I feel so much better now, I have made the deci... - Thyroid UK

Thyroid UK

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I feel so much better now, I have made the decision to move to Darlington where my wonderfully supportive son lives.

62 Replies

My son is my rock, and I need to live to near him, rather then be stuck in lousy Bradford, with my wimpy husband, he hasn't spoken to me since having a row about my Dr"s appalling treatment, my husband sat there and let him jeer at me , and refuse to read papers I had printed out from very trusted Thyroid sites, he said my vit B12 was good.... 375 from a range going up to 900+, it said on the paper printed that it should be at least 500 for me to get well on T4 only, I HAVE no thyroid at allAND RAGING antibodies, trying to kill me off, but I am not giving up, so I need 4 hormones not just T4, my Dr just dissed this, and my husband went along with the quack....my son is so upset about my situation he is in bits and seeing a councillor....

I need him and he needs to know I'm OK, so it's off to Darlo ASAP,.....x

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62 Replies
nobodysdriving profile image
nobodysdriving

I totally agree with you, if your son is on your wavelength and he can support you and you him it makes so much sense, pack up and go to live near him, I would xxx

in reply tonobodysdriving

I'll get packing straight away,,,my sister just rang and would not listen ,,,, I'm sick off this, I cut her off twice,,, her son is diabete so you'd think she'd understand....but no... Another brick wall... She thinks I should go along with my arrogant Dr , so I'd never get well ever again.....

in reply to

If they told her son he could only have a quarter of his meds would she like it,,,,,,,,I don't think so.....

in reply to

AND SHE WONDERS WHY IM ANGRY, GRRRRRRRR

in reply to

I'm so angry I feel like smashing the f.......... house up, but who'd end up back in the nut house,yet again grrrrrrrr

nobodysdriving profile image
nobodysdriving in reply to

no no it's not worth it (getting angry), big breath in......let go. Many people out there do not understand, we can't get angry with them, let them be and stick with those who do understand xxx

My father is a blessing, he understands where we come from, He's been on Gaviscon for YEARS given to him by the GP, I didn't know, but now I do know that hypochlridia is the cause of his gastric reflux I told him about apple cider vinegar and to throw away the gaviscon NOW, he is symptomatic of low b12 (probably thanks to the gaviscon he's been taking for the past 8 years or so), so he will now start on b12 supps. I stick with him as he understands, anyone else I don't bother, if they want to join my side fine if not let them be :D xxx

in reply tonobodysdriving

I was on Lansaprozole for over 6 years..... Because of acid reflux.... On reading websites about thyroid problems, I came off this and feel sooo much better, I have some gaviscon but only take it if my reflux is extremely bad, I'd rather have a burning throat then low B12, but Dr stupid said my B12 was fine at 375 drrrr it should be at least 500 -900

in reply tonobodysdriving

I can't wait to start my new life I feel like a new person, I looking at trying a seaside caravan site near Darlo during the summer, so my son can have his space and not feel too compromised, he has such a good life in Darlo I would hate to spoil it for him xxxx

Heloise profile image
Heloise

As they say in the states "don't get mad, get even". Anger is a good motivator I have found, though. It's too bad you have to go to such lengths for something that should be your right to have, but unfortunately, this is life and you have to do whatever it takes. Keep going!

Fruitandnutcase profile image
Fruitandnutcase

Oh Tish, I'm not surprised your son feels upset and worried about you. Your situation is really horrible and having your husband side with the doctor must be so annoying, then along comes your sister saying the same stuff - no wonder you are fed up with them all.

Maybe you will be able to get a more supportive GP / endocrinologist when you move up to Darlington. Keep going and you will get there in the end.

Good luck,

Liz x

in reply toFruitandnutcase

Thank you for caring xxxx

Angel_of_the_North profile image
Angel_of_the_North

If you fancy a reiki healing session (often helps to make you feel better in yourself) I know a lovely gentle man in Darlington - he even arranges shared sessions with friends or family members so you could take your son with you. PM me if you want his details.

in reply toAngel_of_the_North

Sound good to me, I love reflexology too, and yoga, I can't wait to get to Darlo away from all this aggro...

