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Thyroid Eye Disease Research at the U-M Kellogg Eye Center

shambles profile image
7 Replies

Published on 20 Apr 2015

Thyroid eye disease specialist, Dr. Raymond Douglas, talks about the thyroid eye disease (Graves' eye disease) research at the Kellogg Eye Center.

Largest clinical trial in USA for a biologic intervention for this disease.

Really exciting news on trying to block the receptors IGF-1 and TSH. Again a mention of taking statins to prevent the eye disease.

youtube.com/watch?v=31iUWVK...

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7 Replies
Fruitandnutcase profile image
Fruitandnutcase

It. Is exciting news news isn't it. I found the mention of using statins interesting because when my Graves was at its worst my cholesterol was the lowest it has ever been so looking at my figures then I didn't have high cholesterol and wouldn't (I hope) normally have been a candidate for statins.

shambles profile image
shambles in reply toFruitandnutcase

Yes, I was exactly the same but now post TT my cholesterol levels now sit at 6.6 nmol, so I am 10% over range but after reading Dr Malcolm McKenzie's book 'The Great Cholesterol Con' I refused the statins. I am also aware the statins increase your chance by 1/3 of getting diabetes and my blood sugar is on the rise too. If anything stands out here they are suggesting they are developing a drug that can neutralise the antibodies so they don't attack either thyroid or eyes. For those still with their thyroids this will be a God send.

humanbean profile image
humanbean in reply toshambles

Statins also increase the risk of cataracts.

shambles profile image
shambles in reply tohumanbean

Yes, so it is kind of counterintuitive. Although I suspect the prospect of correcting cataracts is more achievable than correcting aggressive TED.

Lizzy1606 profile image
Lizzy1606

Great news ,I did not have high cholesterol until after my TT for Graves.And my eyes are far worst when i am under medicated.I do not take statins as my argument is that when i am adequately medicated my cholesterol is ok.Thanks for posting.

shambles profile image
shambles in reply toLizzy1606

I'm with you on the statin decision but if it was temporary use to stop the eye disease then I would probably reconsider. In my case my eyes are now a major part of my misery and I would definitely consider the drug they are developing as a trial. I so wish this drug was available post TT and TED :-(

Lizzy1606 profile image
Lizzy1606 in reply toshambles

Me too.

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