Is it just me or does everyone else get angry when they read that hypothyroidism is easily controlled by drugs.

[Mia1057]

I am so fed up struggling with Hashimotos that I really wish someone would explain to doctors, our families, employers, everyone how hard and devastating to our lives all these symptoms are.

[Issy]

For many people it is easily and simply treated

[Mia1057 in reply to Issy]

Yes I understand that is the case for about 53% but the other 47% is still a lot of people who are not easily treated

[lola1956]

hello mia, yes i have noticed it too and yes it does annoy me too especially the nhs site, i think, and its only what i have read as i am new to all this myself,its because 53%of people are easily controlled by the drugs given but of course that is of no comfort to the other 47%, like you and me and many others on here that have to jump through hoops to get help to feel well again. It appears to be a fine balancing act and many can take years to get better, its like a massive cover up but really our gps dont understand themselves how the thyroid works and until they start to take all thyroid patients seriously its not going to get any better, i have learned from this site to just ignore all the ignorance and educate ourselves then push and push the establishment to get better

[Mia1057 in reply to lola1956]

Thank you for the support, it's so great to hear other people's point of view

[Totoro in reply to lola1956]

I wrote to the NHS site where it just said that "patients will start to feel better after 3 weeks". I said that doctors often say it will take about a year until a patient feels "back to normal".

I got a reply saying, their answer didn't need changing.

Imagine if you're working and tell your boss you have an underactive thyroid. He/She looks up the NHS site and thinks that their employee will be better soon and if they aren't they're shirking. They have no idea of the length of time it takes to get properly better.

It really annoyed me. I don't mind them saying you start to feel better at around 3 weeks but they need to tell patients that it takes a LOT longer usually to be well again.

[Hidden]

In my opinion doctors bear a HUGE burden of responsibility for making the lives of thyroid sufferers FAR worse than they need to be. They can't get the diagnosis or the treatment right. Unfortunately the population at large doesn't understand that doctors don't always know best. This is a bad combination.

I wish I knew how to tell you how to deal with this situation, but I'm afraid over the 20 years we've been dealing with this we haven't found a satisfactory way of getting people to understand. Many, many people have disappeared from our lives, BUT we have come to the conclusion that their "friendships" were not worth trying to maintain anyway.

Only you know what your life is like, and I do empathise with how you feel. We have found we are stronger and more determined as the years go by because we have to be. Just remind yourself constantly that the fault is theirs, not yours.

Thyroid UK is doing everything possible to change things for the better, and one day the breakthrough will come.

Jane x

[shaws Administrator in reply to Hidden]

Jane, I agree wholeheartedly with you.

[Hidden in reply to shaws]

I agree too x

[Mia1057 in reply to Hidden]

Thank you for this

[Hidden in reply to Hidden]

Well said Jane.

[Hidden in reply to Hidden]

Jane, I agree, a wonderful reply xx

[JLD1]

Thank you Jane, you are a star.

Jan.

x

[Heloise]

I think the problem begins with very little analysis. This doctor points out 22 causes of low thyroid (and some high thyroid) that are mostly ignored by endocrinologists.

youtube.com/watch?v=nZ_CP7l...(Not working as expected?)

[tegz in reply to Heloise]

Brilliant clip! This, from the Wiki site on PVN -so if you have coincident BP, appetite,temperature,sexual (men] or stress coping problems, read on :

"As well as neuroendocrine neurons, the PVN contains interneurons and populations of neurons that project centrally (i.e., to other brain regions). The centrally-projecting neurons include

Parvocellular oxytocin cells, which project mainly to the brainstem and spinal cord and are involved, respectively, in gastric reflexes and penile erection,

Parvocellular vasopressin cells, which project to many points in the hypothalamus and limbic system, as well as to the brainstem and spinal cord (these are involved in blood pressure and temperature regulation), and

Parvocellular CRH neurons, which are thought to be involved in stress-related behaviors."

This info. tallies with Dr D-P stricture to have 6 small meals a day which would regulate blood sugar-and hence serotonin production.

[Heloise in reply to tegz]

I think you're on to something, tegz. For many years I read a bulletin board narrated by a former conventional doctor who lost his license due to his alternative leanings. He recommended the book, The Second Brain. One of the basic prescriptions he recommended did not cost a thing but based on Herbert Benson's theories, the hypothalamus can be the beginning of ill health when overloaded by chronic STRESS. That stress could also be chemical in nature. Our highly refined diets along with antibiotics ruin our gut lining and therefore our immunity. Probiotics and now even fecal transplants are recommended for severe cases. #15 and #21 marks high cortisol as a huge problem.

youtube.com/watch?v=73d9KGY...(Not working as expected?)

youtube.com/watch?v=qYeFh06...(Not working as expected?)

