Hello

It's my first time asking anything but in desperation I'm just hoping someone can help. I've been treated for under active thyroid

Approx 7 years. I've increased from 25mcg to 125 which I'm on now. The problem is I just never seem to feel well. I constantly get one UTI after another and one cold/ sore throat after another. I feel achy and just generally run down. I'm so fed up. My colleagues must think I'm some sort of hypochondriac so I try hard not to complain at work. I had a really great GP who would test my FT3 and 4 whenever I asked but even when the results where abnormal he would say they were within the 'parameters' and no need to adjust medication. I'm now wondering whether it's worth having private testing done. I'm particularly interested in the DI02. Has anyone had this? Also, has anyone tried 'desiccated pig' treatment? I'd happily pay if I thought it would work. Thank you in advance! Amanda

9 Replies

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  • Mandy, maybe you are unaware how many millions of people have been on the pig treatment....maybe even a billion since it's been used for probably 100 years. It was edged out by the drug industry who would rather sell you synthetic T4 or thyroxine. I'm glad you are looking at other options. For starters, the Stop the Thyroid Madness website has been bringing about new awareness for many years now about the mismanagement of Hashimoto. The short video also gives an idea of why problems in treating Hashimoto.

    stopthethyroidmadness.com/t...

  • Thank you so much for this! Really, helpful.

  • I think there is a test for it but I found this article recently and thought it had good information:

    nahypothyroidism.org/deiodi...

  • Huge thanks for this. Really interesting.

  • Mandy, keep learning, the more you know, the better you will manage your condition. Best wishes.

  • Welcome to our forum

    First, if you can get a copy of your latest thyroid gland blood test results, with the ranges. If you haven't had one recently ask for a new one to be done, just say you don't feel good and would like to check your thyroid gland status. Ask for a Full Thyroid Function test (they may not do it) but it is TSH, T4, T3, FreeT4 and Free T3. Also ask for Vitamin B12, Vitamin D, iron, ferritin and folate to be done too.

    Once you post these on a new question, if you don't have them to hand members will comment and give advice if they've had the same problems.

    When you get your new blood test, do NOT take your medication before it, take levo afterwards. Make the appointment as early as possible as the TSH is highest then. When you take levo in the morning, don't eat for around 1 hour before breakfast as foods can interfere with the uptake of levo. Also, if you take supplements or other medication they should be taken 4 hours after levo.

  • Many thanks. I'll do as you suggest.

  • manda,,,try not to worry,,,i have an underactive thyroid too....i have days when i have felt dreadful...always ill....always crying always depressed,,,nothing mattered in my life,,wanted to dye sometimes,,,,,but i now take a tablet every morning...its taken a while,,,back and forwards to docs,,,for years,,,then i changed my doctor,,,he gave me all the blood tests available,,,,,and all was ok, i take vit 12 and vitamin b6,,,,he recomended i get out in the fresh air more ,,,,im sure it will be ok,...so take care,

  • Thank you for taking the time to reply. I'm going to try extra vitamins to see if they help. I'm also going to look into seeing of there are any really good endocrinologists out there x

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