Bless you all, just had another blazing row with my sister on the phone I am sooo angry I went outside and let out such a scream all the dogs in the neighbourhood started barking,,,, but I felt so much better... Even if my neighbours hate me .. I'm moving on...

Stuff them all....I'm going to email all this to my sister.......????? And I'm supposed to live a calm and stress free life.... If only....

Marz profile image
Marz in reply to

...sorry you are having a wretched time - do try and relax and visualise better things in your minds eye....thoughts can be powerful. Negative thoughts can pull us down and make us more poorly. When you are feeling stronger you may need to do some research on Thyroid and Diabetes. Could your sister also have a thyroid problem ? - which she may or may not have passed down to her son. Undiagnosed or under-treated thyroid can sometimes cause diabetes - the pancreas is part of the endocrine system - as is the Thyroid. Do not use this information until you are feeling better and have done your own research....as someone else said - do not waste precious energy on others. Focus on yourself until things settle down. Try to recall some of the breathing exercises you used to do with your yoga - the breath of life - it will just help to create space in your mind so you can fill the space with beautiful thoughts and images.

in reply toMarz

Been there got the tshirt, I study my illness all the time, this is why everyone gets so narked, cos I know I'm right, doctors hate my knowledge and tell me NOT to believe anything I read on the web!!!!!

My sister has a daughter -in-law who has fibro, but will they read up on it ohhhhh nooooo, the silly girl won't even try health unlocked.

She just gets iller and iller stupid girl,, I've no patience with her at ll, and she's just had a baby and is really suffering and won't help herself......grrrrrrr she hasn't and can't work and can't get benefits.....grrrrrrr I feel for that poor baby .....

Moggie profile image
Moggie

Just before you shut the door for the last time leave a copy of the following letter for your husband to read, straight after you have posted another copy to your sister.

Dear Friend/Family Member:

Someone you care about has thyroid disease. You may not know much about thyroid problems, but I imagine, like many of us, you've heard things here and there. If anything, you probably associate the thyroid with weight problems, or think it's an excuse people use for being overweight. Or, you may already know someone else who's taking thyroid medication -- usually Levothyroxine -- and they seem to be doing fine, so you assume thyroid disease will be similar for your friend/family member.

There's so much more to thyroid disease, and while I can't cover it all in this letter, I'm going to try, briefly, to give you a sense of what your loved one is facing. So can I ask that you set aside for a few moments the information you do have about thyroid disease, to open your mind and heart?

The thyroid is our master gland of metabolism and energy. Every single body function that requires oxygen and energy -- basically, everything that goes on in our bodies! -- requires thyroid hormone in proper amounts. That means we need the proper balance of thyroid hormone in order to feel and live well. We need thyroid hormone to think clearly and remember things, to maintain a good mood, to grow hair and nails, to have basic energy to get through the day, to see well, to digest our food, to burn calories, to be fertile, to get pregnant and have a healthy baby, to have a good sex drive, and much, much more. In some ways, you can think about thyroid hormone as the gasoline that makes the car go. No gas, and there's no way to move forward.

