I have had Graves Disease for the past 3 years and have been on Carbimazole for most of that time. I am being constantly hassled by my endo to have RAI which I have constantly refused. They now tell me I am ruining my health by being a bit overactive and taking Carbimazole every day and that I must have my thyroid removed. I have been given an appointment to see a surgeon to have a total thyroidectomy and am very nervous about this as I feel fine at the moment, and have done for quite a while now. Everything I read and hear about having your thyroid removed seems to suggest you will be set on a path of constant health issues which would put me in a much worse state than I'm in at the moment.
Does anyone have any first hand experience here, and does anyone know if being a bit overactive and on Carbimazole is that bad??