Advise please : I started thyroid s on Saturday... - Thyroid UK

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Advise please

les121 profile image
8 Replies

I started thyroid s on Saturday. ... yest and today I've taken 2 grains daily splitting the dose .... today as I stood at the checkout I couldn't remember my pin number! !!!.... I was panicked and eventually remembered it..... at work I also couldn't think of my work extension number to!!!!! Not really feeling anything to speak of other than needing to pee more often. ... is this normal?

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les121 profile image
les121
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8 Replies
humanbean profile image
humanbean

I had severe memory problems when I started taking T3 only. Increasing my dose fixed the problem. You may just need more thyroid-S. If that doesn't help then perhaps you need to add T3 to your thyroid-s or perhaps you might do well on T3 only.

Jazzw profile image
Jazzw

Think you were previously on 150mcg Levo? 2 grains is roughly the equivalent of 200mcg of Levo.

I think 2 grains might be a little too much too soon, but others will definitely chip in with what they think.

PinkNinja profile image
PinkNinja in reply toJazzw

Unfortunately the conversion charts are extremely inaccurate. I was on 125mcg levo but needed 4.5 grains NDT. This is very common. I can't remember the reasons why but it is explained somewhere on the Stop the Thyroid Madness website.

Of course everyone is different and some will be well on 2 grains where others will need as much as 6 grains.

2 grains may contain too much t3 in the early days for some people though.

Carolyn x

faith63 profile image
faith63 in reply toJazzw

You just can't do equivalencies, when, for example, some people don't convert t4 to t3 well, so t4, is like nothing to them, making them worse.

Flatfred profile image
Flatfred

Definitely too much for a starting dose. I made that mistake! You really need to increase much more slowly. Start on 1/2 a grain and increase by 1/4 grain every 10 days. Keep going until you feel it's a little too much then cut back to to where you felt ok.

I'm now on 2.5 grains and it's the best I've felt in more years than I can remember!

Unfortunately it is always likely that one is going to experience some odd effects when changing meds and/or doses. As a comfort blanket in the short term you might have a little cheat sheet hidden away somewhere with essential numbers etc on it? Of course, then you have to remember where you put it ... :-)

shaws profile image
shawsAdministrator

What dose of levothyroxine were your taking as 2 grains of NDT is equal to approx 200mcg levo. I just wonder if you are taking the equivalent. NDT needn't be split and you can take one daily dose. If you are taking a bit too much, you may need to reduce slightly to approx equal to levo.

scotty1969 profile image
scotty1969

I get that thing with not remembering numbers especially when put on the spot.

PIN numbers, phone and to my embarrassment birth dates. Even my own kids.

I tend to write them down if I need to pick up a script or something where they ask me their date of birth.

Seems to be most common if I don't expect being asked. My mind just goes blank.

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