I am waiting to go into UCLH Autonomic Unit for tests for auto-immune & connective tissue disorder tests, waiting, waiting...
I was 'diagnosed eventually' several years ago with Dysautonomia, but new symptoms emerged a year ago, and it took until this July for appointment after to-ing & fro-ing with useless GP. I seem to have a lot of symptoms that fit both types of thyroidism, is it possible to have an intermittent problem with the thyroid, sometimes hypo sometimes hyper? It feels very lumpy and enlarged, front of neck looks bigger but not typical goitre 'style' seen in images. GP only did TSH which was 0.94; previous GP did TSH few years ago and it was 2.46, none of them seem to do T3/4 & follow up tests to confirm! I tick so many of the symptoms on Thyroid UK 'lists' wonder if it has been Thyroid all along & not Dysautonomia!
Thank you for reading and any advice/support