Mitochondria regime.....: Hi Is anyone out there... - Thyroid UK

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Mitochondria regime.....

sporty333 profile image
28 Replies

Hi

Is anyone out there doing the mitochondria regime?

Si

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sporty333
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28 Replies

What is it sporty?

sporty333 profile image
sporty333

What's what ? It's a group of supplements to support ones mitochondria deficiencies....

Are you talking about Co Q10 supplements or something more sophisticated

sporty333 profile image
sporty333 in reply to

Yes that supplements, along with a few more lol

How many just googled mitochondria regime and merely found this post!

sporty - it's your invention now.....

OK - give us a clue which supplements? (says me who's been sunbathing - best thing for those little cellular beasties to start working again! IMHO) J :D

sporty333 profile image
sporty333 in reply to

Yeah there's not much info on it is there spare! Lol shame really.

It's Q10, l-carnitite, D-Ribose, B3 1500mg daily, vit and mineral, B12 and Mag injections.....

in reply to sporty333

Sounds a good combo - Isn't Q10 depleted by lots of meds?

B3 is one of my favs at the mo (Niacin after quitting)

Do you get B12 injections with Mg?

sporty333 profile image
sporty333 in reply to

Yes I have just been reading Q10 is depleted by stone things, including medications. The niacin is a high dose though isn't it! Yes I inject myself with mag and B12 daily....

kiltis profile image
kiltis in reply to sporty333

Do you buy the mag injections yourself? I could do with some :-)

sporty333 profile image
sporty333 in reply to kiltis

No my gp supplies the B12 and mag.....with needles ;0)

kiltis profile image
kiltis in reply to sporty333

Your gp is nicer than mine ;-)

GrittyReads profile image
GrittyReads in reply to

Okay, can you suggest some literature on mitochondria and how they are damaged - just generally that is (everybody here seems to be talking outside the realm of specific 'antibody' attacks on them) - and thus stop working. Decades ago I used to teach biology, and then also did some research 6 years ago when mention of my risk of PBC first cropped up, but I came across nothing along these lines. Thanks.

sporty333 profile image
sporty333 in reply to GrittyReads

No I can't I'm afraid. I'm led to believe its due to toxic metals and the like. May be some info on dr Myhills website.....

GrittyReads profile image
GrittyReads in reply to sporty333

Thanks will look on that site. Meanwhile, what are the tests that reveal if mitochondria are performing at well below their usual efficiency? Nothing like these tests were ever suggested when I was told I have antimitochondrial antibodies that may attack my bile ducts and cause PBC. I know that now there is a new kind of scan, that was not around when I was first diagnosed, but nothing to do with measuring the efficiency of the mitochondria.

sporty333 profile image
sporty333 in reply to GrittyReads

Its a blood test and I did mine through dr myhill. If you look on her site the full explanation is there.

GrittyReads profile image
GrittyReads in reply to sporty333

Yes, thanks so much. I've found it now. I'm surprised I have not come across more about this in relation to the fatigue that people with PBC experience. Thanks again, hope your regime works.

sporty333 profile image
sporty333 in reply to GrittyReads

PBC?

helvella profile image
helvellaAdministratorThyroid UK in reply to sporty333

Have a look at my abbreviations and acronyms document:

dl.dropboxusercontent.com/u...

Rod

sporty333 profile image
sporty333 in reply to helvella

Thank you rod :0)

GrittyReads profile image
GrittyReads in reply to sporty333

Primary biliary cirrhosis (nothing to do with drinking!!, cirrhosis just means scarring) - it's another autoimmune condition . Antimitochondrial antibodies attack the mitochondria in the cells of the bile ducts in the liver, gradually destroying the bile ducts, and causing extensive scarring in the process. Eventually the liver can cease functioning, although it is generally a long slow process and most people die of other things, such as old age, before they need a liver transplant, or PBC gets them. There's a PBC site here, on Health Unchecked. I decided to cross check with the Thyroid Group as people with PBC are also at risk of getting other autoimmune conditions, such as Hashimotos: a thyroid condition. I'd recently noticed that my GP has not been checking for the Hashimotos antibody - as I'd assumed he was doing - when I have my annual liver function tests. That's why your comment about mitochondria caught my attention.

sporty333 profile image
sporty333 in reply to GrittyReads

Blimey, we'll I don't think I have that! Lol just plain old fatigue!

GrittyReads profile image
GrittyReads

Sorry, can we go back to the beginning on this? We have mitochondria in almost every cell in the body. My understanding is that only specific conditions involve attacks on mitochondria, and that even within a specific condition (eg PBC) the parts of a mitochondrion that are attacked varies hugely depending on the exact type of anitmitochondrial antibody that is attacking. Can you explain exactly how blanket nutritients can work for all conditions?? Or are you only referring to one specific thyroid-related antomitochonrial attack???

sporty333 profile image
sporty333 in reply to GrittyReads

I'm presuming damage has been done to mine through previous abuse, in the past. In doing so has rendered mine only working at 56% efficiency (following tests) so my recovery rate from "exercise" is somewhat reduced. By taking the supplements it's hoped the mito will recover.....

penny profile image
penny

I have come across mitocondria support when investigating this for a client/friend who has MS. As far as I can recall this was as much to do with diet as supplements.

There is a Dr. in the US who 'cured' her MS by diet, etc., which supported her mitochondria so that her myelin was repaired. My friend tried the diet for about 18 months, and felt better on it, but is was so restrictive he couldn't keep it up. It did not cure his progressive MS.

Search for Dr Terry Wahls and you'll find all the details.

sporty333 profile image
sporty333 in reply to penny

Hi are you talking about the same woman I saw do a Ted Talk recently, I think you are. She does a lot of juicing. Basically the paleo diet.

sue_b profile image
sue_b in reply to penny

Hi Penny, 4 years on and there is a lot more out there from Dr Wahl's. Having checked out her website, watched the Tedx, read about the people she has helped, as well as herself and the research that is in progress, I think the evidence is very impressive.

I'm sorry your friend found the diet restrictive but I guess it depends partly on what sort of things you already eat and therefore how much of a jump it is. The Tedx clip tells you what you need to eat and there is also now a cook book. Basically, if you like your greens, berries and sulfur rich veg, can tolerate liver once a week and grass fed meat plus a bit if seaweed you're eating the nutrient rich diet she used to cure herself. She tells you in the intro to her book that she also meditated and had some physio to keep her body moving initially. A very determined Medical Doctor who advocates that we all eat this way rather than resort to prescription drugs.

I'm super excited to find her work so thank you for your post :-)

penny profile image
penny

I'm not sure, sporty333. It may be. I recall something about no bread, rice, pasta, that sort of thing. The name is Dr Terry Wahls.

It is, of course, difficult to judge results in things like this as one never knows whether the diet was responsible for the reversal of her MS.

sporty333 profile image
sporty333 in reply to penny

Yeah I'm pretty certain it's the paleo diet. It's always the paleo diet these days lol

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