Typically, a thyroid problem comes in one of several forms. Your loved one may be hyperthyroid...that means that the thyroid gland is overactive, and producing too much thyroid hormone. When the thyroid becomes overactive, you can think of it a bit like the gas pedal on the car is stuck, and the engine is flooding. If your loved one is going through hyperthyroidism, he or she may be feeling extremely anxious and nervous, with a rapidly beating heart, higher blood pressure, and even palpitations. Some people describe the sensation as like their heart is beating so hard and loud everyone around them can even see it and hear it! They may be hungry and thirsty all the time, suffering from diarrhea even, and losing weight. Others may even be wondering, wrongly, if your loved one's rapid weight loss is due to an eating disorder or some sort of illness like cancer or AIDS. His or her eyes may be sore, sensitive, gritty and irritated, and vision can even become blurry. Sleep may be difficult or impossible, and lack of sleep combined with the body zooming along at 100 miles an hour can cause extreme exhaustion and muscle weakness. Frankly, people who are in the throes of hyperthyroidism have told me that they feel and look like someone who is strung out on drugs, or who has had 20 cups of coffee after not sleeping for a week. With heart pounding, and all body systems going full tilt, your jittery, stressed-out hyperthyroid loved one may even feel like he or she is losing it, ready to fall apart at any moment. If your loved one has thyroid cancer, they have an entirely different challenge. The majority of thyroid cancers are considered highly treatable and survivable, so doctors and others often cavalierly refer to thyroid cancer as "the good cancer." But the reality is, no cancer is "good," and someone who has thyroid cancer has cancer, "the big C." Cancer as a concept is frightening, and raises fears and concerns. Someone with thyroid cancer initially may have few, if any, symptoms. In some cases, however, they may have hypothyroid, hyperthyroid, or a combination of symptoms of a thyroid imbalance. Most thyroid cancer patients require surgery to remove the thyroid -- and this can be daunting, including the idea of a several-inch incision in the neck and resulting scar. After surgery, many thyroid cancer patients will need to have followup radioactive iodine treatment to ensure that all the cancerous tissue was removed, and it can be many weeks after surgery before a thyroid cancer patient -- who by that point is typically quite hypothyroid -- can start thyroid medication to again get lifesaving thyroid hormone they need. And the thyroid cancer patient in your life will require lifetime of medical treatment for the resulting hypothyroidism, along with periodic -- and sometimes physically challenging -- follow-ups and scans to monitor for a recurrence of the cancer.

These are just a few of the conditions that can affect thyroid patients. There are autoimmune diseases -- Graves' disease and Hashimoto's -- that can be at the root of hyperthyroidism and hypothyroidism. Sometimes people develop a goiter -- an enlarged thyroid -- or benign nodules that cause symptoms. Sometimes a temporary infection causes thyroiditis. And again, these problems can be difficult to pinpoint, misdiagnosed as everything under the sign, and even when diagnosed, poorly treated.

So what many thyroid patients have in common is living in a world that overlooks, downplays, poorly treats -- and sometimes even makes fun of -- their condition.

Magazine articles, books by doctors, patients brochures in doctors offices -- and doctors themselves -- insist simplistically that thyroid disease is "easy to diagnose, easy to treat" even though patients know that this is far from the truth. As for "easy to diagnose," your loved one may have even struggled to get diagnosed -- to get taken seriously -- in the first place. Doctors regularly misdiagnose hyperthyroid patients as having an eating or anxiety disorder, and hypothyroid patients as having stress, depression, PMS, or menopause.

Worse yet are the truly unsympathetic physicians that we all too frequently encounter in thyroid care. Like the marathon runner with hypothyroidism who was in training, on a strict diet, and still gaining weight and was told by her doctor that she had "fork in mouth disease." Or the endocrinologists who tell patients, "Well, you should be GLAD, you know, because you have the GOOD cancer!" Or the doctor who diagnosed a woman with hyperthyroidism by clapping his hands together loudly behind her head, chortling: "Oh, I can always tell you hypers, because you practically jump off the examining table when I do that!"

There are advertisements and comedians who use "thyroid problem" as the not-so-secret code to describe someone who is fat. And there's a whole realm of scam artists out there trying to sell us cockamamie Thyro-this and Thyro-that "cures" for thyroid disease that in many cases can make things a whole lot worse -- or at best, not help at all.

Even Oprah admitted she had a thyroid problem, then claimed it went away, then said she had it but it wasn't an excuse for her weight gain, then decided not to get treatment, and continues to struggle with her health issues.

