Common Autoimmune diseases, alopecia & thyroid.

[MuffinSx]

Hi everyone.

I have researched a lot about autoimmune diseases and have a few questions on them. Since reading about them I noticed ALOT of them run in my family. Arthritis, over & underactive, celiac, graves and others I can't think of now. Now I know if you have one u are more than likely to get more. (I'm underactive, 6 years, currently on 125 levo and 12 weeks pregnant) what my question is what ones usually go together? Do any of you have more than one? Is there anything you can do to prevent it? I'm worried I might be showing signs of early alopecia. I count the hair (that I can) that comes out everyday usually between 400-500 per day. I've seen a doc who just says it's my thyroid (fobbed off) anyway I'm getting off subject and would just appreciate any info or experiences with multiple illnesses x

[sbotwright]

Hi, I have Pernicious Anermia which has lead to arthiritis and asthma. I am only 53. Got irreverible nerve damage in my feet and my left leg below the knee. It was 2 years before I got to see a neurologist, had injctions of B12 every 3 months until last year at this time. Now thry have takene blood and said i have too much B12 in my system and won't give me any more. I have been in contact with the PA Society who sY THE INJCTION should not be reduced. I am worried too as I atilk have all the aym ptoms. Hope you get the help you need and good luck with the pregnancy. Sandra

[Treepie in reply to sbotwright]

Too much B12 is a new one !,excess is excreted in urine.

[Treepie]

Suggest you look at the Thyroid UK and Thyroid patient Advocacy sites for information on thyroid and pregnancy. Suspect you may need more T4 if it has not been increased since pregnant but I am no expert.

[Barrister]

I have underactive thyroid, asthma, migraines( although very rarely now) spondyloarthritis and lymphocytic colitis, all auto immune. One of my sons has severe psoriasis, the other suffers from depression and chronic migraines. My mum has anti phospholipid syndrome. So yes, I think these auto immune disorders do run in families.

My hair was falling out badly and got much worse when I was taking MTX which I've stopped. It was falling less once I stopped MTX but still falling enough for my hairdresser to comment. I did lots of research and came up with a mixture of castor oil and coconut oil, massaged into the scalp and believe that it has really helped. Clemmie

[MuffinSx in reply to Barrister]

It's such a scary thing. The front is actually getting a bald patch. I'm only 26 and its devastating. I know once my pregnancy ends my hair will fall out even more which scares me to death! I really hope it isn't anything serious but the way it falls out and the places it's thinning tellse otherwise

[Barrister in reply to MuffinSx]

What are your latest blood test results? It may well be that you need more thyroxine now you are pregnant. And you should talk to your doctor because it is obviously stressing you, which will only make things worse! Certainly try the castor oil mixture, it won't hurt and may help and massaging your scalp should also help stress wise. Clemmie

[MuffinSx in reply to Barrister]

Going to my endo tomorrow they did put my thyroxine upto 125 since being preg. I'll find out my results tomorrow