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    Thyroid UK
    82,797 members • 97,819 posts

    body aches and headaches

    is this all part of the joys of being hypo?

    i wake through the night with a pounding head

    i get up in the morning and my entire body hurts and aches including my head literally feels like ive been trampled by a heard of elephants

    im only on 50mcg levo and not allowed to up the dosage as levels are TSH 5.2 U/ml (0.35-6.9

    thats not all my symptons just recent ones

    i cant take much more of this as im exhausted the only way i have been able to get any sleep is by taking kalms during the day and kalms natrasleep

    11 Replies
    oldest • newest

    A TSH of 5.2 is ridiculously high for hypothyroids, it needs to be nearer 1. Do you have any other tests like FT4 or FT3. 50mcg is a low dose, how long have you been on this amount. Your meds look as if they need to be increased otherwise you will just put your body under more strain and make things worse. Your doctor should be taking more notice of your symptoms not your TSH, which is an unreliable indicator of thyroid status.

    From the TSH it is difficult to see what is going on. Have you had any other tests, like B12, ferritin, iron, D3, adrenals etc?

    Reply

    ive been on 50mcg about 2 months now

    last blood test was 9/9/2013

    nothing else was tested my last FT4 was in may and that was 8 pmol/L (5.6-21)

    the last time i seen my dr she told me i can increase dosage as levels are fine and that she is on levo and has never felt ill so i shouldnt be feeling ill

    walking round shopping today i felt like i was going to pass out felt really sick and it wasnt due to hunger as we had just eaten

    Reply

    There are others who hopefully reply who are more knowledgeable than I am, but looking at those results and hearing about your symptoms it would see you are under medicated. If your doctor doesn't understand how thyroid disease works you could ask to see another GP or to be referred to an endocrinologist who should know more.

    Reply

    the dr who refused to increase my dosage actually has hypothyroidism herself and is on 175mcg levo and told me point blank that hse has never felt ill and because my levels are right i shouldnt feel ill either

    Reply

    Yes, I understand that she has hypothyroidism herself and is better on medication, but she still doesn't seem to understand that your results point to the fact that you are under medicated, so maybe seeing another doctor will help? There is a little book by Dr Toft which might be quite useful to buy and take along to your next appointment. It's called Understanding Thyroid Disorders. It might help. LB

    Reply

    ill see all the dr's there is i need to i just want help........ill look on ebay now for the book might help me understand a little bit more

    Reply

    is this the book? ebay.co.uk/itm/Anthony-Toft...

    Reply

    that's the one, and as you can see quite cheap. It is really well written and understandable. I think it will help. it talks about test results and if I remember rightly, it says something about TSH needing to be quite low in some cases for people to feel well. i think this is the bit you might show to your GP.

    Reply

    thankyou will order that now and take when i go see dr again

    Reply

    This happened to me and I thought my life was over , my doctor then told me Levo did not suit everyone and it caused headaches and " dibilitating muscle pain " ! That's me I thought , I changed to armour and within 3 day I was pain free , 8 months later I feel fantastic better than ever , lost all the weight , no headaches and no pain !!! Never give up , this site is fantastic use it to get all the information possible . I hope you soon are on the road to feeling well x

    Reply

    i do feel like im on borrowed time and ive now noticed im very snappy now at stupid things that would never normally bother me

    yesterday i just wanted to curl up in a corner and cry the day away

    hubby has allso said that when i answer something ill add something that has nothing to do with it he finds it quite funny but ive not noticed yet

    it is time i stood up and spoke and tell the dr what i want and need and not listen to her tell me i should be feeling well

    Reply

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