And perhaps saddest of all, there are friends and relatives who say "I don't buy this thyroid disease thing, it's just an excuse for not losing weight" or "Thyroid? Hah! She's just lazy!" Or, "Why can't he just get OVER it and get back to normal?"

Husbands criticize their wives for gaining weight. Teenagers whisper behind a friend's back about anorexia. Coworkers complain that their colleague is "lazy."

Once we're diagnosed, treatment is not an easy fix for many thyroid patients. Doctors try to rush hyperthyroid patients into permanently disabling the thyroid with a radioactive treatment that will make them hypothyroid for life. Many doctors believe there is only one medication to treat hypothyroidism -- a medication that does not resolve symptoms for all patients. When patients learn about other available options, doctors may stonewall, refuse additional treatments, or push antidepressants, cholesterol medications, weight loss pills and more, instead of addressing the thyroid issues. The conventional medical establishment believes that treatment for thyroid problems is one-size-fits-all. This cavalier attitude means that many thyroid patients struggle for years to live and feel well, despite being diagnosed and "treated."

I'm here to ask you -- in a world where thyroid patients are disregarded, overlooked, misdiagnosed, abused, exploited, mocked, and ignored -- to be the person who truly "gets it" for the thyroid patient in your life. Be the person who understands that while thyroid disease may not be visible, it is causing your friend or loved one to suffer. Be the person who understands that even though celebrities aren't talking about thyroid disease, and sports figures aren't wearing bracelets to promote thyroid awareness, that this is a genuine, difficult, and life-changing diagnosis.

Be the person who opens mind and heart to the thyroid patients in your life. Be the person who listens, and learns about the struggles and challenges. Be the person who empowers the thyroid patient in your life, by helping him or her do as much as possible to improve health. Be the person to help find doctors and practitioners who do not view your friend or relative as a cookie-cutter patient on a thyroid assembly line. Be the person who helps the thyroid patient in your life to maintain balance-- to help find time for rest, for exercise, for stress reduction, for self-care, for proper nutrition, for fun!

Live well,

Good luck with it all and keep us update on how good your new GP is.

Moggie x

in reply toMoggie

Oh Moggie, what a wonderful letter, I am sobbing my heart out, I have very severe GD and TED, my eyes are so bad and still overactive, that my surgeon can do nothing until my antibodies settle down, if ever, my double vision is so bad I now carry a white stick, as I go dizzy all the time, I can't cross a busy road on my own, my eye lids are so puffy and my eye so popped I look like an ogre,.. I have aged 10 years in the last 18 mths, I'm 61 and retired, which is a damn good job , cos no one would ever employ me....good job I have a good pension and saving... Cos that b.... Hubby of mine spends loads of money on cigars and the bookies, He'll get a shock when I leave him... He hasn't a clue... He'll be on the streets in no time... Where he belongs... I'm very angry..

nobodysdriving profile image
nobodysdriving in reply toMoggie

lovely letter, who wrote it by the way? was it you Moggie? (I am just 'worried' about 'copyrights' etc, ie: having permission from the write to share it...)

Moggie profile image
Moggie in reply tonobodysdriving

You are joking NBD - I couldn't write something as good as that.lol.

I got the letter from this site ages ago and saved it onto my favourites, didn't think about copyrights. Have also found it on the net a couple of times if that is any good.

Moggie x

in reply toMoggie

I loved your letter

Moggie profile image
Moggie in reply to

Not my letter I'm afraid - but glad that you thought it worth while posting it. Hope all works out really well for you in the future.

Moggie x

in reply toMoggie

Thank you so much for posting that beautiful letter is is so touching, I have been on that website and reading the other letters posted ... It's amazing....

Moggie profile image
Moggie in reply tonobodysdriving

If its any help its here as well as other places on the net.

thyroid.about.com/b/2010/05...

