Hi everyone, I'm new to being hypothyroid! I was diagnosed at the end of May this year with an underactive thyroid and put on a dose of 50mcg of levothyroxine. I felt much worse but reading on here, saw that this was generally common. I also had anti-thyroid antibodies which confirmed the diagnosis. I've kept going with it and had my bloods done again 6 weeks later and was put onto 75mcg. Still felt worse! I'm due my next blood test next week but the doctor said that my bloods were "nearly there" last time, so I should start to feel better, and will most likely be on the long-term dose of 100mcg - 125mcg.
As I write this, I have bruised eyes, I can't sleep, I'm either boiling hot and nauseous or freezing cold with chills (like I can't control my body temperature), I cannot get any restful sleep and I'm suffering from insomnia. I'm so exhausted that a walk from the kitchen to the living room leaves me breathless and struggling to breathe, I feel starved of oxygen. I have constant diarrhea changing to constipation and I bleed when I go to the loo. I slur my speech, get words confused and struggle to remember things. I have horrendous stomach pains and cramps and really intense pain in my hips and lower back. I'm only 23! I'm also having one period every 3 months that lasts for 3 days, compared to when they used to be really heavy and come every 3 weeks, but I don't know if that's relevant. I've also been intensely itching all over my body like an allergic reaction, though I'm not allergic to anything and my partner isn't itching at all either. I'm on 180mg of strong antihistamines to control the itching. I don't lose weight at all, even on the days I have no appetite and barely eat a thing. I'm slightly overweight on my BMI, all gained in the last year.
I've cut out wheat, gluten, dairy, I force myself to do light exercise every day, I eat small portions and drink 3 litres of water a day, and I take nutritionally complete multivitamins - everything the doctors tell you to do to feel better.
I've also been tested for anemia, Crohns, diabetes, lupus, ceoliac disease, you name it - all clear. I was at the doctor's yesterday and he told me he was at a loss and essentially implied I was a hypochondriac and I should just "get on with life". How can I get on with life when I can hardly get out of bed in the morning because I'm so exhausted and in so much pain?! I could honestly bang my head against the wall if I had the strength!
I've done a bit of research on my symptoms and ME/CFS is coming out as a possibility, but I don't know if anyone has similar experiences...should I go and have a discussion with my doctor about the possibility of ME as well as Hashimoto's, or should I just wait for the inevitable 100mcg dose and hope for the best? Does anyone here suffer with hypothyroidism and ME?
My life is an absolute misery at the moment and I'm close to losing my job because of how drastically I've faltered over the last few months, to the point Occupational Health are involved and requesting reports from my doctor.
Does anyone have similar experiences? Does anyone know if it's worth mentioning ME/CFS, as it seems to reflect my symptoms...I'm just desperate to get my life back...
Thank you everyone. Sorry if it's a rant!