Another huge problem is candida. I've read that cancer starts as a fungal issue and yet doctors will not prescribe nystatin which would safely help lower the gut of candida without injuring other flora. Really, the current medical system just cannot change their dogma and rates of cancer keep increasing. I have little hope for any change whatsoever.

[tegz in reply to Heloise]

Just following your lead, Heloise :0 Glad to expand a little.

I've never had a problem getting Nystatin btw- needed systemic dose after a PPI for reflux kicked off a bout. Similar for ABx. Escaped this time, glad to say.

[Heloise in reply to tegz]

That is fantastic. Are you over your reflux. This doctor I was telling you about had a fix that many people testified to. Put a ginger root through a juicer. Refrigerate the juice and take one teaspoon of this undiluted juice in the morning before eating. Do it for about ten days. It heals the mucous lining. Of course, it burns a little but not doing harm.

[tegz in reply to Heloise]

Yeah, the reflux was only temporary- but the PPI worked for only so long before acidity too low. When I stopped I didn't need again.

Probably the UAT made me a bit vulnerable to this low acid state.

I do take ginger in those lovely gluten free cookies, Asda do.Mmmm

[Clutter]

If anyone ever says hypothyroidism is easily treated in my hearing, I will probably rip their thyroid out, give them a totally inappropriate dose of T4 and tell 'em get on with it and deny any ongoing symptoms are related to hypothyroidism because I'm happy to note their TSH is just where I want it and it doesn't matter in the slightest that their T3 is below range.

[tegz in reply to Clutter]

You've almost finished your GP training.. Next!!

[Clutter in reply to tegz]

How very dare you! It should be obvious to any brain fogged hypothyroidite that the wisdom I condescended to share is from a consultant endocrinologist specialising in Diabetes. Trainee GP pffftt!

[Hidden in reply to Clutter]

Lol

[T3sortedme in reply to Clutter]

Love it! Really made me chuckle.

[Hidden]

Yes. Angry as hell. Especially the (several) GPs who insinuate you're making a fuss about nothing (aka acting like an hysterical woman), expect you to diet off 4 stone gained in under a year when the weight is still going on, and on, and on. Oh - that last was from the consultant. Grrr.

[cloud1]

Yes theres so much ignorance about hypothyroidand how serious it can be ;if unteated or not optimally treated.i was just today saying to my mum how no one understands just how v ill i am ...only i know that my untreated hypothyroid is 'slowly' killing me and how quickly my heakth can go downhill if i let anythin g slip a bit (eg:not get enough exercise ,rest,,sleep,daylight,or regular healthy meals etc)its like constantly paddling to keep head just above water.Like now ,at the end of my period, (and the start of Sseason of S.A.D. effects.)my health is deteriorated;and i get heart symptoms incl what that feels like my heart will come to a stop at times..because of the sluggishness(all body systems slow down.)my temp is even lower,and blood pressure too.not to speak of the effect on mental capacity/wellbeing..I cant explain to people how terrible it can get;what an horrendous illness it is.like living a nightmare all on your own...at times..what the hell am i supposed to do..no one will help me..and i get too ill and lack money to do anything about it much.i just try cope w the symptoms,like i say,by balancing activity w rest and eat healthy ,take supplements..do .yoga.but its mostly just 'survival';i know that i am walking a v precarious ridge of 'wellness',when i am feeling ok...what scares me is any aditional strain on my body,such as infection or accidentwould tip me right over that edge..it doesnt bare thinking about what would become of me.Sorry if i am being a bit of a 'downer';i know that a lot of others r suffering similar or even worse..Its just that recently with the seasonal change it has worsened and reminded me just how so v v ill i am.feels bit like i am going downhill all way into winter...and afraid might nt survive it without 'proper' treatment.(i am unmedicated for hashis/hypo).i not giving up hope but it is tough at times.my 'spirituality' ,and love keeps me sane..to an extent..through all this.

[tegz in reply to cloud1]

Know exactly how you feel, Cloud -and plenty more here with you.

Stress is a big factor and not getting treated doesn't help with this -and causes extra anxiety. This is still stress, as your adrenals respond, even if you don't realise this at the time.

Full marks for Yoga practice and your fighting back for your health.

I did a morning and evening practice for years to deal with stress and it helped a lot.[+ Meditation]

I still do weekly classes- and I hope you keep it going.

Regular daily exercise is important- steady walking can assist with T4 to T3 conversion , I saw recently.