Tertiary Hypothyroidism

You hear a lot about Primary and even Secondary hypothyroidism but very little about Tertiary hypothyroidism. Has anyone on here been diagnosed with it or had any Hypothalamic Dysfunction recognised?

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I've not seen anyone post about it, GSP. Is that your diagnosis?

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No I'm clutching at straws really, was really hoping the pituitary scan might show something up but that's come back ok. I've got a few areas that I can investigate further, won't give up just yet.

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Hi Gsp177, I'm having an pituitary mri in a couple of weeks, do you get injected with anything to show the pituitary gland up more? I've had several mri's before so that's not a problem, I just don't want to be injected.

Thanks! X

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Hi, yes I had a couple of images taken without the contrast dye then they took some with the contrast. It was fine, I don't like needles at the best of times but it does help enhance the image. Hope all goes well.

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Thanks for the info! It's not needles as I inject myself, it's what's in them. I'm allergic to iodine and acetic acid sets my bladder pain off. It's any chemicals really. Trouble is they never know about interstitial cystitis and say it will be fine. When I had the synacthen injection for instance I had 1 1/2 weeks of severe bladder pain and spasms. I think I'll ring the department. I've told them I have 2 titanium markers in my right breast and said fine, but before the orthopaedic hospital I went to wouldn't scan me with their new powerful MRI, I had to go to a private clinic they were using for problem patients lol!

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Gadolinium is the stuff they used on me. I did feel peculiar after. Is certainly worth checking. They did ask me questions about kidneys etc and said to drink plenty of fluids to flush it out of my system.

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Thanks for your reply Gsp177, I will look that up. Hopefully it won't cause too many problems. I will go really hydrated, and glug a few litres of water afterwards. Well done surviving all this :-) x

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LOL! (cynical laugh) I don't think doctors give a damn one way or the other unless you find some research scientist endo at a teaching hospital. Even then.....And then you get tortured. I went through the 'triple bolus' test back in 1986. That was bad enough and actually dangerous. Thank you Dr. Google.

If you ever find a logical endo who is mentally organized and has a comprehensive checklist, let me know. The research types have their personal agendas. They want to be famous for something or other. It's sort of like someone with a hammer thinks that everything's a nail. The best diagnostician I ever met was an older GP.

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Thanks for cheering me up haha, I know what you mean. I'm determined to get to the bottom of it, just frustrating the time it takes to get anywhere. If only it was straight forward process.

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Gsp: this is what you need to determine if it's HPA or Pituitary or thyroid: en.wikipedia.org/wiki/Combi...

I survived but my blood sugar went down to 8mg/dl. Today's numbers would be 0.444 mmol/l. I was losing my vision and consciousness and needed an IV dextrose 'push' to keep me from entirely blacking out because there was no way I could have swallowed glucose solution. The test results were abnormal but I don't have a copy. One of the things on my 'to do' list is asking at medical records if they have it.

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I really wouldn't want to go through that. I collapsed after the just an Insulin stress test. No treatment, of course.

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I collapsed after the oral glucose tolerance test - is that the one you're talking about Angel?

When I queried it with the endo he told me that was good as it showed everything was working properly!

This happened ten minutes after I left the hospital - rather a good job I wasn't driving.

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I've heard the insulin stress test can be nasty. I reacted badly to the synacthen test. Logic would say you need to be investigated further, no, that doesn't ever happen :-(

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What tests would you all recommend? I didn't know how bad a reaction you can have with some of these tests. I'm at a stage where I want to get to the bottom of it all. Something's going on but not sure what it is.

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