Be warned this is a whinge, sorry.
I'm feeling incredibly low, I really shouldn't be. The endo I saw on sat was amazing and is sending me off for more tests on my adrenals, pituitary gland and root causes (EBV, Lyme, adrenal antibodies) I know how lucky I am to get this on the NHS after reading all of your stories but I'm finding it impossible to maintain a positive mental attitude.
I work as a teacher and everyone is starting back after the Easter holidays, I was really hoping I might be well enough to join them. I've had to stop the NAX, Erfa and most of my supplements for 2 weeks that helped me have a better week last week (better but nowhere near normal and functioning)
I'm only on day five and I feel terrible, back in bed all day again. Stumbling around like a drunk if I try to get up and do anything.
I feel scared I'll not be able to sort this and I'll be stuck in this state for life.
I've also been stunned that 2 of my closest friends just haven't been interested in visiting. I'm not able to drive and see them, stuck in the house all day and they've just dropped me! This situation makes you see how much people really care. Luckily I have many others around me who have been amazing and I'm very thankful for that.
This thyroid, endocrine stuff is horrible and those of you who have struggled with being hypo for years without proper treatment amaze me with your bravery. I had cancer 11yrs ago and quite honestly I found that easier to deal with than this!