Does anyone know of a link between Hashimotos disease and a problem with the hip flexors (aches when getting out of bed/off sofa)?

[Nathalina]

[Fruitandnutcase]

Don't know about Hashis but when I was first diagnosed with Graves my hips were so weak that I found it difficult to do Pilates exercises involving my hips and legs, my hips still wobble a year on and I could barely get up off the ground when I was taking photographs at ground level, I used to have to hold on to things nearby. At first I thought it was because I was carrying too much in my back pack, then as it got worse I realised what the problem was, it was like my muscles were just wasting away. So there must be some sort of link although I don't know exactly what it is or why. Hope that is some help for you.

[Marz]

...yep there seems to be a link between thyroid conditions and muscle weaknesses. Those big muscles around the hips/butt area are the biggest in the body - so when weak can cause havoc....with lower back pains as well as hip. Low T3 can affect muscles including the heart which is also a muscle as we know....

Lying on your back on the floor - bend the knees. Place the right foot/ankle onto the left knee and then gently lower the left knee to the floor and hold ! Hold onto your tummy muscles and return the left knee to centre. Repeat on the other side ! Don't forget to breathe. This will ease out the muscles on the outer hip and lower back and create more strength. Relaxed muscles are healthy muscles. Good luck and hope it helps....oh and yes I do have Hashi's so can sympathise. Doing yoga does help with those aches and pains.

[beaton in reply to Marz]

Thanks for the exercise Marz,woke in the night in agony with sacroiliac pain,I'll just finish my coffee then I'm down on the floor.x

[Marz in reply to beaton]

...you be careful how you go ! Hope not hear the ooh's and aah's over her in Crete. No doubt you can hear mine when I'm doing mine Thanks for the reply - x As two hours have passed since you posted I am hoping you are not still on the floor

[beaton in reply to Marz]

Thanks Marz,:/

[sarahstevenson]

Am finding acupuncture and osteopath helpful for this. Also alternating heat and cold packs. I now have a physio recommended Tens machine which takes the edge off. This often wakes me up! Some gentle Pilates stretches help too.

[Nathalina]

Thanks for responses. Mmm, Now I am thinking its a sign of not enough T3 thyroxine like Marz says, I just checked my last T3 test and it was 3.36 which is near the bottom end of the scale and maybe not right for people hasi's, like when I have TSH levels over 4 and feel really really ill

[Hidden in reply to Nathalina]

My muscles were also effected and weakened by my thyroid condition. I'm now 20 months into treatment. Everything improved once my treatment became optimal. I have worked at trying to keep my well-being stable by using the symptoms list from ThyroidUK along with TSH levels. Muscles aching, restless legs, pain and cramps are early signals to me that my T4/T3 is not optimal. For me, this always improves with optimal treatment by T4. Good luck with finding your optimal.

[Marz in reply to Nathalina]

Am sure that one day Low T3 Syndrome will be a talked about as a recognised condition. It is sometimes mentioned in research reports. As more and more people have gut issues affecting the absorption of B12 et al - then that in turn affects the conversion of T4 into the Active T3. Even in people without thyroid issues - or not on T4 - I have seen results of low T3. In fact I have seen more than 10 results of people seeking advice in understanding results and every one had low T3.

I have been following a stricter eating plan as hubby is away and after two weeks I am noticing a difference with the aches and pains....hope you soon feel better....

[Nathalina in reply to Marz]

Thank you Marz. What are you eating?

[Marz in reply to Nathalina]

Have cut out gluten - was just careful before as I am not aware of a sensitivity. However with Hashi's/Crohns/FM I thought it was time to be more pure ! Listening to some of the people on the Gluten Summit was amazing. Have also just read - Why Isn't my Brain Working ? - by Datis Kharrazian - who also illustrates how wheat is involved in brain inflammation as well as the gut.

When the weather changed here I was also aware of the joints more and a lump appeared on my thumb - worked on the Su-Jok principles with it and some cider vinegar and that settled down ! Time to give up the Nightshades - aubergines, potatoes, tomatoes and peppers.

