New research linking CFS/ME with mould mycotoxins

Many on this site are aware that thyroid and endocrine problems generally can be closely linked with CFS/ME. Chronic fatigue can often be a lingering and major problem despite every effort to optimise endocrine and other supplement replacement. I have in the past posted information about the key role that mould mycotoxins can play in endocrine dysfunction.

New research has now highlighted a distinct connection between CFS and mould mycotoxins: cfspatientadvocate.blogspot...

An abstract of this study can be found here together with a pdf. link to the full text of the study:

For those of you for whom chronic fatigue is a continuing problem this may just be the glimmer of light you are seeking.

I am currently investigating the availability of testing in this country and will let you know when I have more information.

Jane x

11 Replies

  • Hi Jane, have you already asked Dr M re: availability of testing in UK? (probably you have :D )

  • Yes, I have asked her, but not available I'm afraid. Am checking further though. x x

  • That's really interesting, thanks!

  • Hi Jane, Yes, really interesting! More research needed and then perhaps many patients with ME/CFS will be diagnosed! x

  • I would be really interested to hear about any testing in the UK. I have been recently diagnosed with CFS after what appears to have been a period of glandular fever. This has all happened in the past 12 months, after we moved into an old house that turned out to have a quite severe mould issue. We only discovered the mould when we removed a large hanging from the wall and found it absolutely covered in mould. The hanging was fairly new so this appeared quite suddenly. Another room started to show signs of mould appearing all over the walls. I am still searching for the root cause of my illness and I am fairly convinced it is linked to the mould in our house.

  • I will post on this site as soon as I have any further information as regards testing. Jane x

  • I know mould is a major trigger of asthma, along with house dust mites. I had allergy testing to identify my trigger (dust mites) & as all the immune type things have close links, maybe that sort of testing could be a starting point?

  • Mould allergies should not be confused with Mould Biotoxin illness although many allergies can be caused by MBI as can countless others symptoms and damage to bodily systems. More information here: Jane x

  • Hi Jane,

    I have been ill with hyperthyroidism, fibromyalgia, severe vitamin D deficiency and chemical sensitivity for 6 years. I have a multi-nodular goiter that won't uptake so my only alternative is taking PTU until it eventually burns itself out. I have seen numerous doctors that tell me there is an underlying problem but they are baffled as to what it is. Last year after having fluoride treatment at the dentist I was so ill I was bed ridden for a couple of months. I was tested for porphyria as that was the only thing the doctor could think may be causing the symptoms. I tested positive but then had further investigations at the porphyria clinic a couple of months later, and then tested negative. 6 years ago I was an archivist and we had a water leak at work. It was only discovered after a room full of documents was discovered covered in mould. My job was to dry it out and clean it off. My illness started 4 weeks later beginning with sudden allergy to penicillin, epinephrine, ciprofloxacin and an anaphylactoid reaction to injected corticosteroids. I initially lost 10kg in 3 weeks and doctors couldn't work out what was wrong - told me it was in my head. Finally after 3 years I was diagnosed with hyperthyroidism and put on carbimazole but I was allergic to it so 3 weeks later I started PTU. I decided as doctors couldn't find out the underlying problems, to get tested for mycotoxins, in December 2013 (sent a urine sample to a lab in America). It came back positive for trichothecenes. I have since spoken to a mould expert who told me that trichothecenes do damage the thyroid, necrotise the adrenals and damage the myelin sheath around nerves, as well as cause various other problems. Life has been a living hell for the past 6 years. The mould I was dealing with was probably statchybotrys chartarum which lets off trichothecene mycotoxins. Unfortunately there are few experts around the world as this is supposed to be rare, but I do wonder how many of us are affected by them. Things as so bad that I can't walk into a supermarket without becoming dizzy and disorientated. Shopping malls have a similar effect. I wonder is it's the yeast they use in the bakery or mould in the airconditioning ducts. I also have visual problems and haven't been able to drive since getting sick. My daughter was only 7 when all this began and I feel it has robbed me of her childhood as I had to stop taking her to all the activities we used to do together.

  • Hi Jane

    Have just come across this old post while searching for how to test for mycotoxins in the UK. Did your investigations find anywhere in the UK to test for this please?

  • I'm interested in any update too

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