Thyroid Eye Disease Research at the U-M Kellogg... - Thyroid UK

Thyroid UK

141,244 members166,489 posts

Thyroid Eye Disease Research at the U-M Kellogg Eye Center

shambles profile image
7 Replies

Published on 20 Apr 2015

Thyroid eye disease specialist, Dr. Raymond Douglas, talks about the thyroid eye disease (Graves' eye disease) research at the Kellogg Eye Center.

Largest clinical trial in USA for a biologic intervention for this disease.

Really exciting news on trying to block the receptors IGF-1 and TSH. Again a mention of taking statins to prevent the eye disease.

youtube.com/watch?v=31iUWVK...

Written by
shambles profile image
shambles
To view profiles and participate in discussions please or .
Read more about...
7 Replies
Fruitandnutcase profile image
Fruitandnutcase

It. Is exciting news news isn't it. I found the mention of using statins interesting because when my Graves was at its worst my cholesterol was the lowest it has ever been so looking at my figures then I didn't have high cholesterol and wouldn't (I hope) normally have been a candidate for statins.

shambles profile image
shambles in reply toFruitandnutcase

Yes, I was exactly the same but now post TT my cholesterol levels now sit at 6.6 nmol, so I am 10% over range but after reading Dr Malcolm McKenzie's book 'The Great Cholesterol Con' I refused the statins. I am also aware the statins increase your chance by 1/3 of getting diabetes and my blood sugar is on the rise too. If anything stands out here they are suggesting they are developing a drug that can neutralise the antibodies so they don't attack either thyroid or eyes. For those still with their thyroids this will be a God send.

humanbean profile image
humanbean in reply toshambles

Statins also increase the risk of cataracts.

shambles profile image
shambles in reply tohumanbean

Yes, so it is kind of counterintuitive. Although I suspect the prospect of correcting cataracts is more achievable than correcting aggressive TED.

Lizzy1606 profile image
Lizzy1606

Great news ,I did not have high cholesterol until after my TT for Graves.And my eyes are far worst when i am under medicated.I do not take statins as my argument is that when i am adequately medicated my cholesterol is ok.Thanks for posting.

shambles profile image
shambles in reply toLizzy1606

I'm with you on the statin decision but if it was temporary use to stop the eye disease then I would probably reconsider. In my case my eyes are now a major part of my misery and I would definitely consider the drug they are developing as a trial. I so wish this drug was available post TT and TED :-(

Lizzy1606 profile image
Lizzy1606 in reply toshambles

Me too.

Not what you're looking for?

You may also like...

Thyroid eye disease?

I heard you could have thyroid eye disease and be hypothyroid. Does anyone have this? Are the...
Runner95 profile image

Thyroid eye disease

Hello everyone, I’ve been told that I may have thyroid eye disease and certainly it seems that I...
Solstice11 profile image

Thyroid eye disease

I think I have thyroid eye disease. I have Graves Disease (over-active Thyroid), and although my T3...

Thyroid eye disease

Hi everyone, I have just joined this forum as my husband has been diagnosed with Graves and Thyroid...
Kari55 profile image

Thyroid Eye Disease

I have Graves Disease and now diagnosed with Thyroid Eye Disease. The consultant has advised me...
AL14 profile image

Moderation team

See all
Jaydee1507 profile image
Jaydee1507Administrator
PurpleNails profile image
PurpleNailsAdministrator
SlowDragon profile image
SlowDragonAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.