Moggie x

Moggie profile image
Moggie in reply tonobodysdriving

Hi NBD

This might clear it up for you

examiner.com/article/thyroi...

Moggie x

nobodysdriving profile image
nobodysdriving in reply toMoggie

thanks Moggie :)

Marz profile image
Marz in reply toMoggie

....wow Moggie - what an amazing letter and oh so true. Will have to read it again........M x

Moggie profile image
Moggie in reply toMarz

X

Moggie x

beaton profile image
beaton in reply toMoggie

Oh Moggie,what a wonderful letter,it made me cry.xx

in reply tobeaton

I'm still crying xxxxx

Granitecitygirl profile image
Granitecitygirl

Take a deep breath and IGNORE EVERYONE! The more worked up you get the worse it will be. Until you are feeling better, do not pick up the phone, do not try and explain things, do not seek out other human company. Basically, if you were me, I would be a wounded animal right now hiding under a rock. I would stay there until I feel better - generally speaking my rock is my duvet. Stuff everyone else. Everyone else has to come around on their own and it will take time. Right now your priority is you. You have to look after your health - your son has to look after his, so beware of putting too much on him. Sorry about the tone, it is difficult to get it across supportively in text rather than speech but I am such a blunt, hard-nosed, zero-tolerance b*tch by nature (I could say it is my thyroid but I think it's just me). You are doing the right thing by moving to a healthier environment - even if it is only for a couple of weeks it will do you good.

in reply toGranitecitygirl

I lived under my rock from last Sepember until my TT op in June. I didn't go out , I was frightened of everyone and every thing, i even struggled to do the weekly shop with my hubby AND my family knew all this....

I thought I'd got my life back again, but ohhh noooo, this is far worse

I am going totally nuts and at this rate will end up in the nut house once again... That's where they sent me for a week last year when I took, extremely strong antibiotics for The HP virus which interfered with my replace and block meds for overactive thyroid, I was very ill after that cos they didn't even give me the correct meds at the right times I was a total mess for weeks, the so called NHS is appalling , and I worked and paid my n ins and taxes for over 40 years and have never claimed a Penny in benefits, except 6 mths job seekers in 2009 after being made redundant in 2009 after working for the same mail order company for over 40 years..... I have never been able too get a job since, not one reply at all to my job applications... And they wonder why I'm ANGRY.. Grrrrrrr

Granitecitygirl profile image
Granitecitygirl in reply to

You have to let the anger go. Seriously the rage is suffocating I know, but once you decide to let it go, it is like a weight lifted off your shoulders. I am only 29 but my thyroid troubles have been a cake-walk next to everything else I have been through (I am anticipating my graves to keep being a pain in the ass and may need a TT in the future - will cross that bridge when I come to it). I suffered with rage for many many years. It didn't burn out. I was always told to hit a pillow, scream or take up a martial art - it never worked for me. I had to make a decision to let it go.

The next time I get referred to a psychologist I get an honourary psych degree :-) At least, I'm quite sure that's how it works, like collection coupons...

in reply toGranitecitygirl

I worked extremely hard all my life, I've had multiple operations from the age of 7 starting with my tonsils ,then appendix , then in 2007 my ovaries just had to go, massive cysts (graves related)! I find out now I'm diagnosed GD , severe anxiety and depression all my life, my gallstones are next on the list and then my bowels are being investigated early September because of prolapsed bowel and very sharp pains in my side, Everything is going wrong, I am a complete mess, my memory is s.... And I have brain fog and tinnitus and going deaf,,,, I am supposed to be an organ donor but there will be nothing left of me soon,,,,,, ha ha ha, think I will leave my body to medical science the stupid idiots might learn something.... And they can keep it forever its no good to me .... Won't be long by this rate my c..... Dr will see to that....grrrr

Hmmm feeling much better now,, Think I will treat myself to a chicken salad sandwich,some naughty sweeties and lo and behold a white rum with coconut and coke,,, sod it.... Who cares anyway.....might as well go happy...xxx

shaws profile image
shawsAdministrator

Moggie's letter is wonderful. A copy to your GP would definitely be worthwhile too. Just copy and paste Moggie's letter onto a document. It saves you typing the whole letter.

