I've been on Levothyroxine since January, on such a miniscule dose, it's hardly worth it - I feel absolutely poo and finally convinced the Endo to increase the dose. She did reluctantly 'up' my dose to 100mcg.
On the advice of my mother, I asked to try the branded thyroxine rather than the generic to see if there was any difference. My GP obliged in writing a prescription for Eltroxin.
The pharmacist tells me that there has been a supply problem since May and he is unable to get Eltroxin. Has anyone else had this problem?
He questioned why I wanted Eltroxin specifically since they were 'all the same'. He dismissed my explanation that some people don't get on with the generics citing the 'yellow card system' - ie. there is no evidence of this and anything read on the internet is purely anecdotal with no base in fact!
I left with a prescription for generic levothyroxine but was told that I would not get Eltroxin next time either due to supply problem so I must go back to my GP and have my repeat prescription reverted back to 'levothyroxine' instead of 'Eltroxin' otherwise they wouldn't be able to prescribe me anything.
Oh and my Endo ticked the 'discharged' box at my last visit so I guess I'm on my own now despite no improvement in my symptoms. She says she's done all the tests required and there's nothing more she can do.
I feel lost and ill, disbelieved and frankly my energy levels are so very low - this is the first time I've been able to come here and type for ages.
Does anyone else just feel invisible? How many of us are shut away and suffering unnoticed