but it's maybe a slower process 🌸
in reply to Cassandra
Thanks I will stay positive . Try to enjoy your hol 😎
My chemist got T3 in for me 👍🏻
Hi Suin
Just took my first half of the T3 this morning and will take other half at lunch time. Just a little bit anxious because of other reports of heart racing etc but my husband suggested taking only half daily if that happens. I'm not sure if that would help but will try it for a few days and hope that things work out. How are you coping?
Aye that sounds right what ur husbands suggesting and that's what justbee done, if you want you could put up a question on here and lots of ppl will help you 🌸
Hi Suin
Third day on T3 - seem to be doing ok with no palps so far but maybe thats because I am only taking 75 thyroxine - if all stays level I will try increasing back up to 100 thyroxine - how are you getting on?
Hi Suin
I came out to Portugal on Monday for a week. After 2 hours sleep at night I awake with horrendous joint pains - mostly hips and legs. As I don't have palpitations etc I am hoping it's not the T3 causing the pain. I will be most disappointed if it is as I thought this T3 was going to be my life saver. I could just sit here and cry my eyes out at the minute. Sorry for moaning
Ellemac in reply to
My 28 yr old daughter has Hashimotos the best information I got was from the valley thyroid institute Dr Kajiki sign up for his news letter and download his free report.
Free webinar tonight but you must register online via his web site. I don't know much about him but it's the only sensible approach I've found. He also recognises all the other health problems associated with Thyroid and Hashimotos. He feels Hashimotos is an immune problem rather than a thyroid problem and seeks to get to the root of the problem. Gut health plays a big part most people with auto immune problems suffer from gut problems. I have put together a programme for my daughter removing gluten from her diet with supplements designed toheal her gut.
Hi Suin I also attended Prof Hadden but whilst attending his clinic I was never put on any medication. Then in 2001 my thyroid was very overactive and I had RAI in 2002 - worst decision of my life as I have never felt 'normal' since. I ordered T3 from America but like others I am afraid to start it without medical support in case I make my condition worse. All I hear is your results are in the optimum levels.
I've just had a message from someone on here who sees private endo, who prescribes T 3 if needed. Like you I wish I'd never had RAI, they made it sound like it would solve all my probs, I'm hardly able to function, I'd guess most ppl think I'm lazy, Dr Au is the man he has 2 practises I'm gonna look him up, he doesn't look at Ranges 😊
Ulster clinic
I just sent you a pm☺
I'm going to ring tomorrow for an appointment, thanks 😊
Suin when I phoned I was told I needed my gp referral - it's a pity these consultants would not see us without a referral - my GP told me my ranges are spot on and problems are not thyroid related so I'm completely stuck
in reply to Cassandra
Demand a referral I did I said I can't stick this an my doc was a bit dumbfounded but agreed don't take no if u want to pay 😁
Cassandra in reply to
Hi I think like you they will be saying I am nuts as well - can anyone tell me why this T3 or combination T3/T4 is such a no go area and what harm can it do to us - I feel that no endo would prescribe it if it was going to harm a person - do bloods have to be monitored more closely or what. Maybe someone can shed some light on this
in reply to Cassandra
I have read that if your not converting well to t3 that's why we don't feel well it can damage muscles etc also the best way I can describe it is like your car is full of petrol but no key to turn it on 😁
Cassandra in reply to
My problem with making a fuss is because of my results I had done with Blue Horizons:
Free T4 17.99 (12-22)
Free T3 3.85 (3.1 - 6.8)
TSH 1.10 (0.27 - 4.20)
T4 Total 108.8 (64.5 - 142)
I am concerned that consultant tells me results are in good range and sends a letter to my GP telling him so - TOTAL HYPOCHONDRIAC then written on my file.
Can you request that consultant does not contact your own GP?
in reply to Cassandra
Yea I'm sure you can but your t3 is to low 😁
But then will they monitor my bloods knowing I'm self medicating?
Though I might as well not have been monitored for 20 years😳
My daughter saw Dr Lindsay Ulster Clinic he did comprehensive bloods but I must admit it was under pressure. He had already made up his mind she had chronic fatigue and was quite shocked when the bloods came back showing she had Hashimoto's But like most Endos Thyroxin was the only thing on offer no proper understanding of the condition and associated health problems. I have posted info today on webinar tonight Dr Kajiki Valley Thyroid Institute at 8pm you can register on his site. I got more useful information here than from any local Dr or Consultant.
[ Edited by admin to remove extra spaces from the link. ]
Is this recently? Is she on T3 now? I can't get that link to work. I'm sure you were relieved when results came through but v let down by not getting proper treatment 😐
Just go through google if link doesn't work.
I had a very positive consultation with Dr. Au today. Hillsborough Private Clinic
I came away feeling that somebody had actually listened to me and I'm confident he will treat my condition individually without referring to generalised medical statistics.
He prescribed me T3. Unfortunately I have to wait until Monday before the pharmacy can get me it.
Just wondering if you are still attending Dr Au and how you are feeling now - are you still taking T3?
cassandra im hoping to go see him but is he worth it
To be honest I don't know - first 2 appointments were okay - now I feel he rushes me in and out and at my last appointment another lady said she felt the same. However if you want to trial T3 he will prescribe it no problem. I really do not feel any better but everyone is different. Are you wishing to try T3?
I must be in this chat too 🤔 I’m the same as Cassandra, I’m still on T3 through dr Au but I dunno if it has helped really.
If I had it to do again I’d order T3 online get bloods done through some of the online companies and get advice from on here.
It’s £150 each time to see dr Au, you could buy T3 and get bloods done online for far less and get better advice here, 👍🏼
Its knowing how to use it with levo and where to get it. Ive had my bloods done through bh already
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