Best wishes

in reply toshaws

My so called GP probably would refuse to read it as all the other printouts I did for him over my B12, blood tests and meds, and even a letter from the government, he refused point blank and was extremely annoyed that I had presented him with them and my so called hubby was on his side!!!!

I'd presented them in a envelope addressed to him and asked him to read them in his own time as advised on the website....grrrrrrrrrr

I think he should be struck off, I mentioned Dr Peatfield some of the letters were from his site and my Dr called HIM a quack ... Grrrrr

I am so wound up ,think I'll go and scream again... Nuthouse here I come... All alone and un loved by all but my son far away and worried to death in Darlo.. I wish I could fly... Darlo here I come...if only...by the way I've emailed all this post to my sister, son, ex husband who still cares about me but I let him go because he wanted his own family and I was reluctant to have a baby at 40 due to extreme post natal despession when I had my son 39 years ago, to my Ist husband who was always having affairs, I put up with that s.... For 7 years.... My 2nd hubby was lovely but wanted a baby, I'm on my 3rd hubby been with him 20 years but we only married last year....BIG MISTAKE ... Went downhill ever since... He loves to be pampered but pampers me not likely.....a hug now and then would be lovely but not to be .... Grrrrrrrt

beaton profile image
beaton

Good luck Tish,I hope things work out for you.Keep in touch.xx

in reply tobeaton

Thanks,I will defo keep in touch, you lot are the only ones worth speaking to,I've even shut down my Facebook for now too many noisy b.... Who don't understand.... They chat than diss me when the going gets tough.... And they don't know the half of it, my niece was messaging me last night telling me how much she loved me, but did her mum who was with her ring me and support me , noooooo, not even today, well they can get lost....they are not worth it xxx be happy don't let them get you down they say hmmmmmmm xxx

Moggie profile image
Moggie

So sorry to you and everyone else who commented on the letter I posted but I am very busy at work at the moment and if my boss catches me on the site he will NOT be please.

I read your post and found it so heart wrenching that I just had to post the letter to you. I hope I haven't appeared rude in any way to you and anyone else.

Moggie x

in reply toMoggie

Don't worry, I loved your letter,,, my son has just rung me up after a hard day at work, he's sooo upset God Bless him . He's so afraid he won't be able to give me the support I need if I move near to him, but I have assured him I will not cramp his style, I have many friends from my workdays who I never see, but chat to all the time on Facebook, the distance is irrelevant, and my beautiful grandaughter in Bingley would be able to visit me any time she pleases and we can FaceTime each other,, so Ill be fine in Darlo, I have no friends in Bradford that I see regularly as I am too ill and they have familes to look after, some of my so called friends I saw a lot of dissed me when I became ill, hmmmm, I need a complete new live whether it be in Darlo or the seaside I'm off. Away from depressing Bradford.....he he he Nutty Tish strikes again,,,,,xxxx

Fruitandnutcase profile image
Fruitandnutcase in reply to

Trish

You know you're right - a complete new start with new and sympathetic doctors, your lovely son in the background and a few visits to the Angel of the North's lovely gentle reiki man and you are on your way to becoming a new you.. I the meanwhile treat yourself to that lovely food, the sweeties and your rum.

Just try and tell yourself that your husband and sister aren't worth bothering about, why make yourself ill because of them. Get planning your new life and go for it.

Liz x

P S I know its not really funny it but you did make me laugh when you wrote about going out for a scream and making all the neighbourhoods dogs start barking. I could just imagine all those people telling their dogs to shut up.

in reply toFruitandnutcase

It did me the world of good too, ha ha ha

Fruitandnutcase profile image
Fruitandnutcase in reply to

Tish, I'm full of hope for you because in spite of everything life is throwing at you I can still see a wicked sense of humour in your posts. That is going to help you through all this.

