So today has been the day I've been counting towards, hoping to find answers. Met with the endo today to be told all my results came back negative.
So adrenals are apparently fine, coleliacs negative too.
So..I still have no answers 😔
She asked me loads of questions. Which were basically prodding at lifestyle trying to see if it was because of smoking and drinking, and how I felt so trying to work out if I was depressed or not....this then led onto being being "explained" to that sometimes it's around expectations.....
So basically I was being told how the body of someone in there twenties won't feel the same as someone in their thirties etc (forgive me but I don't think 32 is old?!?) and despite what anyone's definition of old is....my symptoms have been going on since I was in my 20's!!
Oh dear lord how patronising
Then moved onto exercise and weight, I basically said I love to exercise when I'm not too tired to do?!?she suggested some people feel better by even losing half a stone, I said I did lose weight however I was too blooming tired from it all?!? I'd rather be a size 14 and less tired than a 12 and too tired to see the world.
However once she moved on from that she did say that guidelines state that when thyroid levels within range that they don't recommend treatment due to heart problems and osteoporosis. She did however say she has looked into research about trialling thyroxine when low/high in range and symptomatic. She said its controversial, but she did say that although it's not recommended, it does benefit some patients.
She said it doesn't necessarily benefit all. She said she would write to my doctor and explain that perhaps a trial for 3 months of 25mg could be considered but would be for me and my doctor to discuss. She said no long than a 3 mth trial and no increases she said 50mg would be the max. She did say if symptoms weren't relived on the dose then she would say to not continue.
Again she said this would be something though that me and my GP would need to discuss as is outside of guidelines and not that what's she can actually recommend (did admit it does help some and she thinks would be worth a trial if doc agrees)
She said normally at least one person a week she sees that walks out without answers and sometimes a trial helps and sometimes it doesn't. (Think she's saying that perhaps I won't find answers)
So basically that's it, back to docs, no answers and no way forward.
Feeling annoyed and feeling like giving up looking for answers now.
I will speaking my doc as I would like a rescan of kidneys and her to check my throat but other than that I'm just deflated.
Sorry for the moan but frustrated isnt the word