Thyroid Storm

Has any one had a thyroid storm, I had one a week or so after having radioactive iodine, this was 6 years ago, I have gone down hill with my heath ever since. I have hashimotos disease, I am still considered over active, my thyroid is completely dead and I am on thyroxin 100mg and T3. I have developed terrible stomach and digestion problems, I was told by a gastro doctor last year that I have radioactive damage to my stomach

My question is, is there anyone who has had radioactive Iodine had on going stomach problems and have chronic M. E symptoms and exhaustion, I also have a fast pulse between 90/110 resting and it gets worst when I try to do anything such has hoovering, cutting the lawn, I feel like my heart is coming out of my chest, pulse rate goes up to 140/160 and on the odd occasion itsbeenmore, I now have a cleaner and someone doing the gardening. I feel like I have been robbed of my life, I have to pace what I do and I have to rest a lot, all my doctors and specialist say there is nothing they can do for me and that I have to learn to live with my limitations, I am trying to do that but I want to know if anyone else has had a thyroid storm, also has anyone had radioactive Iodine problems, such has stomach problems ?


1 Reply

  • Sussie, I'm sorry you are having ongoing health problems. If you post your recent thyroid results with the lab ref ranges (the figures in brackets after the results) in a new question members will advise whether your are optimally medicated.

    I had high dose RAI after thyroidectomy but it hasn't caused me any digestive or stomach issues.

    Many people with Hashimoto's find a gluten-free diet can be helpful in reducing Hashimoto flares and antibodies.

    Low iron can cause palpitations and fatigue, and low vitD, B12 and folate can cause musculoskeletal pain, fatigue and low mood, so it may be worth asking your GP to test ferritin, vitD, B12 and folate.

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