(((Big hugs))) Liz

MCMC profile image
MCMC

I found very good support in b12d.org charity. They are able to help, if your not being listened to by your GP.

Thankyou every one for you caring replies, I feel sooo much better now, I feel so empowered I will be happy again, join me on my brand new face book Tish Mattocks, my maidenname!!!!!! Haven't used that for 40 years but hey it my life and I will do the best I can to be happy and gets rid of all the deadwood xxxxxx it's time FB is going to be very exclusive with only genuine friends not just noisy b....ers xxxx

Lifeback profile image
Lifeback

Hi Tish i have really missed this site ran out of internet 2 weeks ago it really helps me. i wish you good luck in your move perhaps now you have got rid of all the people that were dragging you down you may hopefully start to feel a bit better well done to your son for looking out for you and looking after his mum xx

in reply toLifeback

Thank you so much for caring, the B.... Has just come home from work...

He still hasn't checked in on me , I am in bed,,,,,, bloody men ....

You're a very brave lady and I do wish you happiness in your new life. We get all sorts of things thrown at us, we don't always have the answers but you've taken a big step to change your life.

Do let us know how you're doing and I hope that you get your medical issues investigated, that has to be your priority.

With best wishes.

The s... Has hit the fan, massive row with that b.....this morning....he's walked out on me...leaving me to cope with our bungalow... I ran my sister and asked her to come and pick me up as I was too poorly to go to Darlo..... She said no she couldn't cope me either.....went to the Doctors... It took ages to stagger there...it's only down the road...I passed out in reception but still had to wait an hour to a doctor, after a long chat all about my situation and being totally alone, she said there was nothing they could do....and sent me home.... I took nearly an hour to get home.... a wonderful young delivery man helped me after seeing me struggling..... So I'm home alone... Can't be bothered to drink, eat or take my meds.... I'm done... Just let me die..for gods sake...I've suffered enough!!!!!!!!

in reply to

Oh Tish, that is just awful for you, but please hang on in there. Your emotions are high at the moment and it is the last thing you need. This may sound like an odd idea (or maybe not) but recently i have seen adverts on our TV from the Red Cross who say they help people in crises. Obviously you are finding it difficult to cope on your own and maybe a telephone call to them might help. Some men find it difficult to cope with illness and perhaps after a cooling off period, hubby will be back.

Its all I can suggest but please don't give up, there is an answer out there somewhere for you but that last thing you need is confrontation.

marram profile image
marram in reply to

Tish, hang on there, because it can be better, but not if you give up. Have you spoken to your son? I have Graves' but a TT has at least calmed me down - then the next fight started to get the right treatment, but at least the constant anguish has been resolved.

I never actually married until 10 years after my TT - it was done at age 36 and I married at 47. It is hard to maintain relationships when you have Graves' because no-one truly understands how we feel, except another graves' sufferer. I have been like you, I completely flipped one weekend when I was alone. You want to be alone but then can't stand it.You feel as if you are going insane.

Please get in contact with your son if you have not already done so.

Hugs Marie XXXXXX

JennyC2 profile image
JennyC2 in reply to

08457 90 90 90

Tish - if you want to speak to someone phone the Samaritans on the number above. You shouldn't be alone if you feel so bad. They will listen and may even be able to help. Please hang in there we are thinking of you. Jx

nobodysdriving profile image
nobodysdriving in reply toJennyC2

very good advice from everyone and from JennyC2 x

Angel54 profile image
Angel54

Hi Tish,

Hang on in there,

Dont let people upset you that do not understand this illness.

Move to where your son is and you will probably feel a lot better.

Totally agree about friends that can disappear when you get ill.

I wish you all the happiness in the world in your new life.

