Started NDT 30mg few days ago, is it possible t... - Thyroid UK

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Started NDT 30mg few days ago, is it possible that I already feel better?

cc120 profile image
17 Replies

Started naturethroid about a week ago, never had any thyroid medication despite having TSH of 7 / 8 for over 7 years. Started on 30mg, then after 4 days, alternated 70mg and 30mg, so on this for a couple of days. And I already feel I have more energy, don't need so much sleep (up to 14 hours a night) and chores that seemed so daunting only a week ago, seem quite manageable now. So is it possible to notice an improvement in such a short space of time?

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cc120
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17 Replies
HarryE profile image
HarryE

Absolutely it is! Within 4 days I managed a day without sleeping for the first time in 3 months, and have never gone backward in the 8 weeks I have been taking it. Great isn't it? :-D

MermaidBlues profile image
MermaidBlues in reply toHarryE

Can we get NDT on prescription in UK. Thanks.

HarryE profile image
HarryE in reply toMermaidBlues

In theory, yes. But it is often difficult. There are full details of how to go about it on the main ThyroidUK website

cc120 profile image
cc120 in reply toMermaidBlues

This link for a list of chemists in UK who supply NDT on prescription:

thyroiduk.org.uk/tuk/treatm...

cc120 profile image
cc120 in reply toHarryE

Hi HarryE, thank you. I wasn't expecting any change/improvement for weeks or even months, so I don't think it's a placebo effect. Can you let me know what you are taking and at what dosage please? And what your TSH was and did you have a more recent test after taking the medication?

HarryE profile image
HarryE in reply tocc120

My TSH was 'only' 3.3 when first tested at Christmas. By early march it was 4, but I was really ill, have been off work for 4 months, just gone back in part time and doing OK. I'm taking Naturethroid too, started on 1/2 grain and worked up to 2 very slowly. I've just had another blood test and TSH is just under range, with free t3 & 4 right at the top. I felt great when I had the blood taken but about 2 days later felt like I'd drunk too much coffee so have knocked it back by 1/4 to see if that's enough.

cc120 profile image
cc120 in reply toHarryE

Thank you HarryE, very helpful. Look forward to such improvements. I started feeling very tired back when my TSH was 4, 8 years ago. Tiredness and foggyy thinking got worse and worse over the years till last year TSH 8, which I didn't know about as receptionist always reported back 'normal'. Was only when insisted on blood test results for last 10 years and posted up results here did I find out how out of whack I was. Self-medicated following advice on here. Though the Naturethroid (100 x 140mg) seems to be working, for financial reasons will be trying Thiroyd from ebay as £50 for 1000 x 60mg inc shipping. Hope to be able to buy before listing disappears. Though won't actually need for weeks/months. Exp 2016 on the listing.

MermaidBlues profile image
MermaidBlues

Thank you very much. I am currently testing to see if I am allergic to lactose. I generally do very little i.e.; lactose free milk and only a little goats or ewes cheese and not cheddar cheese.Maybe the lactose + rubbishy additives are giving me what is now a permanent rash over face and neck red and always there…..aghhhhh-on it goes with the constant tiredness now. Thanks everyone for your support. Invaluable. NDT here I come if I can . I will try it for a month but want to do it through "reputed??" pharmacy rather than through Ebay-just in case…Thank you all.

jeanniex profile image
jeanniex

Hello Can I comment in here to. I have also started NDT and am feeling improvement in all areas. Mental and physical. I'm working up from 1/2 gram and feel positive (although after so long feeling rubbish - it's a bit disconcerting!!). I know it's early days but very promising so far. Wishing you all good health Jeannie x

HarryE profile image
HarryE in reply tojeanniex

I know what you mean Jeannie! I wasn't expecting it to happen so fast :-)

Onwards and upwards x

jeanniex profile image
jeanniex in reply toHarryE

:-))))

cc120 profile image
cc120 in reply tojeanniex

Hi Jeanniex, thank you for your input. How long have you been taking the 30gm?

jeanniex profile image
jeanniex in reply tocc120

Hi cc120 about 10 days I'm going to up by 15gm now! Working up to 60gm

cc120 profile image
cc120 in reply tojeanniex

Thank you jeanniex, my tablets are 130mg so can't get them smaller than 30mg, but going up by 15gm is certainly the best way.

jeanniex profile image
jeanniex in reply tocc120

hi cc120 I have a small pill cuttuer I bought from Bo--ts (in-case i'm not supposed to endorse) it's not perfect but it cuts them - they are tiny little things aren't they? But they seem to be doing the job and that's all that matters :-)

MermaidBlues profile image
MermaidBlues

So Harry, which pharmacy did you order the Naturethroid from please ?Was it UK and will a UK Dr be able to order this for me with my prescription. Thank you so much for any help here.

HarryE profile image
HarryE in reply toMermaidBlues

I bought my own because the NHS refused to treat me at all. But if you can get your GP to prescribe it, just use the link that cc120 posted above.

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