So its fish in coconut butter for breakfast or Sheeps Yogurt with fruit. Lunch is homemade soups and supper is more soup and lots of veg with chicken or whatever I fancy. Last night it was beetroot I had cooked and did the leaves separately and sprinkled olive oil over them - the Greeks do not waste anything - so they are sold with the leaves....scrummy !

I snack on apples, pears and nuts as I am not 100% pure I have rice cakes topped with tahini or some other tasty morsel ! The pears and plums I bought were so hard - so I poached them with cinnamon - just added some water to the halved fruits.....

Am only drinking the local village wine when I go out to reduce chemicals which I realised were making me ache too...it may be just a fluke as I have only been more vigilant for over two weeks. Am off to the UK early in December when I know it will be more difficult - but if the improvement continues them my resolve will be stronger.

Apologies - I have rambled !

[Nathalina in reply to Marz]

Thanks for the info. I have join pain too and someone recommended that giving meat (and nightshades as you suggest) is a good idea but I am still convinced my body is not getting enough thyroxine and B12...I might find one of those studies and take it with me to the docs.

[Holmeschild in reply to Marz]

Thank you for rambling! Your honesty is so helpful. I have bilateral hip dysplasia as well as Hashi's - I hadn't realised the link to muscle weakness / wasting ....thought I was just getting on! My GP won't test T3 or T4 as I'm in the normal range ...but I'm now further urged on to get some private testing. Thank you.

[Marz in reply to Holmeschild]

....good idea and if you need any help - then do not hesitate to ask....

[Holmeschild in reply to Marz]

I will & thank you.

[Hidden]

Hi, just noticed your post and I felt I had to comment on it.

I had very bad hip pain, mainly in my right hip and it snapped rather painfully whenever I flexed it. Sometimes after much snapping the pain would be a constant deep ache. I went to the GP about it in 2005, was referred for X rays and MRIs galore. I even had corticosteroid shots which weren't exactly painless!

I was diagnosed with various things - bursitis, cartilage tear, rheumatoid arthritis, very bad sprain, sciatica, hip dysplasia and hip socket impingement. You can imagine the amount of stress all of this speculation had put me through for 2 years.

In the end I sought a second opinion from a private osteopath, who didn't come cheap at all - £35 for 1 hour consultation and diagnosed me with joint hypermobility syndrome. I even had to travel a long way to have Pilates and deep tissue manipulation for my spine as they felt my spine wasn't lined up properly. Helped for a while but came back before my next appointment with them.

It wasn't until 5 years later that I was diagnosed with snapping hip syndrome/hip tendonitis on an ultrasound scan, where my iliopsoas tendon was seen to snap on the screen as I could voluntarily reproduce the movement and snapping sound upon flexion and extension.

To cut a long story short I eventually underwent an operation in 2011 to have my hip tendon released and lengthened. You see as time went on each time my tendon snapped it frayed, very much like a thread of cotton - and it snapped simply because it caught on my hip socket. The consultant I spoke to at my follow-up suggested my case was necessary as the tendon was worn away that much and they had to cut so much of it out. Not very nice and I'm sure it's nothing you yourself would go through. It's made a huge difference though and I was so much more mobile afterwards. I was only on crutches for 3 days and not for 14 days - that was how much improvement I'd made!

I once had hip/leg pain so bad it was constant for 3 days. I went to a nurse at a local A and E department and she didn't even have to take my blood for testing - she knew just by looking at me that I had a thyroid disease going by the goitre I had and how pale and tired I looked.

I get terrible hip pain even now no matter what I do. It tends to flare up just before it starts to rain - something about baroreceptors within the muscles?

I hope you get it sorted soon and that you don't end up on boxes of painkillers, courses of corticosteroids or have multiple scans like I did for a few years.

Best wishes and take care

Jo xxx

[Nathalina in reply to Hidden]

Thanks Jo, that sounds terrible! I too have hyper-mobility... I wonder if it's related to Thyroid probs and an early diagnoser. I am pretty sure my hip probs are thyroid related as I was struggling to walk and get off the sofa/out of bed. With 25mg more Levo, I feel better, just left with aching pains after I walk more than a mile. I am heading back to the docs anyway to try get her to fine tune my Levothyroxine. It that doesn't fix it, then I will go down the B12, vit D, supplements and if not maybe push for T3 replacement. Good luck