TSH has shot up

I was diagnosed with hypothyroid 3 months ago, all I was told was my TSH was 13.2. Was given 25mcg of levothyroxine, he said he woul retest but expected he would need to up the dose until I was within normal range. 6 weeks later i was re tested and my TSH went down to 0.3, I was quite surprised as he had said he though it was going to take time. The doctors recommended keeping me on this dose, I have been tested this week and my TSH IS 12.0. I have no idea what us going on but he has asked me to make an appointment to see him. Any help would be appreciated!

5 Replies

  • Welcome to the forum, Kat-Smith81.

    I find it incredible that 25mcg would reduce your TSH so much, it's such a low dose and usually not at all helpful. I wonder whether the test was inaccurate when it showed TSH 0.3. Your recent result TSH 12.0 from your original TSH 13.2 seems more likely. I would guess that he will increase your dose to 50mcg and increase dose every 6/8 weeks until your TSH is around 1.0.

    Ask him to test thyroid peroxidase and thyroglobulin antibodies to confirm or rule out autoimmune thyroid disease (Hashimoto's). Hashimoto's can swing you through hypo and hyper symptoms but it doesn't normally show abnormal blood results in quite the way yours fluctuated.

    Make sure you take Levothyroxine with a full glass of water on an empty stomach, one hour before, or two hours after food and drink, two hours away from other medication and supplements and four hours away from calcium, iron, vitamin D and oestrogen.


  • Thank you so much, was thinking the test must have been wrong, suppose it happens from time to time! X

  • Can I also add, have the blood test as early as possible in the morning and don't take thyroxine until after your test. This will give a more accurate result.

  • I have had all of them at the same time before work, but had taken meds, tanks for that advice x

  • The best GP,s always take time with the Levo dose because it can have such hyper effects on your body. I was on 25mcg to begin with but in spates of 6 weeks had new blood tests and the dose went up to 50mcg then 75mcg, 100mcg At this point I felt really good and was quite surprised that they were still finding inflammation in my bloods, but now on 125mcg which is the correct dose for me, my GP says he has balanced the bloods out and I feel great. No more aches and pains.

    Good GP,s are worth their weight in gold.

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