Thyroid endocrinologist essex

[007007]

I am looking for an endocrinologist or a thyroid consultant specialist.

I was trying to track my consultant surgeon, and have but he is on long term sick leave.

He was A1 brilliant and wrote books on the subject. I am not sure how long he is on leave his secretary is not at liberty to say.

I am desperate to get seen, someone who specialises in thyroid and all about thyroid function.

I only have half as right side removed in 1999. I have never been on medication, (albeit surgeon said it would be inevitable that I would, my GP have just brushed it off with my tests are normal.

However, since then I am also now b12 deficient and not a in good shape, physically, mentally or emotionally........

I am in essex but willing to travel to see the best

Replies via Private Messages please in line with posting guideline #24, thank you, Clutter.

[shaws Administrator]

If someone has information, please send a private message. If you email [e-mail] she has a list and one may be near you. The person you saw before, do you not think someone in his team may have the same method of treatment?

[Clutter in reply to shaws]

Sorry Shaws, I didn't see your reply before I asked for PM replies.

[shaws Administrator in reply to Clutter]

That's o.k. at first we don't realise there have been a reply till we post ours.

[007007 in reply to shaws]

I have emailed, but haven't got a reply!

[shaws Administrator in reply to 007007]

You will get a reply. It is a small office and cannot do everything instantly.

[Clutter]

007007, email [e-mail] for recommended endos in your area.

If you post your recent thyroid results with the lab ref ranges in a new question members will be happy to advise whether your results are optimal. You can get a printout of your results from your GP receptionist.

Scroll down to Guidelines and Treatment options to read Dr. A. Toft's comments on thyroid levels to Pulse thyroiduk.org.uk/tuk/about_...

[007007]

Thank you

I haven't had any bloods done since October 2013

I feel I am wasting my time.

I had three in the same year.

All the levels were different and they said, oh, normal. Get on with it.

They only do the TSH levels??????

[shaws Administrator in reply to 007007]

Are you in the UK? When we are newly diagnosed we get regular blood tests to Iower our TSH and sometimes when you get 'within range' doctors believe you are on the right level of medication and you have a yearly blood test.

If you have symptoms at any time during this year, you make an appointment to get new blood tests. Do you realise that the thyroid gland is the Master Gland of our bodies which contain billions of cells (our brain contains the most cells) which need thyroid hormone otherwise we cannot function properly.

We have to take control of our own health and not leave it just to the GPs and if they say 'normal' that doesn't mean anything at all until you get a copy of your blood tests each time, for your own records, and so that you can post if you have a query.

Make a new appointment, say that you are unwell and think you may be undermedicated as you have symptoms. Ask for a new blood test for your thyroid gland and ask for a Full Thyroid Function Test (TSH, T4, T3, FT4 and FT3) (they may not do all but ask anyway). Say you know T3 is the active hormone and you want to know if you have sufficient. Also ask for a Vitamin B12, Vitamin D, iron, ferritin and folate and tell the doctor you want to exclude any deficiencies that may also be the cause of your symptoms.

If you are deficient in thyroid hormones you have the possibility of getting other more serious diseases. Deficiencies in Vitamin B12 (hormone) and Vitamin D (hormone) although called vitamins they have a very important function. Deficiencies in B12 for instance can cause Alzeimhers disease.

[007007 in reply to shaws]

I am in Uk

I had half of my thyroid removed, right side, in 1999 in the Uk

I was told by my consultant surgeon (whom wrote books on the subject) I would need medication to help what is left work ok.

I have never haVe had medication.

All my GP says is it's normal, normal, normal, normal

I even had a stand up row with him when the test came back a year or so ago showing I was B12 deficient and needed jabs.

He refused, even though it was there on his desk in black and white.

I then got jabs two months later after a big who ha with him

The last time I had thyroid they said normal, back in October 2013

Then before that May 2013, normal, and January 2013 all normal according to him!!!!

But all levels were different!

He never tested indepth!

I have since contacted my consultant surgeon, but unfortunately he is on long term sick leave, and his secretary cannot recommend any one else with such expertise and thyroid knowledge.

[shaws Administrator in reply to 007007]

We have to be pro-active, I am afraid. You must get a copy of your latest blood test for your thyroid gland and any others, with the ranges and post on a new question. If you haven't had one recently request a new one.

You have to realise 'normal' is meaningless. Many GP's mistake that (my view) it should be used mainly for undiagnosed patients. When you have been diagnosed and given medication, your TSH should be low - not 'normal' but GPs think it's right that as long as the patient is 'within range' job's done.

[007007 in reply to shaws]

I feel like I'm banging head against a wall, going over the same old stuff every day!

I also have a random heart racing PSVT and breathless, my breaths per minute are 18-22 and my carbon dioxide is low.

I've been told it could be connected to thyroid, the condition and B12 but again, we go full circle and two consultants later no thyroid indepth test and back to see the lung/breathing consultant next week as breaths per minute have got more instead of less after three months of lung rehab!!!!!!

I thought I'd just get it all looked into off my own bat at cost to me!

I don't want to go down the route of yet another doctors appointment. To be told no no test or they just send me off for a standard thyroid blood test!

That's what they do every time

[Clutter]

007007, After a blood draw ask for a printout of your thyroid results with the lab ref ranges (the figures in brackets after your results). It helps members interpret if you need advice as to whether you are optimally medicated. GP's idea of 'normal' isn't the same as optimal which we should be looking for.

Click on the orange [Reply tab underneath the post you are responding to and the member will be sent an email alert that you have replied.

[chloe30uk]

does anyone have a list of recommended endocrinologist in Essex as I've had private bloods done and my GP is ignoring them....