Am feeling very very low again and need some support from my fellow sufferers.
As hard as I fight I just get knocked back down with more symptoms. My weight (or the lack of it) is now worrying me. I am skin and bone and still finding it difficult to eat enough because of the anxiety and nausea. I make a homemade fruit and veg smoothie every day that I sip on but I don't think I am getting enough carbs. I have avocado every day and also oatcakes but I am still losing at least a pound of weight every day.
I am sick to death of tests, none of them are coming back with anything definitive as to my root cause or anything positive that I can cling on to; I am beginning to think my endo was right "it's all in my head". Have a test to do for Candida, gut parasites and alike which I can't do until Monday because I need to lay off the probiotics for a few days. Even though my last stool test for leaky gut said negative my Functional Medicine Dr still thinks I have it so I am hoping to prove him wrong and then find someone else to try and help me because I am at a total loss now as to how to help myself and just going downhill fast again.
Is there no-one in this country that can help me with my adrenal problem because if I could get on top of the high cortisol and the shitty anxiety and nausea it causes, I would feel able to eat properly and be well on my way to some form of recover, but I can't find any help here. My FMD insists that it's my autoimmune problem that needs to be controlled, calmed down and everything else should settle down after that. I have asked and asked about adrenal support but still no help. Holy Basil didn't work and the PS doesn't seem to help.
Am having a skype appt with him tomorrow evening to go over my 23andme results which shows on the neurotransmitter section that I have many dysfunctional genes ie. high glutamate and very low GABA/Serotonin which kinda explains my current mental health.
The report has also indicated that I would benefit from some progesterone. I sent my GP the report and asked him about it but he hasn't come back to me and I know he will be skeptical at those types of reports. I know for a fact he doesn't really approve of anything I am doing with my FMD; he just thinks he is jumping on the bandwagon of someone who is ill. My response to that was "well you can't help and don't seem to want to try, so what the hell am I supposed to do?" All he does is fill me with beta blockers, diazepam, wanted to shove me in a mental hospital and then on top of that he decided that HRT patches would solve everything; so that's another test I have to do (full sex hormone) to see if I would indeed benefit from some progesterone being post meno
Where the hell am I supposed to go for help? I wish I had the energy to climb on top of Buckingham Palace and cry out for help in the hope that some professional watching me on the news would take pity on me and take me under his wing and help me. I have even thought of doing a begging video on YouTube!
I can't do this alone anymore, I have tried and am still trying but am losing the will to live again. I am also pissed off at the lack of, or should I say NO support around me. My only two friends still have NO comprehension of why I am ill despite my telling them both the same crap over and over.
What the hell has happened to me the last 12 months? I am like a frightened child, mentally unstable, sensitive to light, noise, my bones ache, my vision is blurred, so fatigued, confused, desperate and every other symptom that you can think of I have.
I mean how long does one have to be patient before seeing ANYTHING positive, just a smidge would be nice just to give me a boost...but nothing!!
Why are we all suffering so much and not able to get the help we need? WTF is going on in this world, no-one seems to care anymore. None of us should be suffering the way we are, it's just WRONG!