My understanding is that coeliac is a life long autoimmune condition. Being gluten free for so long will have allowed your villii to repair ( most cells are completely renewed every 7-ish years). As you will still have the dormant antibodies reintroducing gluten will give them a target and your gut problems will begin all over again.
I'm convinced there is a connection with fibro and levothyroxine. There most definitely was in my case. You may benefit from a referral to an endo. In my case being under the endos inhibits my GP and prevents me building a thyroid treatment relationship with GP.
If the endo is a thyroid specialist and not just a diabetes specialist that would be a different thing altogether.
Hello Lonewarrior, I'm sorry to hear you are feeling rough :-(. I'm new to this site, and I'm also a relatively new Coeliac diagnosed as well (July this year)
As I understand it, any TTG antibodies mean your body is reacting to Gluten, which is coeliacs disease. The biopsy can give various results, I'm guessing yours didn't show damage to Villi but that does not mean you do not have the disease. Please ask to be tested again, but keep eating Gluten products for now otherwise you will likely get a false negative result, your specialist should be following this up. H x
Hi there, and in agreement to APsnotFAB above, Hughes Syndrome Sjogrens and Thryoid Issues often get missed, as the underlying and often not picked up ailment is Antiphopholipid Syndrom/Hughes Syndrome. Please join Hughes Syndrome Foundation forum on this platform, and also stay on this one for your Thyroid issues. Many of us with Hughes are on TUK and vice versa. Also our charity website lists under self help specialists across the UK who understand the condition, this is crucial by the way. NHS and private practitioners listed. hughes-syndrome.org/
The HU forum can be accessed thorugh there or on HU itself. I am gluten free also, although I do not have Coeliac Disease, you can still have pretty serious symptoms with gluten: bmj.com/content/345/bmj.e7982
Professor Hughes was head of Rheumatology at St Thomas's and discovered Hughes Syndrome decades ago, on retirement from the NHS he went of to head the London Lupus Centre at London Bridge. He regularly blogs on Hughes Syndrome Foundation forum, here is a blog that you will find interesting: healthunlocked.com/hughes-s...
Hi Y es, I would definitely see an Endo,but research one yourself and find a really good one. Then ask for a referral. For the Caeliac disease it does not always show,in any test. If you think it may be this, the only good way to find out is to follow the diet ,exactly for 6 weeks, and then see how you feel/are. .Several consultant have published this, my own Endo, from her research had an article in the BMJ last year in November.It ids an autoimmune disease, so you may well have others too.
For the thyroid, basic tests must include TSH, T4 and Free T3 with ranges ( all differ), for a proper diagnosis.
I would be getting Vitamin D checked I thought my bone pain was severe my levels were low started taking Vit D pain left.I would be also checking B12 mutation factor,homocysteine if positive can be cause of clotting,heart disease related.Good luck keep on striving to get answers.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.