Had my visit to endo today, six month follow up to when he refused to prescribe Levo in Nov 2014. It went pretty much as I expected. Levels then were TSH 1.6, FT3 4.2 FT4 12.4 and I had a myriad of hypothyroid symptoms (which I'd had for twoish years), none of which were given any credence when discussing my levels and my general health as a Graves sufferer (I think my thyroid is dying off after treatment on Carbimazole).
I'm self medicating on NDT, three months now, up to 1.5 grains and am starting to feel like my old self again! Heart is great, no more palpitations, BP normal (was high), I can think clearly, I think I'm getting my sense of humour back, I have more energy and more general interest in the world and I just don't feel dead inside, which was how I was feeling in Nov. It's five weeks this week on 1.5 grains so I need a test next week.
Bearing in mind it is the same guy who, when I pointed out I could buy stuff on the internet in Nov, said do, has discharged me from the clinic as I am using unlicensed drugs (GP's can prescribe things like Armour, but it isn't licensed??), and is writing to my GP to inform them on what I am doing. He refused to monitor my progress (I did ask) and warned me of possible side effects, heart problems and osteoporosis. I told him I thought my heart was in much greater danger pre self medication.
The endo put my improvements down to being on thyroxine, which he says is a stimulant, and anyone would feel better taking it, he said he would feel better taking it, and warned me I might run into problems overmedicating. I pointed out that as my levels had been right at the bottom of the ranges, it would be a while until that happened. I bet his levels aren't as low as mine.
I also asked him why I was paying into a system that refused to help me......he thought that was a different argument. Convenient. Ordering private blood tests tomorrow.