I was diagnosed Hypothyroid a year ago and my dose of levothyroxine has been titrated over the year. During this time I've definitely had some improvement in that I do not fall asleep in the middle of the afternoon any more, however I have no control over staying awake once I am tired at night. My weight has ballooned by two stones in a year and even when I started a pretty full on exercise regime recently it barely shifted. I lost 5 pounds in the first two weeks then it yo-yoed up and down from that point by two to three pounds for another month but I didn't lose any more.
My main concern though is what is happening to my brain. I always had an excellent memory and vocabulary. These days I forget things in a way I would expect from someone in advanced stages of ageing. I forget whole conversations, I forget what I'm doing and can get confused very very easily. I struggle to find words, sometimes admittedly more complex vocabulary but sometimes just the names o everyday things. I can describe what I mean but the word stays on the edge of my brain. I am also starting to struggle with spelling which is really really upsetting to me as I have never ever had a problem spelling even the most complex and unfamiliar words (took me a minute to think of the word unfamiliar there).
I spoke to my doctor who asked me to share what I had read as she doesn't know anything about t3 replacement and combined t4/t3 ot natural thryoid. I suppose I'm glad she at least is interested enough to want to find out more because (as she says) 'it;s clearly worrying you'. I explained to her that I had late last year increased my own medication as I felt that I still had lots of symptoms and that I had felt better afterwards. However I think she misunderstood and thought I had only just increased it in February o she asked me to come back in two weeks for more tests and she'd request not just TSH but T3 and T4 as well (which confused me as I thought they always got that at my docs but hey-ho).
I had the test last week and have received a letter asking me to come in to see them. I am terrified that they are going to drop my levothyroxine. Although I don't think it's working fully it HAS made a difference and I KNOW I'll get ill exhaustion wise if they make me drop it. Anyway sorry this is such a long post but here are my results for ll tests so far (she said she could only give me TSH).
Range 0.4 - 4.0
12/3/14 - TSH - 9.33
29/5/14 - TSH - 4.14
1/8/14 - TSH - 1.74 - This was the point where my GP said that I was normal and he wouldn't increas me from 50mcg to 75mcg. Because I still felt so bad at this point I increased it myself and informed a different GP at the practice when I went for a different appointment in October - he was happy for me to take 75mcg and changed my prescription for me. I felt really good for a while then symptoms started creeping back so my latest (apart from last week which I don't have the results for) result was:
5/2/15 - TSH - 1.53 - again, the doc says I'm normal but I feel symptoms have come back. I have also been on a higher dose between august and february and it seems not to have altered my TSH at all.
I guess my questions are
If I increased my dose between August and Feb shouldn't that reflect in my TSH if it's effective? (i'm taking more T4 but my TSH hasn't reduced)
Does the fact that it's not changed possibly indicate that I need a higher dose or am not converting T4 to T3 properly?
What do I do if I go in and they say my TSH has dropped so they want to reduce my dose?
And in another illustration of my brain fog - I had another question but cannot for the life of me think of it!
Sorry for a long and rambling post - any help or advice would be appreciated!