Riedels thyroiditis assistance please

[LadyS]

I was diagnosed with riedels in 2013 and had a sub total Thyroidectomy in sept 2013. I now have a growth from my neck to behind my breast bone and due to have a scan and biopsy to look for lymphoma. Has anyone heard of anything like this please?

[shaws Administrator]

Good morning,

I am sorry you are having more health issues. I hadn't heard of your diagnosis before and now know it is rare. This is an excerpt I've read but maybe some member has had the same as you and will respond.

"Some experts have traditionally believed that RT is not primarily a thyroid disease but rather that it is a manifestation of the systemic disorder multifocal fibrosclerosis. Approximately one third of RT cases are associated with clinical findings of multifocal fibrosclerosis at the time of diagnosis. (See Etiology.)

In 1883, Professor Bernhard Riedel first recognized the disease. He published a description of 2 cases in 1896 and of a third case in 1897.[1] Riedel used the term eisenharte struma to describe the stone-hard consistency of the thyroid gland and its fixation to adjacent structures. He noted the presence of chronic inflammation with fibrosis and the absence of malignancy on microscopic examination. Simple wedge resection of the thyroid isthmus was used to alleviate tracheal obstruction and is still the preferred surgical therapy for RT."

emedicine.medscape.com/arti...

I am sorry also that it would appear that you will need more treatment and wish you a speedy recovery.

[LadyS in reply to shaws]

Thanks for your prompt response I really do appreciate it.

All of the searching for more information has lead me to agree with your findings.

I have aent a message to lulu11 as the only other person with RT in the uk but no response so far fingers crossed, I will update results one known and thanks again

[shaws Administrator in reply to LadyS]

It's my pleasure and it must be a worry for you.

[ThyroidThora in reply to shaws]

I'm really sorry that I cannot help because I've never heard of your condition. All I can say is hang iin there and good luck.

TT xx.