Love Angie xx

Hi everyone, yes I'm still here, just about, I can't phone my son he's gone on a camping holiday in the lakes with lots of friends and their families, he has a wonderful and I'd hate to spoil it, I have decided not to go live near him it would ruin his life...I love him to much to do that,....no I will just have to go it totally alone...

My husband has been home for his lunch before going to work and now won't be back until after 11 tonight...I was in bed when he came in, he never even checked in on me....

I have been to the doctors this morning ...fainted in reception and still had to wait an hour to see the doctor, had a good chat with her, but she could do nothing...didn't even take my blood pressure....sent me home knowing I would be totally alone... I staggered and with the help of a lovely delivery man managed to get home in one piece...head spinning, back killing me, gallstones killing me, side pain killing me, cramp in both legs....need I go on...I can't eat, sleep, stop crying ....I have nobody .......

PoppyRose profile image
PoppyRose

Listen here Tish27!!

If it's what you really want to do to help better your health you go girl! Are you going alone? i wish I was so lucky to be in the position to make that decision ... to leave. Just found out after getting in to seeing a Consultant (GP's refused!!) that after 3 years of not listening to me I have about 10-12 mths left of my thyroid... it's being destroyed with overworking. Consultant simply raised the thyroxine! Argh!! Hubby just waits for the 'meds to kick in' so they can all have the house, mum, wife back.

But ... still have this same mind set and still think things between us won't work so after 20 years perhaps it's NOT the meds .. he should be afraid ... very afraid!!

Good luck an keep us all posted. x

Thread edited in line with our Guidelines:

Don't be abusive, malicious or deliberately misleading

Louise

in reply to

Hey did you mean that you thought I had been Abusive???

Ohhhh.... I've just seen a horrid email from a fella called DearJohn, saying I had an attitude problem, and my hubby would be better off without me!!!!

Was that reply you were calling abrasive,?.... I wish I could have seen his full message I'm really curious as to what rest of it said!!!! But I can't even find his profile, have you chucked him out???

PinkNinja profile image
PinkNinja in reply to

No Tish. Someone called DearJohn posted in response to you and Louise deleted it because it was abusive towards you. We were hoping you didn't see it because it was not nice. Louise removed it straight away. I'm sorry to hear you have also received a message from that person too.

This person, DearJohn, has been removed. It is clear they had joined just to cause trouble. The response on here was pretty much the same as his message to you, by the sound of it.

I'm sorry you have been subjected to this. We were hoping that you hadn't seen this response as it's not nice, but didn't realise you'd also received a personal message from them.

If anyone sends you anything like this again, or responds to any of your posts in an abusive manner, please let us know. That kind of behaviour will not be tolerated on here.

I'm sorry you have been targeted in this way :(

Carolyn x

I get automatic emails sent for most replys etc. so he didn't emails me directly, I only saw the first couple of lines, which were bad enough, I'm very curious about the rest of the reply.....the little devil....so don't be too alarmed that I saw it, there's some real sickos about, I don't wonder we hide under our duvets most of the time,

my hubbies still ignoring me, and I had a massive row on the phone with my ignorant sister again, well tough I will go it alone, I had a brilliant time today shopping and catching up with long lost work pals, who needs family dragging them downhill ,I certainly don't, I am a big girl now, at 61 I think I know my own mind, my family are ignorant thickos afraid of the knowledge we have from studying our illnesses, god help my nephew with diabetes if things starts to go wrong.......but hey that's not as complicated as GD and TED , although it's a horrible illness they get all the best treatment available and rightly so, just wish we did to, why oh why.....

my duvet is snuggerly and inviting, mmmmmm lovely, night night, god bless you all xxxx

PinkNinja profile image
PinkNinja in reply to

Take care xxxx

in reply toPinkNinja

Thank you, having yet another duvet day, night cramps in legs and acid reflux all night long!!!! You take care too, hope you have a brilliant weekend xxxx

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