CFS or Pyroluria?

[Clutter]

Pyroluria is an inability to synthesise and metabolise oxygen from haemoglobin, resulting in an inability hold sufficient zinc, Vitamin B6 or B3 in the body.

getupandgoguru.com/pyroluri...

[LouiseRoberts]

Thanks for posting! xx

[helbell]

And a test for it just in case anyone is wondering. I have been diagnosed with Fibromyalgia after a heap of misdiagnoses now recently diagnosed myxodema. This stuff just goes on and on with a crossover range of similar symprttoms.

smartnutrition.co.uk/health...

[Clutter in reply to helbell]

And everything seems to connect to nutritional problems. Thanks for the link.

[Janee]

Is it something your born with and will always have suffered with it or can it come on later in life

[Clutter in reply to Janee]

There are many signs and symptoms of Pyroluria which can occur at any age but is brought on by stress. There seems to be a familial or genetic component as it is most often seen in females and runs in families. smartnutrition.co.uk/he...

[CarolineC57]

This is really interesting - never heard of it before, but it certainly ticks a few boxes for me in terms of symptoms (and [mis]-diagnosis of CFS). Thanks Clutter!

[gabkad]

Sounds very dire according to this: diagnose-me.com/symptoms-of...

Hereditary.

[Clutter in reply to gabkad]

Testable and fixable though